Lupus symptoms

[Oldpain]

Hi

I'm new to this but I need advice. In 1964 has a child I spent upto 6 months in hospital has they were not sure of my illness. I grew up with lots of pain and swelling in my joints but has I got to my 20s although I had pain occasionally I thought nothing of it. I recently ask for my medical records from the hospital. It said lupus I never really thought much about this has I have diabetes type 1 I had in my 20s but of late I get pain in my back hands elbows and shoulders is possible for me to still have lupus. Any help please. Regards john

[whisperit]

hello john

- and welcome

Sounds like it would help to read the information leaflets LUK has posted here. Maybe the one on symptoms and diagnosis is a good place to start lupusuk.org.uk/publications/

Once you've got a handle on things, you might want to keep a diary of symptoms for a couple of weeks or so and head to your GP. Ask the questions that are most troubling = and dont give up until you're satisfied with the answers.

Most people spend years before they get a definitive diagnosis for the kind of variable and diverse symptoms that lupus and its relatives produce.

Do keep in touch here - lots of us have experienced difficult diagnostic journeys and might have tips and ideas to help. x

[LalSD]

Hello Oldpain,

to add to Whisperit's precise comments, you could have lupus and may never have a visible flare up for years or never flare up in your life (if you are fortunate enough) or have very mild attacks. Therefore if they diagnosed you when you were a child and somehow you got better, it is well possible that you may not have noticed something different particularly if you got used to living with pain or swollen joints.

I had my first flare up about the age of 16 with a mini stroke but they thought because I was dieting (teenager years). My second one at 26 and doctors thought because of contraception tablets and I was in an air plane. There comes the age 32, I had a massive lupus attack (triggered by cat scratch disease) and it has been with me everyday ever since. With very best, Lx

[Oldpain]

Hi everyone Just a quick update so ana test came back normal. But my crp came back abnormal I keep getting bad back pain and shoulders elbows are aching feeling really down not like me. Exhausted all other blood test ok.

Regards old pain .

[Ironmytherapy in reply to Oldpain]

Hello, a lot of individuals who have the onset of lupus with clear symptoms and visual aspects from it don’t actually have to have a positive ANA. There are individuals that have got a positive ANA but they have no symptoms whatsoever.