Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for August 2020

Lupus rash

Hi, I new to this sort of thing and normally I just plod on with my symptoms I in the hope they will ease a case of pretending I’m not ill. I was diagnosed...

Hi, I new to this sort of thing and normally I just plod on with my symptoms I i...

Chocolab

•4 years ago

11 Replies

Bad flare up

Hi All, I’m finding it hard to post this as Im usually the kind of person that just gets on with it, taking the rough with the smooth. I have lupus and...

Hi All, I’m finding it hard to post this as Im usually the kind of person that j...

Josiah150767

•4 years ago

14 Replies

l need advice

hi l,v been on Nintedanib for 6 weeks ,for the past week lv developed diarrhoeaq does this last now all the time or is it just occasional occurrence.? l have I...

hi l,v been on Nintedanib for 6 weeks ,for the past week lv developed diarrhoeaq...

rodders1941

•4 years ago

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Methotrexate

Goodnight everyone! I've been suffering with Fibromyalgia and SLE for about 4-4½years. My doctor would like to begin Methotrexate, 15mg a week (5mg, 3x per...

Goodnight everyone! I've been suffering with Fibromyalgia and SLE for about 4-4½...

Stephanie0210

•4 years ago

14 Replies

Bone pain in calf with lupus flare ?

Pooh bear (the wife) has SLE and has a small flare at the moment probably caused by the sun. Theres one feature she always gets and we dont know why. Her shins...

Pooh bear (the wife) has SLE and has a small flare at the moment probably caused...

jimbo1605

•4 years ago

11 Replies

Upset myself

I thought all this panicking was over Honestly don’t think I will sleep tonight Just sitting her watching channel 4 lady with msa Then yep I googled...

I thought all this panicking was over Honestly don’t think I will sleep tonight ...

Buckley123

•4 years ago

79 Replies

Breathing problems

My second post today. Is there anyone here that has breathing problems that are connected to muscle problems/ weakness and the diaphragm and not the lungs?

My second post today. Is there anyone here that has breathing problems that are ...

Muff20

•4 years ago

7 Replies

Lupus & Coronavirus (COVID-19) - UPDATED 11/08/2020

We've just published an update to our information and guidance about lupus and COVID-19 to account for the pausing of shielding in England, Scotland and...

We've just published an update to our information and guidance about lupus and C...

Paul_Howard

Partner•4 years ago

4 Replies

Great day!

Well today went well, suddenly realised my opticians appointment was earlier than I thought. Rushed off and tripped up the kerb and spawlled across the street!...

Well today went well, suddenly realised my opticians appointment was earlier tha...

Muff20

•4 years ago

5 Replies

Moving house

Does any know what the rules are when you move out of area of your current consultants? I am moving home , just across the county border but into a new...

Does any know what the rules are when you move out of area of your current consu...

SashaT64

•4 years ago

2 Replies

Disappointing twist

Hi all, Just wanted to say thank you for your support and comments. I got all my labs back but one and have to say although they look good, I’m disappointed...

Hi all, Just wanted to say thank you for your support and comments. I got all m...

JennaShi

•4 years ago

17 Replies

Red versus Blackbird

Look who I found in the tree, I put some bird nuts out and down came Red, there was a bit of a stand off between him and a blackbird but Red won! I didn't...

Look who I found in the tree, I put some bird nuts out and down came Red, there ...

Maddymay65

•4 years ago

3 Replies

It’s Mira Monday 🐶

Good morning everyone- hope all are doing as well as can be . This weeks picture I took yesterday just after Mira had some sweet potato - she loved it as you...

Good morning everyone- hope all are doing as well as can be . This weeks picture...

svfarmer

•4 years ago

13 Replies

Interesting article on Immunology.

I really liked the article below - not so much for what it says about Covid-19, although that is interesting, but because it gives a really good explanation of...

I really liked the article below - not so much for what it says about Covid-19, ...

WinterSwimmer

•4 years ago

8 Replies

Stress incontenance

Can lupus cause stress incontinance ? Suffered for years but since my diagnosis wondering if it’s related . Never mentioned it to my Rhumatology team as pain...

Can lupus cause stress incontinance ? Suffered for years but since my diagnosis ...

Harry19

•4 years ago

8 Replies

Blood thinners

Hi everyone, I have lupus and I’m going through the menopause. In March I found out I have a pulmonary embolism and a possible heart murmur. I have been on...

Hi everyone, I have lupus and I’m going through the menopause. In March I found ...

LilyMistri2

•4 years ago

19 Replies

Strawberry Sunday! For all lovers of cake and cream!

We had a family birthday this weekend, so I made strawberry ice cream with clotted cream, Victoria sponge layered with strawberry jam, topped with...yes you’ve...

We had a family birthday this weekend, so I made strawberry ice cream with clott...

Horsewhisper

•4 years ago

25 Replies

Coming off medication for RA and lupus

My medication is not improving my pain or symptoms. I use do use cbd vapes and muscle balms which does help a bit. I was thinking about stopping my medication...

My medication is not improving my pain or symptoms. I use do use cbd vapes and m...

Panda91

•4 years ago

4 Replies

Blood test (worried)

Good morning Lupus Uk Have had several blood tests done earlier this week . Requested by one of my consultants . Has anyone else any knowledge about...

Good morning Lupus Uk Have had several blood tests done earlier this week . ...

Willow1414

•4 years ago

25 Replies

Anyone first diagnosed with Polymyalgia Rheumaticia before a final Lupus diagnosis.

I've had pmr for 4 years and 3 doctors have suggested Hydroxychloroquine suggesting I may be leaning towards Lupus. My bloodwork shows Speckled. Has anyone had...

I've had pmr for 4 years and 3 doctors have suggested Hydroxychloroquine suggest...

Ronswife

•4 years ago

2 Replies

Hi, I have SLE and been prescribed tetracycline for bone infection. leaflet says don’t take if got SLE. Anyone know why? Thanks

SLE and tetracycline

Buttoneer

•4 years ago

23 Replies

Hydroxycholoquine induced rash or!!

Hoping that your collective knowledge/experience may answer my querry. I have only been under Rhuematology for the last 10 months. I am currently diagnosed...

Hoping that your collective knowledge/experience may answer my querry. I have o...

RosieA

•4 years ago

12 Replies

Help! Tinnitus and MCTD Drugs

I was diagnosed with MCTD Feb 20 after starting with Raynauds, joint point and fatigue. I tried Hydroxychloriquine but it gave me tinnitus after a few weeks,...

I was diagnosed with MCTD Feb 20 after starting with Raynauds, joint point and f...

katiehopeful81

•4 years ago

13 Replies

zentiva hydroxy

the only pharmacy in town that supplies zentiva hydroxy will not deliver medicines to me. others that will deliver say they are unable to get zentiva because...

the only pharmacy in town that supplies zentiva hydroxy will not deliver medicin...

suzannah16

•4 years ago

13 Replies

Brain scan finally booked

Brain scan finally booked for Tuesday next week ! Xx

Buckley123

•4 years ago

29 Replies

Achenbach Syndrome

Hey Everyone 🖐 Just wondering if anyone else gets this non-trauma finger bruising (pic attached) ... I have a history of aura migraine and Raynauds, so seems...

Hey Everyone 🖐 Just wondering if anyone else gets this non-trauma finger bruisi...

KMT16

•4 years ago

31 Replies

More Bullfinch photos

More Bullfinch photos so blessed 😍 M x

Maddymay65

•4 years ago

5 Replies

Bullfinches

Morning Weather is wet and windy, health is nothing to write home about but patience is a virtue, after weeks of not having my phone in the right place right...

Morning Weather is wet and windy, health is nothing to write home about but pati...

Maddymay65

•4 years ago

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New question regarding criteria

Does anyone know how old the lab criteria can be? I have taken a look at the American rheumatology diagnostic criteria and have seen that, for instance, WBC...

Does anyone know how old the lab criteria can be? I have taken a look at the Ame...

JennaShi

•4 years ago

14 Replies

Vitamin D

I’ve just had some routine blood results back and been told that whilst my levels are normal, they would recommend I purchase a over the counter vitamin D...

I’ve just had some routine blood results back and been told that whilst my level...

Dreams2rememeber

•4 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2020

Lupus rash

Bad flare up

l need advice

Methotrexate

Bone pain in calf with lupus flare ?

Upset myself

Breathing problems

Lupus & Coronavirus (COVID-19) - UPDATED 11/08/2020

Great day!

Moving house

Disappointing twist

Red versus Blackbird

It’s Mira Monday 🐶

Interesting article on Immunology.

Stress incontenance

Blood thinners

Strawberry Sunday! For all lovers of cake and cream!

Coming off medication for RA and lupus

Blood test (worried)

Anyone first diagnosed with Polymyalgia Rheumaticia before a final Lupus diagnosis.

Hi, I have SLE and been prescribed tetracycline for bone infection. leaflet says don’t take if got SLE. Anyone know why? Thanks

Hydroxycholoquine induced rash or!!

Help! Tinnitus and MCTD Drugs

zentiva hydroxy

Brain scan finally booked

Achenbach Syndrome

More Bullfinch photos

Bullfinches

New question regarding criteria

Vitamin D

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