Lupus & COVID-19 Vaccination

[Paul_Howard]

Hi everyone,

We have just published an article on our website with information and guidance for people with lupus about the COVID-19 vaccine.

lupusuk.org.uk/covid19-vacc...

We are grateful for your patience whilst we consulted with expert clinicians to develop this guidance. We politely request that you read the information carefully before asking questions so that we can concentrate our efforts on responding to enquiries that are not addressed by the current guidance.

Thank you.

[suzannah16]

thank you

[sunshine16]

LUPUS UK you are amazing thank you

[fabwheelie]

Thank you so much LUPUS UK you're fabulous

[fabwheelie]

Please wait until you get your call to get any vaccination. I would personally say if your on Warfarin or Rituxumab it's possible your medical team need a review with you first.

Warfarin I believe as a precaution that INR is fine so that it would be attempted minimum possible effects from getting the injection ( eg soreness, swelling, bleeding).

Rituximab as I believe it's likely they'd like to time your vaccination between any regime you have for getting that ....

This is just my personal opinion / educated guess from things I've read whilst doing my own research, but would appear backed up by the actual vaccine leaflet

[Neriah]

Thanks Paul for this. Is it clear yet whether the vaccine will be safe for those of us specifically with lupus nephritis?

[Paul_Howard Partner LUPUS UK in reply to Neriah]

Hi Neriah ,

Thank you for your question. The guidance in our article is also applicable for those with lupus nephritis. However, if you are unsure about whether you should have the vaccine, my advice would be to discuss it with your consultant when you have been invited to have it.

[Insomniacette]

Thank you! 😊

[Susieliz39]

Many thanks for this guidance Paul, it outlines concerns clearly. Regards.

[Krazykat26]

Thank u 🌈😽😽xx

[Cathyan]

Thank you Paul, and Prof Edwards and Dr Smith. A very clear helpful article.

[TEDDYM]

Thank you Paul.

[Kevin53]

Thanks Paul for providing this excellent guidance in such a timely manner. Best wishes Kevin

[svfarmer]

Thanks x

[LouLamb]

Thank you. Has answered a lot of questions for me and helped put my mind at ease for now. 😀

[CecilyParsley]

Thank you Paul, much appreciated

[Jumper99]

Hi PaulThank you for this article, it’s really helpful. I am one of the people who probably shouldn’t have this as I have allergy and intolerance problems. Does anyone know if the Oxford/AstraZeneca vaccine will cause similar problems for those of us with allergies?

[Paul_Howard Partner LUPUS UK in reply to Jumper99]

Hi Jumper99 . I'm afraid that we don't have that information available at the moment. After the MHRA has provided a recommendation for the use of the Oxford/AstraZeneca vaccine, we will update our article.

[Jumper99 in reply to Paul_Howard]

I thought it was probably too early but it would have felt good to know there was a vaccine I could have. As I understand it, the O/AZ vaccine is more along the usual vaccination methods rather than the new technology so I am hopeful.

[ajanjua]

Hi Paul I have been advised to have the Pfizer vaccine by my consultant as this is mRNA based compared to the Oxford one which has a live part of the Covid vaccine.

Is this something that you have come across?

I'm booked in to have the jab but just need reassurance is this the best way forward for lupus patients who have kidney damage as I do.

[baba in reply to ajanjua]

See Paul_Howard ‘s latest update

healthunlocked.com/lupusuk/...

[ajanjua]

Now I'm really confused as my consultant has said not to have the Oxford one

[Paul_Howard Partner LUPUS UK in reply to ajanjua]

Hi ajanjua . Could you send me a private message or email me at [e-mail] and let me know who your consultant is please? As you've seen from our update that baba kindly shared, the Oxford vaccine is not considered 'live' and is safe for people who are immunosuppressed. We are aware that some clinicians have been misunderstanding this and causing confusion for patients and we're trying to get this addressed with a statement from Chris Witty.