Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,554 posts

All posts for November 2015

South West - rheumatologist

I am not really happy with the consultant I see at the moment. I live in the south west and wondered if anyone has had goo experiences with anyone in the area...

I am not really happy with the consultant I see at the moment. I live in the sou...

C101

•9 years ago

14 Replies

Scabs on head

I have just read another post on here about scabs on the scalp and I'm wondering are these scabs a symptom of lupus? My daughter has another auotimmune...

I have just read another post on here about scabs on the scalp and I'm wondering...

grasshopper2000

•9 years ago

5 Replies

Abdominal aortic aneurysm (AAA), anyone?

Hello all Am seeing my GP this week about symptoms that set in some time ago & increased over the past few weeks...these seem to indicate I need screening for...

Hello all Am seeing my GP this week about symptoms that set in some time ago & ...

EOLHPC

•9 years ago

13 Replies

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Getting people to understand my pain

Hi guys Im new to this online community but need some help. I got diagnosed with Lupus a year ago and found i could cope pretty well as it wasnt ipacting me so...

Hi guys Im new to this online community but need some help. I got diagnosed with...

bbknow

•9 years ago

8 Replies

Cold Weather and pain

I don't know about anyone else but I am in excruciating pain. In bed and when I get off I can't move. Not even diagnosed yet. Only fibromyalgia apparently but...

I don't know about anyone else but I am in excruciating pain. In bed and when I ...

Rosebud13

•9 years ago

11 Replies

Don't know what to think

I am 24. I was diagnosed 5-6 years ago with lupus and sjogrens syndrome. I was unhappy with the care I was receiving locally so asked for a referral to Leeds....

I am 24. I was diagnosed 5-6 years ago with lupus and sjogrens syndrome. I was u...

Jessie_2014

•9 years ago

7 Replies

I'm a homemaker and a MOTHER OF FIVE

My name is Cherity and i have been living with LUPUS Since 1985 and it has been a roller coast for real..But i'm mantaining .I have have so mu to live for.

My name is Cherity and i have been living with LUPUS Since 1985 and it has been ...

mscherity

•9 years ago

2 Replies

Lupus & Nail Loss

I've noticed that I haven't been able to keep nails in three years. I have moved from the Midwest to Texas and was believing that it was the climate change...

I've noticed that I haven't been able to keep nails in three years. I have move...

Hidden

•9 years ago

16 Replies

only four days left to give feedback on the NHS

This was kept a tad quiet, and only four days left to send feedback....

MaryF

•9 years ago

2 Replies

News & Views Winter 2015 Edition - OUT NOW

The new edition of our News & Views magazine is being sent out to all LUPUS UK members this week, so if you're a member, it will be dropping through your...

The new edition of our News & Views magazine is being sent out to all LUPUS UK m...

Paul_Howard

Partner•9 years ago

4 Replies

Scabby head

Has anyone had a scabby head had it for 6 yrs going insane tried different shampoos from Dr and been to my dermatologist she gave me some more shampoo and...

Has anyone had a scabby head had it for 6 yrs going insane tried different shamp...

bezza247

•9 years ago

9 Replies

I need to be tested for food intolerances.. Which is the best test by post?

Hi I have a consistently low ferritin level, along with gut issues. I am now wanting to investigate what the issues are as there is a lot of information as to...

Hi I have a consistently low ferritin level, along with gut issues. I am now wan...

Chablis

•9 years ago

3 Replies

Lupus mouth sore?

What is this??? It's on the roof of my mouth, no pain but I started to feel like ****, hands hurting like a finger is growing out of my hand , fog is back ,...

What is this??? It's on the roof of my mouth, no pain but I started to feel like...

winterbaby07

•9 years ago

7 Replies

Getting diagnosed

Hi. Can anyone advise me on the best place to get diagnosed for lupus? I have been suffering from endless symptoms and the more I read about Lupus the more I...

Hi. Can anyone advise me on the best place to get diagnosed for lupus? I have be...

Vicky88

•9 years ago

20 Replies

Adrenal insufficiency

I have recently been diagnosed with adrenal insufficiency, I have a 100mg emergency hydrocortisone injection on me and a blue steroid card as I have to take...

I have recently been diagnosed with adrenal insufficiency, I have a 100mg emerge...

wheezybronch

•9 years ago

13 Replies

Kidney pain and blood in urine.

Hi everyone, I hope everyone is as well as they can be. So I've developed a new problem :-( and I really need some advice or to know if any of you have...

Hi everyone, I hope everyone is as well as they can be. So I've developed a new ...

Kelfreem

•9 years ago

5 Replies

Headaches!

Hi starting 2 get a lot of headaches had lupus now 4 bout year and 7months, never suffered with headaches like this b4 is this normal? Been in bed last 2 days...

Hi starting 2 get a lot of headaches had lupus now 4 bout year and 7months, neve...

Ruth_lderry

•9 years ago

5 Replies

Pregabalin side effects

Does anyone else on Pregabalin have a problem with drowsiness and feeling "foggy?" I have been on this for two years, 150mg at night and have reduced from...

Does anyone else on Pregabalin have a problem with drowsiness and feeling "foggy...

fishers63

•9 years ago

Be the first to reply

Got a question.

hey i was wondering if anyone knows what the different types of lupus are and if lupus anticoagulant is one?

hey i was wondering if anyone knows what the different types of lupus are and if...

Hidden

•9 years ago

10 Replies

Dsdna

My docs just said blood are in he doesnt really understand them all negative except dsdna is minus 20, can anyone explain what all that means please

My docs just said blood are in he doesnt really understand them all negative exc...

glenmore

•9 years ago

8 Replies

Do I need to see a GP

Good morning all My question may seem trivial but, when on DMARDS and chronically leucopenic (WBC 2.7), how do I know whether to monitor an infection or get...

Good morning all My question may seem trivial but, when on DMARDS and chronical...

Fennella02

•9 years ago

12 Replies

No diagnosis wanted, can't do this, going insane!

I don't know how people can go on like this for years! I have been dealing with my worst part of this dreaded disease for about two months and feel like I am...

I don't know how people can go on like this for years! I have been dealing with ...

ac489

•9 years ago

38 Replies

Back ache

Hi there, I'm new to all this as never been on a forum before in my life! I have lupus and despite being on methotrexate and various painkillers, I still have...

Hi there, I'm new to all this as never been on a forum before in my life! I hav...

Dwilsher

•9 years ago

9 Replies

Knackered legs

Hi Lupies, I was wondering if anyone else has legs that don't seem right. I've been reading up on Myositis and think it could answer my questions on why my...

Hi Lupies, I was wondering if anyone else has legs that don't seem right. I've b...

Alison-Brown

•9 years ago

24 Replies

Hello.

Feeling brave and decided to take the plunge and post. I've been reading and following boards and feel a bit of a fraud. I don't have a formal diagnosis but...

Feeling brave and decided to take the plunge and post. I've been reading and f...

Ladybelle2015

•9 years ago

9 Replies

Low white blood count and neurophil

Hi just wondering if anyone can help me. My 8 year old daughter has ITP another autoimmune disorder meaning she has virtually no platelets. It looks like she...

Hi just wondering if anyone can help me. My 8 year old daughter has ITP another ...

grasshopper2000

•9 years ago

13 Replies

Pain in both ribs

First it was bad pain in My chest That seemed to move around now 2/3 weeks later it's pain in my ribs(both) and it shoots to under My shoulder blade sometimes,...

First it was bad pain in My chest That seemed to move around now 2/3 weeks later...

Chase96

•9 years ago

1 Reply

Neck pain

I just started experiencing neck pain. I was at a family gathering and due to the change in temperature, warm in the afternoon and cool at night we changed...

I just started experiencing neck pain. I was at a family gathering and due to th...

randa_lupie

•9 years ago

3 Replies

Sorry for such a trivial question all

I can't figure out how to change my profile picture? Not very tech savvy

jeanie94

•9 years ago

13 Replies

Middle lobe collapse

Just been to the GP. Been put on prednisolone for my flare so hopefully that will help. She also told me my chest xray results suggest I have a middle lobe...

Just been to the GP. Been put on prednisolone for my flare so hopefully that wil...

SLC03

•9 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2015

South West - rheumatologist

Scabs on head

Abdominal aortic aneurysm (AAA), anyone?

Getting people to understand my pain

Cold Weather and pain

Don't know what to think

I'm a homemaker and a MOTHER OF FIVE

Lupus & Nail Loss

only four days left to give feedback on the NHS

News & Views Winter 2015 Edition - OUT NOW

Scabby head

I need to be tested for food intolerances.. Which is the best test by post?

Lupus mouth sore?

Getting diagnosed

Adrenal insufficiency

Kidney pain and blood in urine.

Headaches!

Pregabalin side effects

Got a question.

Dsdna

Do I need to see a GP

No diagnosis wanted, can't do this, going insane!

Back ache

Knackered legs

Hello.

Low white blood count and neurophil

Pain in both ribs

Neck pain

Sorry for such a trivial question all

Middle lobe collapse

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