I had my 2nd brain MRI this morning.
So glad it's over. MRIs are bad enough but with the head they put this "cage" for want of a better word over your head and pad it out to stop you moving. I wouldn't say I'm claustrophobic but it's horrible.
Again the history is long but the first brain MRI last September (2016) discovered bilateral white matter lesions. I can't remember the exact terminology.
I was told by my then NHS Rheumy that nothing needed following up re this issue.
But it bothered me as I get CNS issues with my lupus and worsening headaches etc. Headache since 12/13 and never been referred to a specialist about them.
So in April Dr K at London Bridge read the report and listened to my lupus symptoms, he told me that he wanted the MRI repeated within 6-12 months and a referral to a Neurologist.
My GP took some convincing to get the MRI. No one has referred me to a Neurologist. So I will have the scan report in a few weeks but GP doesn't think she is qualified enough to interpret the results.
I have an appointment with my new NHS Rheumy on 13th September. I will be raising it then.
Ultimately I intend to see Dr K for a follow up in November, so can discuss it with him too.
I have found a great article - it's the best I've read and understood re the significance of these white matter lesions / hyperintensities or whatever they call them.
Hope this helps someone with similar issues.