Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for December 2020

Stegosaurus jumper 🐶

I have at last finished the stegosaurus jumper for Bea - took a while as fingers were hurting 🤨 but am really pleased how it turned out - it’s now time to...

I have at last finished the stegosaurus jumper for Bea - took a while as fingers...

svfarmer

•3 years ago

30 Replies

LUPUS UK & Idorsia Webinar - Involvement in Lupus Clinical Trials - 5pm (GMT) TODAY

Hi everyone, Just a quick reminder that we have another live webinar this evening, thanks to the assistance of Idorsia Pharmaceuticals. Please join us at 5pm...

Hi everyone, Just a quick reminder that we have another live webinar this evenin...

Paul_Howard

Partner•3 years ago

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A Man Sized Christmas Stocking

Hubby had a fancy knitted stocking which apart from being skinny also was difficult to insert presents because of the strands of different coloured wool on the...

Hubby had a fancy knitted stocking which apart from being skinny also was diffic...

Spotty-ewe

•3 years ago

44 Replies

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Tiredness

I’m struggling with chronic fatigue. Are there any medications out there that will help alleviate this?

I’m struggling with chronic fatigue. Are there any medications out there that wi...

Trulytired

•3 years ago

4 Replies

My life with Lupus, etc.!

I'm new here. When I was born, my parents were 'not allowed' to see me for a number of days...that concept sounds crazy today but that was 1954 when that...

I'm new here. When I was born, my parents were 'not allowed' to see me for a num...

picinisco

•3 years ago

2 Replies

Lupus & COVID-19 Vaccination

Hi everyone, We have just published an article on our website with information and guidance for people with lupus about the COVID-19 vaccine....

Hi everyone, We have just published an article on our website with information ...

Paul_Howard

Partner•3 years ago

22 Replies

Just a moan

Hi all, I just need somewhere to moan at the moment. I was off work for 3 and half weeks due to unusual pain and a flare up for me. Whilst I was off during...

Hi all, I just need somewhere to moan at the moment. I was off work for 3 and ha...

LouLamb

•3 years ago

30 Replies

Chubby squirrel 🐿

Thought I would share this photo I took this morning on a dog walk - Bea chased him up the tree where he sat for ages but he’s the chubbiest squirrel 🐿 I’ve...

Thought I would share this photo I took this morning on a dog walk - Bea chased ...

svfarmer

•3 years ago

15 Replies

I'd be really interested in comments on this editorial -written to accompany Melanie Sloan's et al, comments on communication

There is some lovely artwork to show importance of communication and some ideas on improving lupus care in general...

There is some lovely artwork to show importance of communication and some ideas ...

Milliecox

•3 years ago

8 Replies

Swollen painful right ankle

Hi, Is a week that my right ankle is swollen and painful. My D Dimer is elevated but no blood clots. I'm wondering if it could be related to my kidney...

Hi, Is a week that my right ankle is swollen and painful. My D Dimer is elevat...

Tulipano

•3 years ago

1 Reply

For the Stormy Sunshine

I have only just heard that Stormy is in hospital with heart trouble (Tachycardia). I hope she is feeling better soon and that these Alpacas bring a smile to...

I have only just heard that Stormy is in hospital with heart trouble (Tachycardi...

Spotty-ewe

•3 years ago

44 Replies

Can anyone recommend a good rhuematologist near Bolton Greater Manchester please

hi i have recently seen a doctor at a centre of excellence centre near me. I totally feel that she doesnt believe me and over many years have seen a few. Her...

hi i have recently seen a doctor at a centre of excellence centre near me. I tot...

Lolacola777

•3 years ago

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Are sores on roof of mouth and frequent sore throat’s common?

Hello, I have had blister (solid red) back of throat before with sore throat that refused to go away for 3 months. I felt great for a month or two and it’s...

Hello, I have had blister (solid red) back of throat before with sore throat tha...

Nvrenfhorses2

•3 years ago

12 Replies

Help with possible lupus

Hi I'm wondering if any one can help or relate to my story. In June 2018 I ended up in hospital where I was told I had severe pneumonia. A week after being in...

Hi I'm wondering if any one can help or relate to my story. In June 2018 I ended...

SamanthaG96

•3 years ago

6 Replies

Struggling in my new role at work.

I work as a graphic designer, and up until March was in a role that had been created specifically for me as an accomodation for the needs and limitations of my...

I work as a graphic designer, and up until March was in a role that had been cre...

eescvc

•3 years ago

5 Replies

Rotavirus vaccination risks

Hi everyone. My 8 week old baby is due to have his 1st set of vaccinations next week and I’m aware that the rotavirus drops are live and I take azathioprine....

Hi everyone. My 8 week old baby is due to have his 1st set of vaccinations next...

losull45

•3 years ago

4 Replies

Stunning

One of my favourite animals. So beautiful.

CecilyParsley

•3 years ago

13 Replies

Functional Medicine Nutritional Therapist

Can anyone recommend a good Functional Medicine Nutritional Therapist in and around the Manchester area?

Can anyone recommend a good Functional Medicine Nutritional Therapist in and aro...

Tara44

•3 years ago

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Pygmy Possums

Just to make you smile 😍

CecilyParsley

•3 years ago

6 Replies

Black toe nails

Past year I've had black patches under both big toe nails and also my index finger nails in the middle bruise looking Not fungle infections ( doctor did a...

Past year I've had black patches under both big toe nails and also my index fing...

Pmeh

•3 years ago

9 Replies

How to pee in a pot!

I’m really sorry if this sounds like a rant. It is a rant 😊. Please don’t feel you have to read or comment I’m just feeling better writing it all down! I...

I’m really sorry if this sounds like a rant. It is a rant 😊. Please don’t feel...

Andfiona

•3 years ago

23 Replies

Dry eyes and humidifiers

Hi Everyone I've had long standing dry eyes for many, many years (pre diagnosis of my Lupus and Relapsing Polychondritis) but in this past year the dryness has...

Hi Everyone I've had long standing dry eyes for many, many years (pre diagnosis ...

BookishVibes

•3 years ago

2 Replies

LUPUS UK News & Views Magazine - Winter 2020 - OUT NOW

The winter 2020 edition of LUPUS UK News & Views Magazine was sent to all our members last week. Here is a preview of what is included in this issue:...

The winter 2020 edition of LUPUS UK News & Views Magazine was sent to all our me...

Paul_Howard

Partner•3 years ago

2 Replies

Lupus/cbd

is anybody taking cbd oil to help lupus /fibromyalgia plZ

Hometeam2016

•3 years ago

7 Replies

Do you take 300mg (or equivalent) of hydroxychloroquine per day? Will you share your story/experiences?

Hi everyone, I'd like to hear from two or three people who take 300mg of hydroxychloroquine a day (or an equivalent dose). We'd like to collect some views...

Hi everyone, I'd like to hear from two or three people who take 300mg of hydroxy...

Paul_Howard

Partner•3 years ago

6 Replies

Lupus and COVID 19 vaccine

Are there any details yet on not being able to have the COVID 19 vaccine if you have Lupus?

Are there any details yet on not being able to have the COVID 19 vaccine if you ...

Sim1966

•3 years ago

2 Replies

New symptoms! Urgent advice needed

Hi, I have been really poorly the few months. I’ve been in touch with my consultant and had tests. It came back I have a very low vitamin D I’ve been taken...

Hi, I have been really poorly the few months. I’ve been in touch with my consult...

MichelleHoward

•3 years ago

5 Replies

Interesting twist of events

Hi, hope everyone is staying safe and well. We are again in lockdown and California looks to be pretty high on the exposure list. Please keep us in your...

Hi, hope everyone is staying safe and well. We are again in lockdown and Califor...

JennaShi

•3 years ago

10 Replies

It’s Mira Monday 🐶🐶

Hi Folks hope all had a good weekend - the weather here in Bristol has been really dreary lately- I’m counting the days down to Spring 😌 today we have a super...

Hi Folks hope all had a good weekend - the weather here in Bristol has been real...

svfarmer

•3 years ago

17 Replies

Frankyl feeling hot.

I have cutaneous lupus and always feel hot compared to others. Anyone else have this symptom?

I have cutaneous lupus and always feel hot compared to others. Anyone else have ...

FRANKYL

•3 years ago

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2020

Stegosaurus jumper 🐶

LUPUS UK & Idorsia Webinar - Involvement in Lupus Clinical Trials - 5pm (GMT) TODAY

A Man Sized Christmas Stocking

Tiredness

My life with Lupus, etc.!

Lupus & COVID-19 Vaccination

Just a moan

Chubby squirrel 🐿

I'd be really interested in comments on this editorial -written to accompany Melanie Sloan's et al, comments on communication

Swollen painful right ankle

For the Stormy Sunshine

Can anyone recommend a good rhuematologist near Bolton Greater Manchester please

Are sores on roof of mouth and frequent sore throat’s common?

Help with possible lupus

Struggling in my new role at work.

Rotavirus vaccination risks

Stunning

Functional Medicine Nutritional Therapist

Pygmy Possums

Black toe nails

How to pee in a pot!

Dry eyes and humidifiers

LUPUS UK News & Views Magazine - Winter 2020 - OUT NOW

Lupus/cbd

Do you take 300mg (or equivalent) of hydroxychloroquine per day? Will you share your story/experiences?

Lupus and COVID 19 vaccine

New symptoms! Urgent advice needed

Interesting twist of events

It’s Mira Monday 🐶🐶

Frankyl feeling hot.

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