sulfasalazine

[Pickle33]

Hi

My rheumatologist wants to change my medication from hydrochloroquine to sulfasalazine. Is anyone on sulfasalazine and how have you found it?

[windless22]

Hi ,I'm not a Dr from what my rheumatologist told me more than one of them in London. Any chance have lupus.

Sulphazine not recommended as likely sle patients react to ingredients in it.

So I'd question.it.

If allergic to hydroxycloriquine sulphate there's drug alternative not much used....if it's for photosensitive reactions.

[Pickle33 in reply to windless22]

Hi windless22, hydrochloroquine worked fine for a couple of months, but then they changed the brand to quinoric and had severe side effects so changed the brand back to plaquinel. Since the bad reaction I am having flare ups all the time and now more side effects have turned up, hair loss, skin sensitivity, dizzy spells caused by sugar levels dropping quickly (rare but can be caused by hydrochloroquine) He thinks I have psoriatic arthritis as the skin around my nails blister and flake when I have flare ups. He mentioned Sulfa so just wanted to see how people find it. He also mentioned methitrixate (sorry about the spelling). Want to do my research before I see him again. Thank you for your reply I will make a note on the light sensitivity 😊

[Doppelmom in reply to Pickle33]

My rheumatologist put my on methotrexate & folic acid, along with my hydroxychloroquine, but the percentage of inflammation in my body was higher. So he took me off the methotrexate & folic acid.

Best of luck to you, but I would do as much research as I could on the meds & their side effects.

[littleeffie in reply to Pickle33]

Funny,well no not funny really,but I had to have the quinoric or nothing for a month while chemist couldn't get plaquinil before getting zentiva and after the swap then swap back I have had really dizzy spells like blood sugar drop and wondered if it was coincidence or not so thanks for saying.I also started losing appetite but waking at night really hungry.

[Doppelmom in reply to littleeffie]

I do that too. I'm not hungry when everyone else eats. But I am famished when I wake in the middle of the night.

[windless22 in reply to Pickle33]

Hi pickle

Just seen.your reply I had same issue with quinoric you can ask gp change prescription to insist chemist gives you expensive option of teva brand hydroxycloriquine (plaqenil). It's known.not to affect us lupies.the way quinoric does.

[windless22 in reply to Pickle33]

Also sulphazine is not recommended for lupus patients it's a drug both rheumatologist I've seen say adds to lupus sytpoms and should be used only with rheumatoid arthritis.

I to have skin round nail issues dermatologist found to be vitamin d defiency.so on adcal daily.

The drop in blood sugar is temporary.

I had that for first month headache but all gone.

Drink.plenty water eat filling foods if can.

No big gaps between meals also big help.

Methotrexate is good stopped my flares, as did azathioprine.

[Hidden]

I am on sulfasalazine for psoriatic arthritis I find no problem with it.

[Hidden]

I had a severe sunlight reaction to Sulfasalazine after 3 weeks when I was prescribed it for RA.

[Happykins]

Pickle, sorry this is not answering your question about sulfasalazine, I had a severe reaction to Quinoric - the only brand of hydroxychloroquine I've tried, so I've been put on mepacrine, love it so far x

[ramsden]

hello I started taking sulfasalazine about a year ago for my arthritis also I was told by my specialist that I also had lupus, but only took them as required and then from 3 every day down to 2 but made me feel ill in general so I told my doctor I am not taking them anymore, I have since found that taking other medication if you have other problems as I maybe right if so you could be producing more uric acid in your system causing you pain , how ever you will have to discuss this with your doctor, hope I have been of help.