Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,624 members • 2,934 posts

All posts for October 2017

One pupil larger than the other

I was just wondering if there is anybody out there with a diagnosis of FND with one pupil larger than the other and pupils having 'sluggish' responses as a...

I was just wondering if there is anybody out there with a diagnosis of FND with ...

•6 years ago

Worsening symptoms with periods

Hi All (well ladies 😊), I was wondering if anybody else suffers with their symptoms worsening with the build up to their period at all? I seem to be a lot...

Hi All (well ladies 😊), I was wondering if anybody else suffers with their sym...

•6 years ago

What is really going on with our bodies ?

Have been reading a few of the posts and so many of the symptoms are the same with so many varying degrees. FND, Fibromyalgia,ME,CPN,CF to name a few all of...

Have been reading a few of the posts and so many of the symptoms are the same wi...

•6 years ago

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Jon Stone's webinar last night on fndhope

Hi Peeps I "attended" the webinar. Excellent questions and .... I also appeared live asking my question. It was about administering pain relief during...

Hi Peeps I "attended" the webinar. Excellent questions and .... I also appeared ...

FND Hope UK•6 years ago

Vote for us - Aviva Community Funding

We need your support to help us win funding as part of the Aviva Community Fund 2017 to help organise a Patient Support Group within the Oxfordshire area......

We need your support to help us win funding as part of the Aviva Community Fund ...

Moderator•6 years ago

New to forum - a rare type of FND

Hi - I've joined this group to try and see if there is anyone else out there with the same symptoms my friend has and what treatment they are/have had. He has...

Hi - I've joined this group to try and see if there is anyone else out there wit...

•7 years ago

Bowel problems with FND

Hi there, I am new to the group and have never used a forum before so a new and scary thing for me 😊. A little background is that I have hashimotos disease...

Hi there, I am new to the group and have never used a forum before so a new and...

•7 years ago

Eyes

I have a problem with my left eyes it goes freely and closes involuntary....it feels like I have no control over it and does what ever it likes...so the eyes...

I have a problem with my left eyes it goes freely and closes involuntary....it f...

•7 years ago

New to the forum

Hi all, I'm new to the site today, was diagnosed with FND symptoms and NEAD last December, also have fibromyalgia and sciatica, asthma and IBS, anxiety and...

Hi all, I'm new to the site today, was diagnosed with FND symptoms and NEAD last...

•7 years ago

Eyes

Well one of my eye goes freely and it seems to close whenever.....tho when it's closes I have no idea but I still see with it.....and one is bigger than the...

Well one of my eye goes freely and it seems to close whenever.....tho when it's ...

•7 years ago

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Off to see my neuro

Hits everyone just a quick update it has been awhile since I last was on due to be unwell as you all know to well. So I had my gallbladder removed and yes I...

Hits everyone just a quick update it has been awhile since I last was on due to ...

•7 years ago

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Slowing down movements with focus

One last one today. Keep Smiling

One last one today. Keep Smiling

•7 years ago

slowing down movements with focus

These pictures I am sharing are done with color pencil on black paper. I have found that by taking the time to sit and focus, I am able to calm the movements...

These pictures I am sharing are done with color pencil on black paper. I have f...

•7 years ago

Slowing down movements with focus

I wanted to share a few of my drawings. This is something that helps me to calm down my movements when I am struggling. I love being able to do these

I wanted to share a few of my drawings. This is something that helps me to calm...

•7 years ago

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Dr Jon Stone webinar

Hi All, Dr Jon Stone is holding another webinar on Thursday 26th October at 9pm UK time. To register, go to fndhope.org then go to webinars, scroll down till...

Hi All, Dr Jon Stone is holding another webinar on Thursday 26th October at 9pm ...

•7 years ago

FND (Conversion) and Complex - Post Traumatic Stress Disorder - anyone else got both these rare disorders

Hi Peeps As you know I've got FND (Conversion) and Complex-Post Traumatic Stress Disorder (C-PTSD). C-PTSD is distinct from the more commonly heard of Post...

Hi Peeps As you know I've got FND (Conversion) and Complex-Post Traumatic Stress...

FND Hope UK•7 years ago

Newly diagnosed- not coping

Hi I was diagnosed last week after episodes of Blackouts, dizzy spells, falls and loss of movement in my right leg. I am now multiple times a day falling,...

Hi I was diagnosed last week after episodes of Blackouts, dizzy spells, falls a...

•7 years ago

swallowing

does anyone else struggle with swallowing solids? I am waiting for a video xray of my swallowing.

does anyone else struggle with swallowing solids? I am waiting for a video xray ...

•7 years ago

Shortness of breath

Anyone else struggling with shortness of breath? I think I'm loosing upper body strength, crumpling down on chest and so getting breathless. Is relieved by...

Anyone else struggling with shortness of breath? I think I'm loosing upper body ...

•7 years ago

Advice re support in nottinghamshire and with full body spasms

I was diagnosed with FND 3 months ago after 2yrs of test. I was advised to have physio and psychological therapy, but my Dr s do not know where to refer me in...

I was diagnosed with FND 3 months ago after 2yrs of test. I was advised to have...

•7 years ago

"Cured"

I went to see the psychiatrist this week and he has said he reckons i will be cured within a month to 2 months🤔...has anyone else been told this and it has...

I went to see the psychiatrist this week and he has said he reckons i will be cu...

•7 years ago

looking advice

looking for someone to chat with about functional disorder ive had it the last 2 years and it just seems to be getting worse? my doctor doesnt feel theres any...

looking for someone to chat with about functional disorder ive had it the last 2...

•7 years ago

24 with FND

Hi, I'm frankie! I'm 24 year old female. I have been expericing neurological symptoms, and today I saw a neurological specialist who today diagnosed me with...

Hi, I'm frankie! I'm 24 year old female. I have been expericing neurological sym...

•7 years ago

ESA/PIP Assessment review by Work & Pensions Committee

http://www.parliament.uk/business/committees/committees-a-z/commons-select/work-and-pensions-committee/news-parliament-2017/pip-esa-assessments-launch-17-19/

http://www.parliament.uk/business/committees/committees-a-z/commons-select/work-...

Moderator•7 years ago

Scottish Petition on more NHS Support for FND Sufferers

Hi Peeps I've signed the UK petition calling on better NHS provision for FND sufferers. I've put it on my Facebook and my friends are beginning to add their...

Hi Peeps I've signed the UK petition calling on better NHS provision for FND suf...

FND Hope UK•7 years ago

FND Conversion Disorder is still FND

Hi Peeps I don't want to start a war of words or anything of that kind as I find this site really really important to me and know that others do and it is a...

Hi Peeps I don't want to start a war of words or anything of that kind as I find...

FND Hope UK•7 years ago

I'm curious, do any of you also have EDS and FND?

I have both and I'm wondering if there might be a link between them as some websites mention there are many people with the two co occurring in FND patients....

I have both and I'm wondering if there might be a link between them as some webs...

•7 years ago

Recently diagnosed, is it possible to become symptom free?

I'm in hospital and have been for the past month, recieving intense physiotherapy to try and get my body to work again. I struggle most with functional gait...

I'm in hospital and have been for the past month, recieving intense physiotherap...

•7 years ago

Another go at Jon Stone book link.

https://www.dropbox.com/s/rhdhfrg5sk9l569/Hallett%20Stone%20Carson%20-%20Functional%20Neurologic%20Disorders%20139%20-%20Handbook%20of%20Clinical%20Neurology.pd

https://www.dropbox.com/s/rhdhfrg5sk9l569/Hallett%20Stone%20Carson%20-%20Functio...

FND Hope UK•7 years ago

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Link to Jon Stone book

Hmm the link didn't seem to work. Need to work out what went wrong. Speak soon. Lou

Hmm the link didn't seem to work. Need to work out what went wrong. Speak soon. ...

FND Hope UK•7 years ago

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