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LUPUS UK

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reaction to Spikevax XBB 1.5Moderna

Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints,...

Just want to share that I had the above covid booster on Thursday (2nd May) and ...

Larks0ng

•10 hours ago

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Traitement

Bonjour â tous,Je suis atteinte d'une connectivité mixte à dominante lupique. Je vis en France et je me demandais si les traitements étaient identiques au...

Bonjour â tous,Je suis atteinte d'une connectivité mixte à dominante lupique. Je...

Pastel63

•10 hours ago

4 Replies

methylprednisolone iv

Hello all, I've been having a very bad flare for a while. I already take hydroxychloroquine and methotrexate injections. My consultant has suggested...

Hello all, I've been having a very bad flare for a while. I already take hydroxy...

Kath1

•1 day ago

2 Replies

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Methotrexate and a head cold

Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do I need to inform anyone? It's the first "illness" since starting methotrexate.

Hi, I have been on methotrexate for 9 weeks and am starting with a head cold.Do ...

pattypatchwork

•2 days ago

4 Replies

Decipher this cholesterol reading please

I know there are plenty of knowledgeable people reading these posts so can you decipher this please Chol 3.5 mmol/L, LDL , HDL 1.78 mmol/L,Chol:HDL ratio ,...

I know there are plenty of knowledgeable people reading these posts so can you d...

IsleofWight1

•2 days ago

7 Replies

Steroids 30mg

Hey friends, I’m going through rough time. I have a chest infection which happened very quickly the doctor gave me antibiotics and steroids (prednisone). I...

Hey friends, I’m going through rough time. I have a chest infection which happen...

LittleGamer

•2 days ago

16 Replies

Internal tremor (buzz/jangles)

Hi everyone - wondering if this is something others here experience - or whether it's just me? I frequently have a weird internal buzzy feeling to the point...

Hi everyone - wondering if this is something others here experience - or whether...

Wispymisty

•3 days ago

64 Replies

hydroxychloroquine?

hi been told by my rheumatologist I need to start taking hydroxychloroquine and wear SPF50 daily. I haven’t officially been diagnosed with lupus but I assuming...

hi been told by my rheumatologist I need to start taking hydroxychloroquine and ...

Severancered9

•3 days ago

12 Replies

Need to vent to people who will get it.

As the title says. I'm struggling right now and just wanna cry, but can't because I'm on holiday and it's my birthday and I should be having a wonderful time....

As the title says. I'm struggling right now and just wanna cry, but can't becaus...

Diagnosis_Collector

•4 days ago

11 Replies

consultants with interest in lupus in Glasgow

hi Im looking for advice. I had a relapse after a few years and had a consultation with a new consultant as all my old ones had retired. I was pretty much...

hi Im looking for advice. I had a relapse after a few years and had a consultat...

jptwechar

•4 days ago

7 Replies

Updated Lupus and the Skin booklet available now

We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. You...

We are proud to launch an updated version of our Lupus and the Skin information ...

Debbie_kinsey

Administrator•4 days ago

1 Reply

Brain fog, speech delay

Hi I have Lupus and APS and I work 4 days per week. I am finding work harder and harder as time goes on. Yesterday by late afternoon I was so fatigued and...

Hi I have Lupus and APS and I work 4 days per week. I am finding work harder...

Bobbydoodle

•5 days ago

5 Replies

Mam I might need a bath 🛁

Finlay loves a muddy puddle 🫣😫 I hope you all have a good week ahead. Life seems to be difficult for so many of us right now. Thank God for our beautiful...

Finlay loves a muddy puddle 🫣😫 I hope you all have a good week ahead. Life se...

CecilyParsley

•5 days ago

30 Replies

Not so great British summer !

hi all I just wanted to make you smile on a very windy 🌬️ gloomy Monday in Somerset . Even Prince Tiggy I think is suffering from lack of sunshine 🌞....

hi all I just wanted to make you smile on a very windy 🌬️ gloomy Monday in So...

Tiggywoos

•5 days ago

38 Replies

Vitamin D

Not All Sunshine–The Reality of Vitamin D Supplementation:...

MrsMarigold

•5 days ago

6 Replies

Facial erythema

Hi.Can anyone recommend any cream or advice on how to calm facial erythema please ? It happens totally randomly, people assume it's a hot flush. I'd love to...

Hi.Can anyone recommend any cream or advice on how to calm facial erythema pleas...

heatherose

•5 days ago

9 Replies

Hi to everyone.

I feel lonely, sad ,weak and useless.I feel like to give up

AddyT

•6 days ago

17 Replies

Are you a disabled mother who uses LA services?

I am a disabled mother and I am currently do my MSC and looking for participants. I hope this is allowed, if not, please delete. Thanks in advance, Jenny...

I am a disabled mother and I am currently do my MSC and looking for participants...

JennyHJ

•6 days ago

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Secondary Sjogrens

Morning all. I have recently been diagnosed with secondary sjogrens and wondering if anyone has any tips for helping the dry eyes. I have always struggled with...

Morning all. I have recently been diagnosed with secondary sjogrens and wonderin...

Alexia01

•7 days ago

14 Replies

Happy Weekend

Walked up to the Hoy monument, that tiny blob on the second hillock, and across to the Pepperpot on Thursday and coincidentally did the same walk as a guide...

Walked up to the Hoy monument, that tiny blob on the second hillock, and across ...

IsleofWight1

•8 days ago

3 Replies

Notes for upcoming GP appointment

Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice....

Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May...

Wispymisty

•8 days ago

23 Replies

Turmeric curcumin

anyone taking this as a supplement and any advice as mixed reviews online . Thanks

anyone taking this as a supplement and any advice as mixed reviews online . Than...

Johnnyfay

•9 days ago

19 Replies

Gps don't do ENA blood test ?

This blood test was requested February 2023 from a London Hospital. GPS phoned just now and said they don't do this ?

This blood test was requested February 2023 from a London Hospital. GPS phoned j...

Sc12Coco

•9 days ago

13 Replies

UCTD and penicillin allergy and use of hydroxychloroquine

Hi all - I’ve just been diagnosed with UCTD (after many years of symptoms!☹️ ) and have been prescribed Hydroxychloroquine. Consultant gave me a leaflet where...

Hi all - I’ve just been diagnosed with UCTD (after many years of symptoms!☹️ ) a...

RainKing

•9 days ago

10 Replies

Johnny

just been diagnosed with lupus . I’m 55 and would like advice on how to control symptoms and what foods or supplements help

just been diagnosed with lupus . I’m 55 and would like advice on how to control ...

Johnnyfay

•10 days ago

13 Replies

Borderline ana

Hi 😊 Not sure if this is the right bit. For last 3 years I have extreme tiredness, rash on cheeks a lot of ulcers in mouth. Unsure if lupus was sent to...

Hi 😊 Not sure if this is the right bit. For last 3 years I have extreme tiredn...

Beeekind22

•10 days ago

12 Replies

can ANA turn negative?

Hi everyone, I’m a total newb to this. I have just been diagnosed with SLE and am in a bit of a whirl. It came as a shock. I hadn’t even heard of it before I...

Hi everyone, I’m a total newb to this. I have just been diagnosed with SLE and a...

Yorkshiremeadows

•11 days ago

35 Replies

Help I don’t understand

So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my...

So for the last 4 months I’ve been having pain in my muscles and head as well as...

Jadaboo4

•11 days ago

2 Replies

Help us develop a new information resource on lupus and the menopause

We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to...

We're developing new information resources about lupus and the menopause. We wan...

Debbie_kinsey

Administrator•12 days ago

8 Replies

The coexistence of UCTD/SLE and Endometriosis/Adenomyosis

Dear Lupies, I hope you are feeling well. 🙏 I wanted to share my recent experience with you all. Despite years of discussing my menstrual difficulties,...

Dear Lupies, I hope you are feeling well. 🙏 I wanted to share my recent experie...

Naladog

•12 days ago

17 Replies

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

reaction to Spikevax XBB 1.5Moderna

Traitement

methylprednisolone iv

Methotrexate and a head cold

Decipher this cholesterol reading please

Steroids 30mg

Internal tremor (buzz/jangles)

hydroxychloroquine?

Need to vent to people who will get it.

consultants with interest in lupus in Glasgow

Updated Lupus and the Skin booklet available now

Brain fog, speech delay

Mam I might need a bath 🛁

Not so great British summer !

Vitamin D

Facial erythema

Hi to everyone.

Are you a disabled mother who uses LA services?

Secondary Sjogrens

Happy Weekend

Notes for upcoming GP appointment

Turmeric curcumin

Gps don't do ENA blood test ?

UCTD and penicillin allergy and use of hydroxychloroquine

Johnny

Borderline ana

can ANA turn negative?

Help I don’t understand

Help us develop a new information resource on lupus and the menopause

The coexistence of UCTD/SLE and Endometriosis/Adenomyosis

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