USA- Just diagnosed w/ Lupus @age 76 Appt.next week Boston Beth Israel-Deaconess hospital lupus clinic. But hear the best clinics are Sheba Med, Israel & Hopkins, Maryland, USA -both "too far" to drive
It "takes a lot to get a test for Lupus" here - have been asking for tests for possibilities for years, Drs. never made leap to Lupus 'til I off-handedly mentioned that more severe generalized pain & severe incapacity seemed linked to atmospheric pressure. I have had a lot of misery over time but it "always went away" and Subsequently was not taken seriously
Googling almost non-stop since diagn........there's a lot of info out there. Also, Have learned a lot of connective tissue issues on both sides of my parents....? Also husband's both sides - concerned about my children.....what/how should I say to them ?(after appt)
Does anyone find that benedryl antihistamine is useful w/ symptoms ? Does any form of yoga/physical therapy/acupuncture help ?
My handwriting has deteriorated a lot over time. Sometimes I "can almost feel" a thought, short-term memory, etc. evaporating. ......sometimes a thought will return - sometimes, not
I'd appreciate any thoughts, comments, advice from you.