Hi, hope everyone is staying safe and well. We are again in lockdown and California looks to be pretty high on the exposure list. Please keep us in your thoughts and prayers as i can only imagine how tired health care employees must be. A good friend of mine recently tested positive as she was around her family helping as they are adjusting to a newly adopted baby along side two other kids and got the virus from them. Not sure how they got it but my friend has MS and other health issues. Hoping and praying she pulls out ok but worry.
In other news my husband and I traveled to UCLA to get the emg and blood work retested. Neuro said emg was good but I noticed I don’t have good reflex in my ankles and I think elbows? (Can’t remember) not so good with with balance. The interesting part is she thinks I have Ehlers Danlos syndrome and had sent me a paper on it/ said it can be another cause of sfn. Anyone else have this?
Blood work came back and still slightly elevated cardiolipin antibodies although slightly lower than before. So I’ve come to the conclusion that our labs around here are not as sensitive. Will see what she says as I have an appointment with her later this month.
Getting a Tens unit tomorrow and hoping this will help with the neuropathy so I don’t have to rely on medication so much.
Has anyone looked into mitochondrial disease? Or been diagnosed?
I’ve been going through the grieving process as I’ve been desiring answers for a long time and have been told that I may never get them. How have you gotten through the process/ been able to accept and move on? It seems like it comes in waves. Have a nice week!