Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,554 posts

All posts for August 2017

What can it be?

Hi all , I have been experiencing swelling in my face for the past 6 months. It comes and goes. I haven't been bitten, it looks like I have a large abscess....

Hi all , I have been experiencing swelling in my face for the past 6 months. It ...

BrownChocolate

•7 years ago

6 Replies

Newcomer. SLE

Hello all. I am a 63 year old male and "out of the blue" have recently been diagnosed with SUB cutaneous lupus. My biopsy and blood tests confirmed I am R.O...

Hello all. I am a 63 year old male and "out of the blue" have recently been dia...

joedel

•7 years ago

4 Replies

I'm new here!

Hi, my name is Aisha, live in Abuja, Nigeria. Been diagnosed of lupus in 2011. Was doing well on steroid only till 2015 when my system could not cope any more....

Hi, my name is Aisha, live in Abuja, Nigeria. Been diagnosed of lupus in 2011. W...

Ndanusa

•7 years ago

2 Replies

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Stage 3 kidney disease

Anyone have SLE and kidney disease? I knew my kidneys weren't great, but I was hoping dialysis and kidney transplant were not going to be something I...

Anyone have SLE and kidney disease? I knew my kidneys weren't great, but I was ...

Natura

•7 years ago

44 Replies

Fear of test results

I finally went back to the rheum doc after 3 1/2 years ( never got the labwork she ordered back then) and i told her how scared i am to get the labwork done...

I finally went back to the rheum doc after 3 1/2 years ( never got the labwork s...

Lannsutt

•7 years ago

4 Replies

Newly diagnosed

Hi, my name is Gabriella and i am 38 years old. Today my consultant has called me regarding my blood test. She told me that everything was negative apart from...

Hi, my name is Gabriella and i am 38 years old. Today my consultant has called ...

Tulipano

•7 years ago

5 Replies

Coagucheck machine for sale

I don't know if anyone is interested but if u have to go up to hospital to get ur ana blood done for ur on warfarin and would prefer to phone ur own count in I...

I don't know if anyone is interested but if u have to go up to hospital to get u...

jacclaire

•7 years ago

2 Replies

25th Driving lesson

Best lesson by far . I have gained more confidence in my own ability . Today I just drove didn't do any manoeuvres . He said he didn't want to do any because...

Best lesson by far . I have gained more confidence in my own ability . Today I ...

LouLamb

•7 years ago

9 Replies

Is Parkinson's an autoimmune disease?

My mother has Parkinson's she also took antihistamine for several decades prescribed by her GP for sneezing and allergic reactions etc. It took ages for her to...

My mother has Parkinson's she also took antihistamine for several decades prescr...

Pepysmum

•7 years ago

7 Replies

A Quick Question About Immunosuppressants and Exposure to Chickenpox.

Hi All. So...as per my just now previous post...I started treatment with immunosuppressants this morning (Azothioprine) and understand that exposure to chicken...

Hi All. So...as per my just now previous post...I started treatment with immunos...

Foggyme

•7 years ago

22 Replies

Update on Hostile Rheumatology Appointment: I Finally Have Treatment 😀😀. And Update on Punctal Plugs.

Hi All. In Janurary I posted my first post here - quite upset - and not a little angry - because I'd just had a consultation with a really hostile...

Hi All. In Janurary I posted my first post here - quite upset - and not a little...

Foggyme

•7 years ago

2 Replies

Raised CPK and electromyography (EMG)

Well, I was having a really good day until my rheumy rang this afternoon to tell me he is unhappy with my elevated CPK levels and that he wants me in next week...

Well, I was having a really good day until my rheumy rang this afternoon to tell...

whisperit

•7 years ago

5 Replies

Positive ANA

Hi, so my story..... A few years a ago I started having symptoms which started with.... White spots on my tongue with mild pain, severe hair loss, rash along...

Hi, so my story..... A few years a ago I started having symptoms which started w...

Srculley

•7 years ago

2 Replies

Gastroenterologist Appointment

24-8-17 Hello all, My appointment went really well yesterday ! What a lovely man! First of all the specialist was frigging lovely, for me to find a...

24-8-17 Hello all, My appointment went really well yesterday ! What a lovely...

LauraMk30

•7 years ago

16 Replies

Blood tests and pred

I've searched in here but can't find answer, though I'm sure it's here somewhere... I was on short course 30mg pred for 2 weeks. Took last one nearly 2 weeks...

I've searched in here but can't find answer, though I'm sure it's here somewhere...

soootired

•7 years ago

2 Replies

Discoid lupus in ears?

For a year now I've had some crusting in right ear canal and then left ear. ENT, Rhuematologist and primary care dr's said they didn't see anything. Now my...

For a year now I've had some crusting in right ear canal and then left ear. ENT...

magcass

•7 years ago

14 Replies

Any one else feel crappy & wiped out after a filing at the dentist?

I've had a filing today. Droopy mouth and numbness - including my ear - are recovering now. The injection for anaesthetic seemed to take 5 mins or more....

I've had a filing today. Droopy mouth and numbness - including my ear - are reco...

Wendy39

•7 years ago

38 Replies

ANA Positive

Hi all, can someone please tell me if having a positive ANA result after many negatives over the last three years, and if anyone else has had anti-dsDNA...

Hi all, can someone please tell me if having a positive ANA result after many ne...

Clm1978

•7 years ago

4 Replies

Lupus anticoagulant antibody

So, here I am again with yet another little thing coming my way since my diagnosis UCTD . I always feel lucky as really my life has been majorly normal since...

So, here I am again with yet another little thing coming my way since my diagnos...

Thereisalight

•7 years ago

19 Replies

Confused...

Hi, this is my first post so please bear with me! I have had various blood tests done as in February this year I started with severe roaming joint pain, I have...

Hi, this is my first post so please bear with me! I have had various blood tests...

pollydolly45

•7 years ago

3 Replies

Reaction ? to insect bites.

I've been trying to work out how to word this for a while and since we've been discussing allergies on another post I decided to attempt it! This past couple...

I've been trying to work out how to word this for a while and since we've been d...

soootired

•7 years ago

22 Replies

Lifestyle changes - managing Lupus really well and feeling great!

This was originally a reply to a post about the effect of diet, but I wanted to send it to all, because I find good news stories can be really helpful and...

This was originally a reply to a post about the effect of diet, but I wanted to ...

yakamalayo

•7 years ago

8 Replies

Salagen/Pilocarpine

Hi Everyone I am not sure if there has been a post on here recently regarding Salagen. I did one last year when I was having trouble locating it . Well today I...

Hi Everyone I am not sure if there has been a post on here recently regarding Sa...

Mrsdoozer

•7 years ago

6 Replies

Bad Week!

I will apologise now for the whinging but I need to "speak" to people who understand my frustration and pain . I wonder if anyone else have had the symptoms I...

I will apologise now for the whinging but I need to "speak" to people who unders...

Bakbre

•7 years ago

2 Replies

What medication works for you?

I've already exasperated one rheumatologist by reacting negatively to the meds she's prescribing! At my last session she just about gave up and asked me what I...

I've already exasperated one rheumatologist by reacting negatively to the meds s...

Nickswich

•7 years ago

32 Replies

Kidney Infection

Evening everyone, hope today has been somewhat kind & gentle on all of you. 🤞🏻💛 I've been trying to write this post all day! Battling through the pain.....

Evening everyone, hope today has been somewhat kind & gentle on all of you. 🤞🏻...

LauraMk30

•7 years ago

24 Replies

Private ANA test for kids?

My 4yr old is being tested for lupus. His symptoms are:- pinkish coloured urine which has shown up not to be blood. It's now gone, but sample has been sent...

My 4yr old is being tested for lupus. His symptoms are:- pinkish coloured urine...

Helena877

•7 years ago

7 Replies

Medication

Hi there, I am thinking of trying LDN , I have Lupus, Fibromialgia and Emocromotosis. I am on steroids immune suppressors antidepressants and I don't know...

Hi there, I am thinking of trying LDN , I have Lupus, Fibromialgia and Emocromo...

Sfigata

•7 years ago

8 Replies

Gluten and Dairy Free

So... I didn't dive totally into the Whole30, but I did cut gluten and dairy from my diet. It was a little easier to wrap my head around. Only a couple of...

So... I didn't dive totally into the Whole30, but I did cut gluten and dairy fro...

Shaysuekirk

•7 years ago

4 Replies

Reactions to ??????? Anyone else ?

More and more I am having reactions to various things from metals to food, perfumes etc. I understand why, but Monday I had eaten things all dayI had eaten...

More and more I am having reactions to various things from metals to food, perfu...

Hidden

•7 years ago

16 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2017

What can it be?

Newcomer. SLE

I'm new here!

Stage 3 kidney disease

Fear of test results

Newly diagnosed

Coagucheck machine for sale

25th Driving lesson

Is Parkinson's an autoimmune disease?

A Quick Question About Immunosuppressants and Exposure to Chickenpox.

Update on Hostile Rheumatology Appointment: I Finally Have Treatment 😀😀. And Update on Punctal Plugs.

Raised CPK and electromyography (EMG)

Positive ANA

Gastroenterologist Appointment

Blood tests and pred

Discoid lupus in ears?

Any one else feel crappy & wiped out after a filing at the dentist?

ANA Positive

Lupus anticoagulant antibody

Confused...

Reaction ? to insect bites.

Lifestyle changes - managing Lupus really well and feeling great!

Salagen/Pilocarpine

Bad Week!

What medication works for you?

Kidney Infection

Private ANA test for kids?

Medication

Gluten and Dairy Free

Reactions to ??????? Anyone else ?

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