Lupus & COVID-19 Vaccination: Hi everyone, We have... - LUPUS UK


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Lupus & COVID-19 Vaccination

Paul_Howard profile image
22 Replies

Hi everyone,

We have just published an article on our website with information and guidance for people with lupus about the COVID-19 vaccine.

We are grateful for your patience whilst we consulted with expert clinicians to develop this guidance. We politely request that you read the information carefully before asking questions so that we can concentrate our efforts on responding to enquiries that are not addressed by the current guidance.

Thank you.

22 Replies
suzannah16 profile image

thank you

sunshine16 profile image

LUPUS UK you are amazing thank you

fabwheelie profile image

Thank you so much LUPUS UK you're fabulous

fabwheelie profile image

Please wait until you get your call to get any vaccination. I would personally say if your on Warfarin or Rituxumab it's possible your medical team need a review with you first.

Warfarin I believe as a precaution that INR is fine so that it would be attempted minimum possible effects from getting the injection ( eg soreness, swelling, bleeding).

Rituximab as I believe it's likely they'd like to time your vaccination between any regime you have for getting that ....

This is just my personal opinion / educated guess from things I've read whilst doing my own research, but would appear backed up by the actual vaccine leaflet

Neriah profile image

Thanks Paul for this. Is it clear yet whether the vaccine will be safe for those of us specifically with lupus nephritis?

Paul_Howard profile image
Paul_HowardPartner in reply to Neriah

Hi Neriah ,

Thank you for your question. The guidance in our article is also applicable for those with lupus nephritis. However, if you are unsure about whether you should have the vaccine, my advice would be to discuss it with your consultant when you have been invited to have it.

Insomniacette profile image

Thank you! 😊

Susieliz39 profile image

Many thanks for this guidance Paul, it outlines concerns clearly. Regards.

Krazykat26 profile image

Thank u 🌈😽😽xx

Cathyan profile image

Thank you Paul, and Prof Edwards and Dr Smith. A very clear helpful article.

TEDDYM profile image

Thank you Paul.

Kevin53 profile image

Thanks Paul for providing this excellent guidance in such a timely manner. Best wishes Kevin

svfarmer profile image

Thanks x

LouLamb profile image

Thank you. Has answered a lot of questions for me and helped put my mind at ease for now. 😀

CecilyParsley profile image

Thank you Paul, much appreciated

Jumper99 profile image

Hi PaulThank you for this article, it’s really helpful. I am one of the people who probably shouldn’t have this as I have allergy and intolerance problems. Does anyone know if the Oxford/AstraZeneca vaccine will cause similar problems for those of us with allergies?

Paul_Howard profile image
Paul_HowardPartner in reply to Jumper99

Hi Jumper99 . I'm afraid that we don't have that information available at the moment. After the MHRA has provided a recommendation for the use of the Oxford/AstraZeneca vaccine, we will update our article.

Jumper99 profile image
Jumper99 in reply to Paul_Howard

I thought it was probably too early but it would have felt good to know there was a vaccine I could have. As I understand it, the O/AZ vaccine is more along the usual vaccination methods rather than the new technology so I am hopeful.

ajanjua profile image

Hi Paul I have been advised to have the Pfizer vaccine by my consultant as this is mRNA based compared to the Oxford one which has a live part of the Covid vaccine.

Is this something that you have come across?

I'm booked in to have the jab but just need reassurance is this the best way forward for lupus patients who have kidney damage as I do.

baba profile image
baba in reply to ajanjua

See Paul_Howard ‘s latest update

ajanjua profile image

Now I'm really confused as my consultant has said not to have the Oxford one

Paul_Howard profile image
Paul_HowardPartner in reply to ajanjua

Hi ajanjua . Could you send me a private message or email me at and let me know who your consultant is please? As you've seen from our update that baba kindly shared, the Oxford vaccine is not considered 'live' and is safe for people who are immunosuppressed. We are aware that some clinicians have been misunderstanding this and causing confusion for patients and we're trying to get this addressed with a statement from Chris Witty.

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