Sleep apnea and fnd

[Littlecook]

Good morning dear FND friends I was just wondering if anyone suffers with sleep apnea along with FND , I understand that sleep apnea makes our condition a lot worse, I'm waiting for my results from my last test that's takes 12 weeks I'm hoping to hear something soon. If anyone does suffer the same please let me know how you cope .

[thinkin]

Hi,

Occasionally I wake up gasping for air, and not know why. I had a sleep study done years ago. My oxygen saturation went down to low 90%'s, but the doctor said it was normal?? To tell the truth, it can be that in the day as well. With me I think due to the FMD the signals to my brain to my lungs aren't as strong as they are supposed to be. I was having problems before FMD too. I had a short spell of FND in my 20's after my first asthma attack and given steroids where I couldn't breathe all of a sudden, I couldn't move either so watched the blue mottle of cyanosis travel up my arms. I blacked out, but didn't die. I don't know how long I was out for as I was on my own.

I think there is a link somewhere, but I feel it may be a chicken or egg situation.

Sorry to go off piste:

I'm on a sulphite free diet as like 30% of asthmatics, I'm allergic to them (they put them in food and drugs without putting them on the label - including asthma inhalers!). I take P5P (a form of B6) to help my brain clear glutamate as thyroid/pernicious anaemia antibodies attack glutamine synthase that usually clears it, vitamin B12 to replace the sulphite oxidase that my body doesn't make enough of, vitamin D for my immune system to stabilise mast cells and because I don't get out much, TTFD a form of vitamin B1 as I don't absorb normal vitamin B1, folic acid as I've been low on my last blood test and vitamin B2 for migraines. I was on peas sprouted in the dark to make diamine oxidase to reduce the amount of histamine in my gut, but since start using trans auricular vagal nerve stimulation I've had to stop and find that I can get away with not using them.

To help your FND you may have to unpick any other health problems you have. Hopefully you will have answers soon regarding sleep apnoea.

Good luck x

[Theowalks]

Hi,

I am waiting for the result of my test. I'm always so tired and this has been put down to ME before. But having recently seen a neurologist in London, he suggested that I might have sleep apnoea. I'll get back here once I have the results.

Good luck

[Littlecook in reply to Theowalks]

Good luck with your results, I've had mild sleep apnea for some years but for a sometime now I've been extremely tired so tired I feel poorly. I called the hospital yesterday and I was told everything is taking a lot longer to come back , I've been waiting since July and could be a number of weeks yet before I even get called to talk to a consultant. I will keep my fingers crossed 🤞 for you .

[jmgomets]

I have sleep apnea as well, The combination of these 2 is taking a toll on my body and mind. I wake up drained even though i slept straight through (6 hours).

[Lady4]

Hi, just a side note. I have a friend who suffers from Sleep Apnea and has to wear a silicone mask which she started having a reaction to the silicone. However, I recently found out that the new Apple Watch measures this and shared this with her.

[Shimmyaway]

I expect you have already tried raising the bed head to ease the breathing?

Some aids are available to do this.

[Alison2010]

I have sleep apnea and use a CPAP machine. Before using CPAP I would fall asleep during the day, sometimes even nodding off at work, and I was just so exhausted all the time. I do think that exacerbated my FND symptoms. Some days I am still tired even using CPAP but nowhere near the exhaustion I used to feel.

[EnglishIslander FND Hope Volunteer]

I've been using a CPAP for 10 years now, starting a year after I was diagnosed with FND. API score of 75 so was very pleased to have found out why I was sooooo tired and irritable, to say nothingof the disturbed sleep and snoring! Still have ended up with heart issues that may or may not be connected to all those years of untreated Apnoea though.I'd suggest chasing your results as often as you can so that if you do need treatment you can get it quickly. If your results are definitive the sleep clinic will likely see you earlier.