Borderline ana

[Beeekind22]

Hi 😊

Not sure if this is the right bit.

For last 3 years I have extreme tiredness, rash on cheeks a lot of ulcers in mouth.

Unsure if lupus was sent to consultant he only said borderline ana we can't help you 🙈

Has anyone had lupus with a borderline ana.

Recently had blood test.

Vitamin d 48 nmol.

Calcium 2.52

Magnesium 0.99

Creatine 39 nmol ( low)

Uric acid 110 nmol (low)

Tsh 1.29 mul

B12 55.

Crp 0.4 mgl.

Abit about me been vegan last four months. My main symptoms are tiredness lower left tummy ache.

Any help on blood or advice would be great.

[StriatedCaracara]

Possibly they have adopted the 2019 EULAR ACR SLE Classification Criteria intended for research BUT not to diagnose.

This has positive ANA as an entry criterion.

Figure 1 in this Cureus paper, on right side, lists blood tests.

Under this figure it says some cases will be missed and discusses briefly the case of sero-negative ANA.

Annoying advertisements appear as you scroll, so scroll with care. I found them very irritating, whilst trying to read a paper that was so interesting.

cureus.com/articles/162942-...

Table 2, in the right column, lists other significient checks that are missed by the 2019 Classification criteria.

****

Did the specialist review symptoms or just start the appointment discussing blood results?

In the past people could be diagnosed with seronegative Lupus.

I don't not think the condition has changed but maybe, in some hospitals, the way patients are reviewed has.🙄

My GP supported me through a second opinion as they knew I did have lupus symptoms. Every week different things were going wrong, but local NHS rheumatologist would not even listen, and said photos could not be used to diagnose.

It was a joke.

[Beeekind22 in reply to StriatedCaracara]

Thanks for reply it's so confusing and hard when they just leave you to it. Yes I was shocked how he said I can't help you good your gp supported you.So hard when it's lot of different symptoms.

😃🤗

[soul22]

Hi nice to meet your in right place

It doesn't always go high enough positive straight away mine didn't.

Persevere u can be re referred or ask second opinion.

Wish h best

[Beeekind22 in reply to soul22]

Thank you what were you symptoms. 🤗

[soul22 in reply to Beeekind22]

Hi

I suddenly had bleed changes huge swollen belly heavy pressure nim groin ovaries area.

Swelling.high tumour markers if I asking about cancer.

Not sure u didn't say

[Beeekind22 in reply to soul22]

So sorry to hear that hope you're recovering ok. Sorry I meant for lupus do you also have lupus.Sorry to hear of cancer.

[soul22 in reply to Beeekind22]

Thankyou

I wouldn't be in here if didn't,that's rather inconsiderate.

I have alot auto immune conditions including sleeping says so in my response people in here take look please

[Beeekind22 in reply to soul22]

Sorry I'm completely new to health unlocked not too sure how it all works my apologies. Didn't mean any offence I'm.justnpn here to try learn abit more about lupus.I seem to have so many lupus symptoms it's difficult to diagnose.

Best wishes.

[soul22 in reply to Beeekind22]

It's okay Sorry to

Bless you it is I was diagnosed at at regular rheumatology appointment butterfly rash came up referred me to dermatology immune specialist who saw me after regular dermatology saw me for dermatitis of scalp.

I have a overlap

If rheumatoid arthritis sero negative

Sle lupus

Fibromyalgia

Raynaud's syndrome

Anti phospholipoids syndrome

Much love

[Beeekind22 in reply to soul22]

That's alot to deal with.My mum has fibromyalgia so tiring.

I tend to get the butterfly rash on face and mainly tiredness and ulcers in mouth. Sometimes get digestives problems so trying gluten free diet to see if helps. Fingers crossed 🤞🤗

[soul22 in reply to Beeekind22]

Sorry hear that ,thankyou 💗 I'm used to it

I get alot mouth ulcers butterfly rash to

No harm trying diet changes I had professional nutrition advice when I moved hospitals they test urine at every appointment.

I need re book as I was to ill bronchitis to attend January appointment.

[Beeekind22]

I'm hoping gluten free might help I get tummy pains on the left. Hope you can get your appointment soon. 🤞🤗