very confused..

As you all know im going to see dr kaul at the london bridge lupus centre the end of this month.

Well i have requested a letter and old bloods from my nhs rhumy and recieved them on friday - The letter he has wrote for me to take i wont be giving the new hospital as his basically saying he doesnt want to go over a proffesers head to diganose me and saying its all in my head?! But i noticed on my recent bloods from june that my ana has gone back up to 1600, i have a positive immunology igm & igG.... but his saying theres no postive bloods?

I am having my bloods done again tuesday to take to the new hospital but I think my nhs rhumy is really just trying his hardest not to diagnose me?

[Hidden]

He means you don't have the more specific antibodies for Lupus, RA, MCTD or Sjögren's - i.e. the ENA panel. I have positive ANA with high IgG and IgA but I have Sjögren's as my main disease. Had a few doctors in the past try and say that I had "polyarthriris unspecified" or functional symptoms but I just put those letters into another file and then moved on.

Had a lip biopsy show 100% positive for Sjögren's and have been taken seriously by my doctors ever since. You are right to put your NHS rheumy' letter to one side. Hopefully this Dr K will be able to make sense of your bloods and symptoms so you can go back to your NHS rheumy and look them in the eye and wave their letter back at them!

[Wendy39]

Hello. Just wanted to say that Dr K is a great doctor. Don't worry about that letter. Just give him the blood test results that you have. Tell him your symptoms and history, he is experienced enough to work it out himself. I have probably told you before, he diagnosed me at my first hour appt, no problem and no hesitation. His follow up letter was clear, firm and had a detailed treatment plan. I did mention a couple of issues to him, that I had locally with my Dermy refusing to repeat a Vit D test after 4 years etc and he just raised his eye brows and said, "how helpful" etc. I am sure that knowing what a lot of us go through here with local doctors and delay in diagnosis and wrong diagnosis etc and how a lot have ended up at London Bridge out of sheer desperation to move things forward, that Dr K has heard it all before! A lot of rheumies wont like us going above them, to see fancy private experts in London. We're putting their professional noses out of joint. Don't panic. Dr K is a lovely kind man. Best wishes. Wendy

[jimbo1605]

Yes this sounds similar to my wife with 3 nhs consultants saying she should up her anti depressant and get a life.

Kaul is great and I know we made more progress with him in 15 minutes than we ever did with many hours with NHS consultants.

Good luck at LBH and I am sure you will come out far more upbeat.