Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

6,109 members•3,371 posts

All posts for September 2024

Lockjaw with fnd?

Hi i would like to know if anyone alsof experiencing extreme lockjaw, tetanus with fnd? I have this for several years and i was diagnosed with fnd last year....

Hi i would like to know if anyone alsof experiencing extreme lockjaw, tetanus wi...

•7 months ago

Given in my notice

Thank you for all your advice, regarding my manager asking me to resign from my position, I've checked with UC and been advised it will not effect my money in...

Thank you for all your advice, regarding my manager asking me to resign from my...

•7 months ago

FND diagnosed recently

Went to the ER about 2 months ago suspecting I had a stroke. MRI and all blood work (a lot of tests) all negative, was sent to a neuro 3 days later and...

Went to the ER about 2 months ago suspecting I had a stroke. MRI and all blood w...

•7 months ago

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Day 2

Hello dear fnd friends Yet again I feel totally useless, it's a strange felling when you feel so dizzy and feels like your head is going to fall.off your...

Hello dear fnd friends Yet again I feel totally useless, it's a strange felling...

•7 months ago

Anyone noticed a worsening of FND symptoms on the Perimenopause?

Hi everyone,My Wife has had FND since 2011, she's come a long way, from being in a wheelchair, then wearing two leg braces and having a few appointments with...

Hi everyone,My Wife has had FND since 2011, she's come a long way, from being i...

•7 months ago

Feeling so poorly

Today (Friday) I've felt so poorly just like a merry go round and so unstable , if only medication would work for my dizziness why is it everything I have is...

Today (Friday) I've felt so poorly just like a merry go round and so unstable ,...

•7 months ago

Hi and help!

Hi, I was diagnosed with FND last month, on the basis of a 5 minute conversation about my symptoms, and a rudimentary neurological investigation. I have a...

Hi, I was diagnosed with FND last month, on the basis of a 5 minute conversatio...

•7 months ago

update on recovery progress and therapies

I thought I should share some hopeful news. It’s been a year since my last post. I am 2.5 yrs post onset & diagnosis. Functional movement, fatigue, brain fog...

I thought I should share some hopeful news. It’s been a year since my last post....

•7 months ago

All in the Mind, (FND) BBC Radio 4 ..

allinthemind@bbc.co.uk. This weeks’ episode was partly dedicated to FND, and is now on BBC SOUNDS. The interviews with 2 patients give a positive outlook for...

allinthemind@bbc.co.uk. This weeks’ episode was partly dedicated to FND, and is...

•7 months ago

Re-Active's first post in Practical Neurology

Sharing this newly published article from Re-Active, an Organisation that advocating for FND patients to be validated, rule in test re dx and correct referrals...

Sharing this newly published article from Re-Active, an Organisation that advoca...

•7 months ago

Work capability assessment.

I've recently received my work capability assessment back and I've been rewarded the top one , I should be happy but you suddenly realise that's it I can't...

I've recently received my work capability assessment back and I've been rewarded...

•7 months ago

New Member and PPPD/ Vestibular Migraine

Hope you wont mind me joining ? I've been lurking for a while but decided to take the plunge. Long story so please bear with me. I've never been formally...

Hope you wont mind me joining ? I've been lurking for a while but decided to tak...

Sparklingsunshine

•7 months ago

Explaining Depths of Memory Loss

How do you explain to family and friends the extent of your memory loss? I struggle with both short term and long term memory. My memory has a lot of "blanks"....

How do you explain to family and friends the extent of your memory loss? I strug...

•7 months ago

frustrated

does anyone else feel totally unsupported with fnd. Nothing seems available even a gp appointment is hard to get. Living with constant discomfort/pain and v...

does anyone else feel totally unsupported with fnd. Nothing seems available even...

•7 months ago

Myasthenia Gravis?

I may be affected by Myasthenia Gravis (MG) due to difficulties with swallowing, and recently I can only swallow liquids. I also experience muscle weakness,...

I may be affected by Myasthenia Gravis (MG) due to difficulties with swallowing,...

•7 months ago

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The world turning upside down and Hallucinations

My son experienced his vision turning upside down briefly then correcting itself and hallucinations (which he described in detail). Luckily he wasn't too...

My son experienced his vision turning upside down briefly then correcting itself...

•7 months ago

Throat constricting/breathing issues

Ok so this is a really new symptom for me and I’m freaked out. So about ten minutes ago I had like a really bad FND flare up/episode and one of the things that...

Ok so this is a really new symptom for me and I’m freaked out. So about ten minu...

•7 months ago

A helmet of hope?

https://www.nottingham.ac.uk/news/brain-imaging-is-on-the-move-with-wearable-scanning-development#:~:text Could this mean more detailed diagnoses? more...

https://www.nottingham.ac.uk/news/brain-imaging-is-on-the-move-with-wearable-sca...

•7 months ago

Feeling very dizzy today

After attempting to do my garden yesterday I feel very light headed and dizzy I just want to sleep, it just proves that I can't do the simple things even when...

After attempting to do my garden yesterday I feel very light headed and dizzy I ...

•7 months ago

Vagal Nerve Stimulation

Hi, I've been having a really bad year after an infection I think was covid. I can't afford to be tested, so I can't be sure. I've started doing trans...

Hi, I've been having a really bad year after an infection I think was covid. I ...

•7 months ago

Sleep apnea and fnd

Good morning dear FND friends I was just wondering if anyone suffers with sleep apnea along with FND , I understand that sleep apnea makes our condition a lot...

Good morning dear FND friends I was just wondering if anyone suffers with sleep...

•7 months ago

Bad day

The last couple of days have been particularly trying. I spent most of yesterday in bed & it seems like today is going to be the same. All this laying about is...

The last couple of days have been particularly trying. I spent most of yesterday...

•7 months ago

FMD ..

Hi So I have shared some success stories when my son had leg spasms/numbness and was laid up and then when his brain was distracted got up when about his...

Hi So I have shared some success stories when my son had leg spasms/numbness and...

•7 months ago

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Work capability assessment

Would you believe I'm still waiting for my work capability assessment to come from the decision makers, I know everything was returned to them on the 22nd...

Would you believe I'm still waiting for my work capability assessment to come fr...

•7 months ago

New environments can be challenging so prepare ahead

Hi This was something a member posted on another site and how she envisaged the difficulties she may experience and had her "tools" sensory aids packed ready,...

Hi This was something a member posted on another site and how she envisaged the ...

•7 months ago

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Functional Seizures

I live with functional seizures and I’m interested in connecting with anyone who lives with functional seizures as a symptom of FND. Thanks

I live with functional seizures and I’m interested in connecting with anyone who...

•7 months ago

Happy Gypsy

Can I just say I'm so happy I found this site. I live in a tiny town in country Victoria Australia, population 2000. I am about the weirdest person here right...

Can I just say I'm so happy I found this site. I live in a tiny town in country ...

•7 months ago

Excessive saliva

Does anyone experience this, it's like my tongue sweats. Constantly having to swallow, especially during the night. Any suggestions on what to do? Moni

Does anyone experience this, it's like my tongue sweats. Constantly having to sw...

•7 months ago

throat swallowing and speech issues

I think I’m going bonkers. Can FND cause swallowing issues and a gravelly voice that comes and goes. It’s getting me down as tests are inconclusive but I don’t...

I think I’m going bonkers. Can FND cause swallowing issues and a gravelly voice ...

•7 months ago

Let’s shout it out! Please use equipment in FND if you need it!

Although I have added it as replies to other members post, I think this is a must watch video from Re-Active: https://m.youtube.com/watch?v=BW9ICMDMu64 It goes...

Although I have added it as replies to other members post, I think this is a mus...

•7 months ago

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