Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for October 2015

Lupus and depression

Hi all I'm sinking and need some advice from your huge experience! I have recently been diagnosed with SLE (after about 8 years of fannying about) and I've...

Hi all I'm sinking and need some advice from your huge experience! I have recen...

vynee

•9 years ago

10 Replies

sulfasalazine

Hi My rheumatologist wants to change my medication from hydrochloroquine to sulfasalazine. Is anyone on sulfasalazine and how have you found it?

Hi My rheumatologist wants to change my medication from hydrochloroquine to sul...

Pickle33

•9 years ago

11 Replies

change in diagnosis and a bit confused

After having a sudden onset ? Pericarditis in January, which resloved after about 8 weeks on Naproxen, I developed sudden onset symmetrical Inflammatory...

After having a sudden onset ? Pericarditis in January, which resloved after abou...

mirren

•9 years ago

7 Replies

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I wonder after what I read on ...

I wonder after what I read on your website ... if I can be optimistic! Eventually those who have this disease ... facing all these serious problems or are...

I wonder after what I read on your website ... if I can be optimistic! Eventuall...

Freirene

•9 years ago

2 Replies

Protein in urine

My daughter has had her check up at the hospital today and yet again has protein present. They want her to do another test this week but with a tampon in to...

My daughter has had her check up at the hospital today and yet again has protein...

laheaford

•9 years ago

2 Replies

LUPUS UK have launched their new image and website

Hi everybody, You may notice that LUPUS UK has a fresh new image with a new logo and a brand new (and improved) website. Please go and have a look for...

Hi everybody, You may notice that LUPUS UK has a fresh new image with a new log...

Paul_Howard

Partner•9 years ago

6 Replies

Feeling sick, tired and loss of appetite

Ive been feeling sick for about a week now an dim not eating properly. Not really eating breakfast or lunch and with tea i hardly eat anything. I have also...

Ive been feeling sick for about a week now an dim not eating properly. Not reall...

JessieLouu

•9 years ago

5 Replies

Lupus

how do I know if I'am suffering from lupus after 17 years of never knowing about it? Also, if I'am suffering from lupus how does that affect a common cold in...

how do I know if I'am suffering from lupus after 17 years of never knowing about...

help_me-plz

•9 years ago

2 Replies

Methotrexate

Hi I just wondered if any one else notice there tablets can be different in size but still the same grams .tonight I took my methotrexate but opened another...

Hi I just wondered if any one else notice there tablets can be different in size...

charmaineholmes

•9 years ago

9 Replies

numb sole of right foot.

hi all, for over 5 months now, I have noticed one side of my right foot feels numb to the touch, which was quite worrying because i am also diabetic, but then...

hi all, for over 5 months now, I have noticed one side of my right foot feels nu...

addai

•9 years ago

3 Replies

Light Sensitivity

Hi Everyone. Hoping you're all having a good weekend? Recently, the last month or so I've developed very sensitive eyes, in particular my intolerance of...

Hi Everyone. Hoping you're all having a good weekend? Recently, the last month o...

AutumnSun

•9 years ago

5 Replies

Do any of your meds give you the ☺️ HAPPIES?

Hello all. I've been enjoying the big benefits of a prednisolone taper (relatively low dose: 4 weeks, dropping from 10mg during the first week). As usual,...

Hello all. I've been enjoying the big benefits of a prednisolone taper (relat...

EOLHPC

•9 years ago

29 Replies

Sitting long periods of time

Does anyone have trouble sitting in one spot long periods of times? For example I concepts, work, traveling etc. I've had trouble with my body getting stiff...

Does anyone have trouble sitting in one spot long periods of times? For example ...

randa_lupie

•9 years ago

16 Replies

Anybody else in a flare?

I think I need a rotisserie bed with my head in the fridge and feet in the fire. Think its a Lupus/RA flare but any body else have the horrendous temperature...

I think I need a rotisserie bed with my head in the fridge and feet in the fire....

littleeffie

•9 years ago

25 Replies

Is hydroxychloroquine and immunosuppresant?

I'm still not completely clear so thought I'd ask the oracle forum... Is Hydroxychloroquine an immunosuppresant? I understand that if it isn't effective then...

I'm still not completely clear so thought I'd ask the oracle forum... Is Hydroxy...

yakamalayo

•9 years ago

5 Replies

It is lupus

I have been diagnosed with fibromyalgia in 2004 and about a year ago I started to develop other symptoms that are far more intense than the symptoms associated...

I have been diagnosed with fibromyalgia in 2004 and about a year ago I started t...

Catherines03

•9 years ago

15 Replies

Blood test sodium levels high - methotrexate and steroids?

I've had a call from the hospital to say my sodium levels in my blood are above normal. Is this a known side effect of methotrexate or steroids (which I've...

I've had a call from the hospital to say my sodium levels in my blood are above ...

vynee

•9 years ago

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Flu jab

Hi I am having my flu jab as this has been recommended by my rheumatologist as I am on hydrochloroquine. Has anyone had any bad reactions? Joint flare ups,...

Hi I am having my flu jab as this has been recommended by my rheumatologist as I...

Pickle33

•9 years ago

17 Replies

Leukopenia & flu jab

I have recently developed intermittent leukopenia (I've had consistent lymphonenia for years). I've been quite unwell over the past few months - anaemia due...

I have recently developed intermittent leukopenia (I've had consistent lymphonen...

MrsMouseSJ

•9 years ago

10 Replies

How to cope with accidents when immune suppressed by steroids?

Hi Folks, Sorry this will be a mini essay!!! I cut my finger badly last week, stabbed while taking the plastic film off a cucumber. Anyway just after it I was...

Hi Folks, Sorry this will be a mini essay!!! I cut my finger badly last week, st...

cuttysark

•9 years ago

7 Replies

Thank you for being here!!

Hi, two days ago my doctor told me I tested positive for Lupus and Sjogrens Disease.... I'm still trying to absorb that fact. I've been feeling this way for...

Hi, two days ago my doctor told me I tested positive for Lupus and Sjogrens Dise...

Vondelere

•9 years ago

4 Replies

Lupus? Or any other suggestions welcome

For years now I have had bouts of unexplained exhaustion. Im tired all the time accompanied but random low grade fevers, night sweats and usually some kind of...

For years now I have had bouts of unexplained exhaustion. Im tired all the time ...

Rustyjulez1983

•9 years ago

2 Replies

Possible lupus ? Advice please.

Hi everyone. I guess I'm here for a bit of advice really. My doctor has told me they suspect I have Lupus. I have been having symptoms for quite a few years -...

Hi everyone. I guess I'm here for a bit of advice really. My doctor has told me...

stacieann1989

•9 years ago

7 Replies

Azathioprine blood tests

I'm on hydroxychloroquine and azathioprine, and have to have monthly blood tests for the Aza. Trouble is, I've got rubbish veins and the nurse can usually only...

I'm on hydroxychloroquine and azathioprine, and have to have monthly blood tests...

Dawn1977

•9 years ago

5 Replies

My daughter with lupas

Hi my daughter was diagnosed with lupas last year can anyone help she has these symptoms that the specialist is baffled with after going to toilet as she walks...

Hi my daughter was diagnosed with lupas last year can anyone help she has these ...

selinamcnair

•9 years ago

31 Replies

Any advice?!?

Hi I am 20 years old and have many odd and persistent symptoms. I have been having night sweats, hot flashes, nausea, loss of appetite, weight loss,...

Hi I am 20 years old and have many odd and persistent symptoms. I have been havi...

bonnie88

•9 years ago

12 Replies

Steroid protocol

Hi, I have been on steroids since 2009 and am currently taking 20mg to which is where I have reduced it to. When started no steroids I was given no advice or...

Hi, I have been on steroids since 2009 and am currently taking 20mg to which is ...

LesJames

•9 years ago

2 Replies

The seventeen my girl last yea...

The seventeen my girl last year in September, suffered a median uveitis and therefore we did a series of tests. All were normal, except for the ANA was 1/160....

The seventeen my girl last year in September, suffered a median uveitis and ther...

Freirene

•9 years ago

6 Replies

SLE/Fibromyalgia I HATE YOU!

Hi There I'm new to this community and hope to gain help, guidance, support and most of all new friends who share these conditions. I'm still learning to live...

Hi There I'm new to this community and hope to gain help, guidance, support and ...

AutumnSun

•9 years ago

10 Replies

Changing medication

Hi I was diagnosed with mild MCTD and lupus in august 24th 2014. I was on hydroxychloroquine but I was get fare up afree flare up. So I whe to see My...

Hi I was diagnosed with mild MCTD and lupus in august 24th 2014. I was on hydro...

Sugaandsweetz

•9 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2015

Lupus and depression

sulfasalazine

change in diagnosis and a bit confused

I wonder after what I read on ...

Protein in urine

LUPUS UK have launched their new image and website

Feeling sick, tired and loss of appetite

Lupus

Methotrexate

numb sole of right foot.

Light Sensitivity

Do any of your meds give you the ☺️ HAPPIES?

Sitting long periods of time

Anybody else in a flare?

Is hydroxychloroquine and immunosuppresant?

It is lupus

Blood test sodium levels high - methotrexate and steroids?

Flu jab

Leukopenia & flu jab

How to cope with accidents when immune suppressed by steroids?

Thank you for being here!!

Lupus? Or any other suggestions welcome

Possible lupus ? Advice please.

Azathioprine blood tests

My daughter with lupas

Any advice?!?

Steroid protocol

The seventeen my girl last yea...

SLE/Fibromyalgia I HATE YOU!

Changing medication

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