Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,652 members • 2,948 posts

All posts for May 2017

Hello!

Hi I'm Kate. I was diagnosed with FNSD in 2014 after a year of testing and thinking I was dying. Having a hard time dealing with this disorder... there are...

Hi I'm Kate. I was diagnosed with FNSD in 2014 after a year of testing and think...

•7 years ago

What happened to suggested meet up?

Hi A few weeks ago a meet up in Edinburgh was suggested which I said I was interested in. Have things moved on. I'm really keen to meet others dealing with...

Hi A few weeks ago a meet up in Edinburgh was suggested which I said I was inter...

FND Hope UK•7 years ago

Not yet with it

Hi all, have just started to read posts but not making much sense yet. I made it to London, Great Ormond Street last Wednesday. Can't believe how much it's...

Hi all, have just started to read posts but not making much sense yet. I made it...

•7 years ago

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We got it ...

So after much faffing we got the house! Just to now cross the t's and dot the i's.... money transferred passports photo graphed..... feel numb though.... I...

So after much faffing we got the house! Just to now cross the t's and dot the i'...

•7 years ago

Gray is my thing...

My community friends. I often keep technical reading windows open on my tablet for days at a time as it takes me forever to comprehend what is written. I have...

My community friends. I often keep technical reading windows open on my tablet f...

•7 years ago

Not entirely sure what I'm doing.....so what's new?!?!?!

Hi all, I've had this FND for 18 months or so. Other medical history is mixed, stones of various sorts, sepsis, scoliosis with rods, asthma, hypermobile, brain...

Hi all, I've had this FND for 18 months or so. Other medical history is mixed, s...

Garlicandonions

•7 years ago

Is it Meds or FND???

My ultimate question today is: Is my increase in issues due to new meds or just FND changing yet again for the millionth time? I am so frustrated with this...

My ultimate question today is: Is my increase in issues due to new meds or just...

•7 years ago

Any tips for FND when dealing with thunder and lightning - do you get affected by the lights and noise?

Hi everyone! We're in line for some thunder & lightning later today and I would like to know if any of you get worsening symptoms & if so, what's your coping...

Hi everyone! We're in line for some thunder & lightning later today and I would ...

•7 years ago

Ramp Up ... CRASH Cycle

It is ALMOST Friday...Much love to you all! Keep pressing on one day at a time! Suuuubbbbsscrrriiiibbbe :D :D :D https://youtu.be/hDFHAhq2JyQ

It is ALMOST Friday...Much love to you all! Keep pressing on one day at a time!...

•7 years ago

For Dan in Seattle

Was looking though my essential oils and found this!! If not tried maybe worth a try xxxx

Was looking though my essential oils and found this!! If not tried maybe worth ...

•7 years ago

Just realized.....

So it's just hit me today that I don't go any where or do anything...last week I slept 20 hrs Monday, Thursday, Friday, about 16 hrs Tuesday Wednesday. I even...

So it's just hit me today that I don't go any where or do anything...last week I...

•7 years ago

Garden Party Birthday, FND WHO?

Please know we are praying for the families and the many public workers involved in Manchester. Heroes working together to help many I'm sure. May those...

Please know we are praying for the families and the many public workers involved...

•7 years ago

Gall bladder

Hello all Had a colposcopy and endoscopy today and told I now have to have my gall bladder removed due to my liver functioning not properly seems like there...

Hello all Had a colposcopy and endoscopy today and told I now have to have my g...

•7 years ago

CBD

Have been told about CBD today when buying some vaping liquids. Has anyone tried it?? Does it help with pain?? What's the best to use it?? Can I use with my...

Have been told about CBD today when buying some vaping liquids. Has anyone trie...

•7 years ago

Fludrocortisone update for low BP.

My community friends. With thanks to you all for being here. Higher dosage of fludrocortisone has failed to consistently keep blood pressure readings within...

My community friends. With thanks to you all for being here. Higher dosage of fl...

•7 years ago

Wondering if anyone has dealt with leg cramps

Hello everyone, I'm sure many of you do but I'm hoping to find some relief. My legs spasm so much. In the past, due to low heart rate and temps of 95 degrees...

Hello everyone, I'm sure many of you do but I'm hoping to find some relief. My ...

•7 years ago

Ireland

I was diagnosed in march 2014 with fnd.hard to take in so confusing for me only 44.three children that are very worried about me.i suffer pain mostdays. I have...

I was diagnosed in march 2014 with fnd.hard to take in so confusing for me only ...

•7 years ago

My U.K. Friends

I send you my prayers for the loss of life that I have read about in the events transpiring in Manchester. I pray for your safety and security. May God be...

I send you my prayers for the loss of life that I have read about in the events ...

•7 years ago

Care Team

Who is part of your care team? And if you are from the US, who do you have for different doctors/medical care? Just got diagnosed in January, so I'm still...

Who is part of your care team? And if you are from the US, who do you have for d...

•7 years ago

RE: Wife's housing medical.

Hi everyone! You may all be aware of how much fighting we are doing to get my Wife Kim who has FND, re - housed into a Bungalow from this miserable 2nd floor...

Hi everyone! You may all be aware of how much fighting we are doing to get my Wi...

•7 years ago

Pain

I'm in so much abdominal pain, hot and cold sweat like the flu,pain is like a contraction so intense.. popped to local urgent care told we're not seeing...

I'm in so much abdominal pain, hot and cold sweat like the flu,pain is like a co...

•7 years ago

Two jobs in one

Cooling down whilst defrosting dinner

Cooling down whilst defrosting dinner

•7 years ago

"THAT ESCALATED QUICKLY...Meet B.B."

Hey Good Morning to half the WORLD! I thought we'd be ahead of the game and post Tusdays video bright and early for you!! https://youtu.be/6JdSYhmrs_4

Hey Good Morning to half the WORLD! I thought we'd be ahead of the game and pos...

•7 years ago

FND and Endocrine problems Link?

Just being diagnosed with FND through the fantastic Edinburgh Neurological team. However, I am having greater difficulty getting NHS to accept Blue Horizon...

Just being diagnosed with FND through the fantastic Edinburgh Neurological team....

•7 years ago

Exhaustion

So I'm on week 2 of exhaustion.... get up at 7 sort breakfasts , lunches kiddo to school! Walk dog an hr then sleep / rest 10-2.30.. get up get kids do...

So I'm on week 2 of exhaustion.... get up at 7 sort breakfasts , lunches kiddo t...

•7 years ago

Spino cerebellar ataxia type 6 - new member

Hi, I'm Sally and new. Have spino cerebellar ataxia type 6, for about 20 years. Would like to meet anyone with the same disability,

Hi, I'm Sally and new. Have spino cerebellar ataxia type 6, for about 20 years....

•7 years ago

You are amazing

You are all amazing be proud of who you are and even prouder of the battle you have fought 🌟✨⭐️🙏😇❤️️💖

You are all amazing be proud of who you are and even prouder of the battle you h...

•7 years ago

"A SMALL PROBLEM"

Happy Friday! "A SMALL PROBLEM" Side note. If you are having trouble subscribing to our channel... 2 things. 1. Be sure you are signed into YouTube via your...

Happy Friday! "A SMALL PROBLEM" Side note. If you are having trouble subscribing...

•7 years ago

Bit of HOPE!!

I was diagnosed 9years ago with ME/CFS towards the severe end of the scale. Something just didn't sit right and everyone except the neurologists didn't want to...

I was diagnosed 9years ago with ME/CFS towards the severe end of the scale. Some...

•7 years ago

Thinking of giving up work

Right now i am feeling that i am 10 steps forward then a week later 10 steps back. My speech was fine up to Monday when i visited the dentist. It was a windy...

Right now i am feeling that i am 10 steps forward then a week later 10 steps bac...

•7 years ago

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