Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,737 members • 28,097 posts

All posts for March 2014

What is a Lupus/rheumatology nurse?

People in this forum keep referring to a lupus or rheumatology nurse, but I have never encountered or been told about either and have no idea what they are or...

People in this forum keep referring to a lupus or rheumatology nurse, but I have...

Hidden

•10 years ago

12 Replies

Sister with SLE????

I have thought for a few years that my sister has SLE, the same as me, she has very similar symptoms and has had for a while but because her bloods are ok they...

I have thought for a few years that my sister has SLE, the same as me, she has v...

Kellyleg

•10 years ago

9 Replies

Catching Everything!!!!

Does everybody else seem to catch every cold going? This is ridiculous and they make me feel so rubbish! My 4th cold this year.... :-(

Does everybody else seem to catch every cold going? This is ridiculous and they ...

Kellyleg

•10 years ago

6 Replies

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unexplained rash

I am recently diagnosed and have been put on hydroxychloroquine, I was on one tablet for 2 weeks and increased to 2 tablets daily last week. I have a rash come...

I am recently diagnosed and have been put on hydroxychloroquine, I was on one ta...

ulsterchick61

•10 years ago

9 Replies

Any advice on methotrexate?

Can anyone advise me on the drug? ive been to my rheumy today and he has prescribed it along with folic acid

Can anyone advise me on the drug? ive been to my rheumy today and he has prescri...

Newloop

•10 years ago

7 Replies

Anybody know why on the survey is partime work not an answer ? Cutting back hours due too illness is sometimes a necessity?

mummajo

•10 years ago

5 Replies

Travel Insurance

we are off on holiday in August to Turkey can anyone recommend or advise what I should do regarding insurance? Lupus, Hughes, avascular necrosis. Currently on...

we are off on holiday in August to Turkey can anyone recommend or advise what I ...

loublou

•10 years ago

6 Replies

Emotional intelligence? Anyone worked with emotional patterning that MAY be 'associated' with lupus?

A spark of light/nudge to my ego/ hint of truth gave me opportunity and challenge to honestly acknowledge patterns that were no longer helpful but adding to...

A spark of light/nudge to my ego/ hint of truth gave me opportunity and challeng...

oaktree

•10 years ago

12 Replies

Clexane injections, does it get any easier?? How is it monitored?

Previous heparin injections (admittedly over a much shorter time span) did not have an after sting/burning sensation. Is this me? does it improve? After being...

Previous heparin injections (admittedly over a much shorter time span) did not h...

BlueJT

•10 years ago

12 Replies

I live in Lowestoft Suffolk and wonder if anyone knows of a good GP that is experienced and proactive re: Lupus & Sjogrens?

I'm not happy with my present GP. I feel he doesn't really understand and is not taking me seriously

I'm not happy with my present GP. I feel he doesn't really understand and is not...

ambereyes

•10 years ago

1 Reply

Lumps

Hi everyone Just wondered if anyone has had any problems with lumps under your skin close to your ribs. I have these weird lumps at the moment and I am a bit...

Hi everyone Just wondered if anyone has had any problems with lumps under your ...

GillsM

•10 years ago

4 Replies

Lumps

Hi everyone Just wondered if anyone has had any problems with lumps and your skin close to your ribs. I have these weird lumps at the moment and I am a bit...

Hi everyone Just wondered if anyone has had any problems with lumps and your sk...

GillsM

•10 years ago

8 Replies

Does anyone take natural supplements for joint pain?

I am having a hard time with my hip joints. I exercise daily if I have the energy. I take a multi vitamin and enzymes for digestion. Seems my joint paint has...

I am having a hard time with my hip joints. I exercise daily if I have the energ...

Natura

•10 years ago

23 Replies

I'm at a loss and the frequent urination is becoming a big thing now

So yesterday I drank some water When I went to the gym and then later I had a soft drink the diluted ones with no added sugar I must of went about 10 times...

So yesterday I drank some water When I went to the gym and then later I had a so...

Danielle2419

•10 years ago

7 Replies

abdominal aorta

Has any one with lupus had problems with their abdominal aorta? I had an ultra sound yesterday and I have to have an op. All thanks to my rheumy at my last...

Has any one with lupus had problems with their abdominal aorta? I had an ultra s...

lowicklady55

•10 years ago

2 Replies

what happens at a Rheumatologist?

today my doctor referred me to a rhuematology "Referred to Rheumatology for evaluation of defuse joint pain, rash, and elevated ANA." is what its on my...

today my doctor referred me to a rhuematology "Referred to Rheumatology for ...

kkgirl

•10 years ago

4 Replies

I'm not depressed I just feel like s##t most days

I've been getting it in the neck from family, friends and colleagues for ages and I'm now at the point where I want to tell everyone to just leave me alone....

I've been getting it in the neck from family, friends and colleagues for ages an...

wotshernameagain

•10 years ago

8 Replies

Nerve pain

Upper arms in pain when ever use my shoulders doc gave me gagpentin I also take morphine but don't help

Upper arms in pain when ever use my shoulders doc gave me gagpentin I also take ...

debby197

•10 years ago

2 Replies

Does the butterfly rash sting slightly and feel itchy and hot?

I had a neorologist appointment last Thursday and he said in the light of lupus I should be aware of the rash on my face. I looked in the mirror and saw the...

I had a neorologist appointment last Thursday and he said in the light of lupus ...

Bonnie39

•10 years ago

5 Replies

My 14 year old presents with 4 Lupus symptoms but because her blood tests aren't showing antibodies the consultant said it can't be Lupus...

However despite seen the consultant paediatric rheumatologist last friday after her ultrasounds which shown no joints inflamation, we are still worried it...

However despite seen the consultant paediatric rheumatologist last friday after ...

annemarouge

•10 years ago

21 Replies

Malar rash help....

Hi guys n gals I think I may be experiencing the malar rash. I wondered if anyone who suffers can help? I'm very fair skinned and usually quite pale but have...

Hi guys n gals I think I may be experiencing the malar rash. I wondered if anyo...

Jo883

•10 years ago

9 Replies

Home Coming

HOMECOMING I believe there is Someone waiting for me, Waiting to say : " Welcome Home ! "Someone I have never seen, but whom I will recognize in the depths...

HOMECOMING I believe there is Someone waiting for me, Waiting to say : " Welc...

punnoose619

•10 years ago

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Morphine patches, Should I use them or not???

Hi guy's, I was wanting some advice on fellow lupies experiences with low dose morphine patches. I have sle, sjogren's, raynauds and crps. I have reluctantly...

Hi guy's, I was wanting some advice on fellow lupies experiences with low dose ...

sezzie

•10 years ago

8 Replies

ERYTHOMICIN Antibiotic reacting to planqinel!

Currently been given erythromicin for a lump found under my arm, my doc wanted to try a weeks dose before a scan as my white blood counts was very high...2...

Currently been given erythromicin for a lump found under my arm, my doc wanted t...

willowwag

•10 years ago

5 Replies

Can anyone relate/help to urinating alot? Please read my post

OK so urinating a lot was not a big problem before lupus but I can say for the past months maybe since September last year I have been wondering if I should...

OK so urinating a lot was not a big problem before lupus but I can say for the p...

Danielle2419

•10 years ago

27 Replies

Does anyone else get an angry rash almost like a burn around the neck area? Also as soon as I get a little stressed or tired, my ...

forehead gets very red, but not sore and the area around my eyes gets very sore and red. Looks horrible!

forehead gets very red, but not sore and the area around my eyes gets very sore ...

flossy1

•10 years ago

9 Replies

Lupus

Can you have lupus without a rash on your face

steph18toto

•10 years ago

23 Replies

ANA results

Hello everyone I don't have lupus - at least I don't think I do,never looked into it properly to be honest - but thought I'd post this on the lupus board as...

Hello everyone I don't have lupus - at least I don't think I do,never looked in...

chihiro

•10 years ago

9 Replies

What's the best way of getting help with depression and anxiety caused by lupus and life events? Are there any lupus groups in London?

kaw86

•10 years ago

17 Replies

Does anyone get meds for hair loss due to the meds like regaine I would think some ladies will but docs tend not to with blokes I think

Cos the cellcept seems to make it recede but the consultant is fobbing me off So would like some info to have a heated discuss with

Cos the cellcept seems to make it recede but the consultant is fobbing me of...

glasgowguy

•10 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2014

What is a Lupus/rheumatology nurse?

Sister with SLE????

Catching Everything!!!!

unexplained rash

Any advice on methotrexate?

Anybody know why on the survey is partime work not an answer ? Cutting back hours due too illness is sometimes a necessity?

Travel Insurance

Emotional intelligence? Anyone worked with emotional patterning that MAY be 'associated' with lupus?

Clexane injections, does it get any easier?? How is it monitored?

I live in Lowestoft Suffolk and wonder if anyone knows of a good GP that is experienced and proactive re: Lupus & Sjogrens?

Lumps

Lumps

Does anyone take natural supplements for joint pain?

I'm at a loss and the frequent urination is becoming a big thing now

abdominal aorta

what happens at a Rheumatologist?

I'm not depressed I just feel like s##t most days

Nerve pain

Does the butterfly rash sting slightly and feel itchy and hot?

My 14 year old presents with 4 Lupus symptoms but because her blood tests aren't showing antibodies the consultant said it can't be Lupus...

Malar rash help....

Home Coming

Morphine patches, Should I use them or not???

ERYTHOMICIN Antibiotic reacting to planqinel!

Can anyone relate/help to urinating alot? Please read my post

Does anyone else get an angry rash almost like a burn around the neck area? Also as soon as I get a little stressed or tired, my ...

Lupus

ANA results

What's the best way of getting help with depression and anxiety caused by lupus and life events? Are there any lupus groups in London?

Does anyone get meds for hair loss due to the meds like regaine I would think some ladies will but docs tend not to with blokes I think

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