Brain fog: Does anyone suffer brain fog, silly... - LUPUS UK

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Brain fog

Doey1962 profile image
14 Replies

Does anyone suffer brain fog, silly question I know, I ask this because I was hovering on Sunday, and I know how stupid this sounds, but for a few seconds I totally forgot how to turn it off, I have had one or two episodes like this, is this symptomatic of Lupus brain fog as it's called?

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Doey1962 profile image
Doey1962
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14 Replies
MrsMarigold profile image
MrsMarigold

Hello. It may be brain fog and yes I sure have it. It’s also an aging thing and could be due to your meds. All of these I have had to evaluate to figure the source. Best, Titters

svfarmer profile image
svfarmer

Hi Doey yes most of us on here suffer with brain fog unfortunately - something I do a lot is when I’m having a conversation with someone I can completely forget what I was talking about and often can’t say the words that I want to say which is very embarrassing xx

Doey1962 profile image
Doey1962 in reply tosvfarmer

I do that a lot too, but actually forgetting how to turn something off, I use every day is an all time low for me 🤣🤣, I've had a similar things happen, Gosh isn't this awful, I imagine all sorts sometimes.

MrsMarigold profile image
MrsMarigold in reply tosvfarmer

It truly can be the nightmare of conversations. It is one of the symptoms I can’t accept yet. Or never. Beginning to play scrabble. Read and write down

In shorthand what I read. Our bodies hurt and our brains fail us. Going to freezer right now for chocolate brownies ice cream.

I never seem to forget that🧐

Doey1962 profile image
Doey1962 in reply toMrsMarigold

🤣🤣🤣 strange you should say that, I suddenly can't eat salt, but tend to want sugary things.

svfarmer profile image
svfarmer in reply toMrsMarigold

Chocolate brownies Ice cream - now that sounds delicious 😋

HedgeEnd profile image
HedgeEnd in reply tosvfarmer

Me too!!It is so embarrassing when I do that. It's fine if I'm with my family but out in the real world is another story!! Glad it's not just me x

suzannah16 profile image
suzannah16

I was went blank when I had to sign my name.

Doey1962 profile image
Doey1962 in reply tosuzannah16

Not done that yet, but nothing would surprise me 🤣🤣🤣

MrsMarigold profile image
MrsMarigold

I have a special clock I got on Amazon a few years ago I I think. You have to punch each button for the date. One for the day, monthDate. One two three. I know what season I’m in and whose birthday I missed😬🤣🤣but it does work!!!! And I think because it’s not just visual it is interactive. 🧠👀it’s a brain😂

MercyT profile image
MercyT

Me too Doey1962. I swear I was terrified it was early onset dementia, my rheumatologist just said, ‘oh that’s very common, just brain fog’.. JUST?! It’s distressing and very real. X

Hamptons profile image
Hamptons

Often, the other day I had no idea how to use the controls in my car. Completely baffled, had car for 16 years. Afterwards we laugh but can be scary at the time. Wish I could or get how to turn hoover on - be a great excuse for slovenliness

Tiexx profile image
Tiexx

Hi Doey, thanks so much to you and everyone for sharing your experiences. It’s so reassuring to learn I’m not the only one with Lupus brain fog - I too forgot how to work the car controls recently and forgot my house alarm code the other day, I’ve had the same code for years! It can definitely be embarrassing and scary at times xx

Doey1962 profile image
Doey1962

Very scary, I know it has worried my children from time to time. Xx

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