Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,981 members•3,236 posts

All posts for April 2024

FND rule in signs

Found this on a poster at FND Action: https://www.fndaction.org.uk/diagnosis/ Its at the bottom with other "rule in" signs which I tried to add.

Found this on a poster at FND Action: https://www.fndaction.org.uk/diagnosis/ ...

•9 months ago

Functional neurological disorder: Engaging patients in treatment

Apologises if posted somewhere before, but it was the date of this article and the recommended Care Model that caught my eye, I was searching for "rule in"...

Apologises if posted somewhere before, but it was the date of this article and t...

•9 months ago

Newly Diagnosed

Hi All, Last year I developed a chronic sinus infection (went on for 6 months in the end) that was misdiagnosed as an ear issue solely. The stress, months of...

Hi All, Last year I developed a chronic sinus infection (went on for 6 months i...

•9 months ago

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recently diagnosed

hi all, I was recently diagnosed with FND after being admitted to the hospital with weakness/stiffness in my legs and my arm. My symptoms stated in early...

hi all, I was recently diagnosed with FND after being admitted to the hospital...

•9 months ago

frustrated

Hi I’m 24 years old, I live in the USA. I was recently diagnosed with PNES and I’m having symptoms of FND. I remember having my first seizure at 17 years old...

Hi I’m 24 years old, I live in the USA. I was recently diagnosed with PNES and I...

•9 months ago

Sensory Processing and PTSD

I found this article really interesting (yet to read it all, initially attracted to images):...

I found this article really interesting (yet to read it all, initially attracted...

•9 months ago

OT and FND - the therapist you should have on your team

https://www.neurology.org/doi/10.1212/CPJ.0000000000200286 The highlight: Following a sensory-based OT intervention, 62% of individuals with FND were...

https://www.neurology.org/doi/10.1212/CPJ.0000000000200286 The highlight: Foll...

•9 months ago

FND Research Article

This isn't new research but interesting: https://www.york.ac.uk/news-and-events/news/2021/research/research-reveals-cause-mystery-condition/

This isn't new research but interesting: https://www.york.ac.uk/news-and-events/...

•10 months ago

Hi there - are there any group meet ups in person please?

I am supporting someone who has FND and she would really like to meet other people who have this condition. I am just doing some investigating on her behalf....

I am supporting someone who has FND and she would really like to meet other peop...

•10 months ago

Autism Assessment

I have just been advised the Autism Assessments are 18 mths (if your lucky) to 2 years and on top of that the school are only assigned so many hours, so that...

I have just been advised the Autism Assessments are 18 mths (if your lucky) to 2...

•10 months ago

FND Awareness month

#fndawareness I just clicked on this and there are over 27k posts so far on Instagram, I really hope things change.

#fndawareness I just clicked on this and there are over 27k posts so far on Inst...

•10 months ago

Baclofen?

My GP has offered me treatment with Baclofen…a muscle relaxer commonly used for MS. This would be to address widespread pain. It works with GABA receptors. Has...

My GP has offered me treatment with Baclofen…a muscle relaxer commonly used for ...

•10 months ago

temperature fluctuations

Hi Recent diagnosis of FND. I have had a problem with my body being very hot to touch with flu like feeling, shaking and all over body pain. My cheeks are...

Hi Recent diagnosis of FND. I have had a problem with my body being very hot t...

•10 months ago

The Stress System

Loved this article and its metaphors: The stress system is made up of multiple interconnected brain-body systems—the autonomic nervous system,...

Loved this article and its metaphors: The stress system is made up of multiple ...

•10 months ago

An Inspirational Story, full of Hope: Maureen's Story

Check it out at: https://www.instagram.com/reactivept/ This lady has had FND for 12 years, and she uses learn't techniques to help her stop her symptoms in...

Check it out at: https://www.instagram.com/reactivept/ This lady has had FND for...

•10 months ago

Evidence-Based Mind-Body Interventions for Children and Adolescents with Functional Neurological Disorder

The bit that caught my attention: Full resolution of FND symptoms occurs in 63%–95% of children if diagnosis and treatment are promptly delivered using a...

The bit that caught my attention: Full resolution of FND symptoms occurs in 63%...

•10 months ago

FND SUCKS

Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain all over, abdominal pain, constipation that lasted sometimes 17 days with no...

Hi I'm Debby and I'm in the USA in Utah. I have been dealing with constant pain...

•10 months ago

Hello

Hi there, this is my first post and I am not sure of where I should start. I feel very alone these days, I am always unedge when it comes to stress management...

Hi there, this is my first post and I am not sure of where I should start. I fee...

•10 months ago

Do you suffer from nf1 or 2

Good evening friends I was wondering if anyone suffers from the rare condition NF1 OR NF2 it would be lovely to chat to anyone who suffers from this...

Good evening friends I was wondering if anyone suffers from the rare condition...

•10 months ago

Therapist

Regarding my last post. I told my therapist what WE were going to talk about and the things that WE are going to deal with, and they all have to do with this...

Regarding my last post. I told my therapist what WE were going to talk about and...

•10 months ago

FND is NOT FAKING IT

Sharing this image of brain scans which shows what was happening in an FND patient's brain during symptoms (on the right), against the scan on the left where...

Sharing this image of brain scans which shows what was happening in an FND patie...

•10 months ago

Staying in rosa burden

I'm due to go to the Rosa Burden Centre hopefully in next few months, I'm wondering how a day to day goes and do we have separate rooms as I'm worried of...

I'm due to go to the Rosa Burden Centre hopefully in next few months, I'm wonder...

•10 months ago

Mad as Hell

Eventually had a letter following a telephone conversation with a Children's Psychiatrist. The letter said I diagnosed ASD - however, she suspected it and I...

Eventually had a letter following a telephone conversation with a Children's Psy...

•10 months ago

Feeling so fed up

I'm feeling so low I want answers to whats going on my stroke like symptoms are stopping me working as the care home doesn't know what's my diagnosis are to...

I'm feeling so low I want answers to whats going on my stroke like symptoms ar...

•10 months ago

Tingling

I recently have felt like drips of water are going down My legs ... like on my shin. I keep sinking, it's the dog's wet nose. But he's never in the room . can...

I recently have felt like drips of water are going down My legs ... like on my s...

•10 months ago

botox treatment

Does anybody have any experience of Botox injections for the treatment of TMJD? This has been suggested to me today by a health professional at my local...

Does anybody have any experience of Botox injections for the treatment of TMJD? ...

•10 months ago

New friends

Good morning everyone Since I joined the group I've had great support in a very short time, I would love to make new friends it doesn't matter were you live...

Good morning everyone Since I joined the group I've had great support in a ver...

•10 months ago

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