I will apologise now for the whinging but I need to "speak" to people who understand my frustration and pain .
I wonder if anyone else have had the symptoms I am getting at the moment and what they could be. I have UCTD and RA and I take Prednisolone, Lefludomide, Hydroxychloroquine, Gabapentin, Omeprazole & Alendronic acid - but believe it or not nothing is working at the moment!
I feel as though someone is putting electronic prods into my nerve endings in my legs & arms and I am so hot I feel as though I am going to burst. I also keep getting a rash on my face when I get hot and I feel dizzy when I stand up quickly. I have had the rash before but never this bad and I haven't had the "electric prods" and bursting feeling ever before.
I actually saw a new consultant last Friday and my symptoms weren't so bad then but they have got much worse. I have been under this hospital for 2 years and in that time I have seen 4 different consultants, all locums and now I have been assigned to a new permanent one, a lady from Hungary. I can't say that I was that impressed as she didn't seem to listen to me when I tried to explain some of my symptoms and when I said that I didn't think that the Lefludomide was working as I had been taking it for 7 months but I still needed to take steroids which I had been told were only to help me until the Lefludomide 'kicked in' and then I should come off them. She did say she thought I should have an 'infusion' instead of tablets and I would only have to have it once a year but she didn't explain what an infusion was. To be fair she has ordered some new tests but they won't be for another 4/5 weeks and I won't be seeing her again for 4 months for the results and some treatment and I don't think I can cope until then.
I would appreciate any suggestions