Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

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Hello all.

Hello, all. Thanks for your replies to previous post entitled 'FND diagnosis. Complaint.' I went through PALS who contacted neurology on my behalf, I just got...

Hello, all. Thanks for your replies to previous post entitled 'FND diagnosis. Co...

JHutton1994

•5 days ago

6 Replies

Weird Stabbing Pain on Skin?

hi everyone, i’m newly diagnosed with FND, have had a brain MRI, but haven’t spoken to a neurologist because the NHS are so slow… I struggle with movement in...

hi everyone, i’m newly diagnosed with FND, have had a brain MRI, but haven’t spo...

LuluHealing

•3 months ago

6 Replies

Throat constricting/breathing issues

Ok so this is a really new symptom for me and I’m freaked out. So about ten minutes ago I had like a really bad FND flare up/episode and one of the things that...

Ok so this is a really new symptom for me and I’m freaked out. So about ten minu...

ChaosCats

•4 months ago

16 Replies

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FND Help! Please

Hi, This is my first post as I'm not sure where else to turn. Why wife was diagnosed last year with FND, her symptoms started when she was being treated in...

Hi, This is my first post as I'm not sure where else to turn. Why wife was diag...

PurplePotter1

•6 months ago

19 Replies

FND/pelvic pain

hey I’ve been reading lots of the stories on here and so much great info regarding this.. can I ask has much people suffered with chronic pelvic pain and...

hey I’ve been reading lots of the stories on here and so much great info regardi...

NicoleF33

•8 months ago

13 Replies

Anyone with similar symptoms?

Hi everyone, I was diagnosed with FND in August 2023 after almost 2 years of seeing many doctors, specialists, etc. In early 2022, I started having...

Hi everyone, I was diagnosed with FND in August 2023 after almost 2 years of see...

DragonNC

•1 year ago

11 Replies

Just saw this via Neurology Journal ...

In this episode of the Neurology Podcast: Prof. Jon Stone and Drs. Selma Aybek, David Perez, and Sarah Lidstone discuss FND diagnosis and exploring new...

In this episode of the Neurology Podcast: Prof. Jon Stone and Drs. Selma Aybek, ...

210272

•1 year ago

5 Replies

extreme muscle pain and stiffness/ spasms

hi! Recently diagnosed but confess am feeling in a bit of a mess - my main symptom is horrendous muscle pain stiffness and spasm in my shoulders, lower back...

hi! Recently diagnosed but confess am feeling in a bit of a mess - my main sympt...

Banjolinnhe

•2 years ago

25 Replies

Looking for Advice & Support

Hello! I’m ChronicCrafter, this is my first discussion on here. I’m really hoping that I can find some support here, I don’t really have anyone else to talk...

Hello! I’m ChronicCrafter, this is my first discussion on here. I’m really hopi...

ChronicCrafter

•2 years ago

7 Replies

Temperature related Symptom Inquiry

Hey all, Has anyone had experiences with their temperature regulation getting messed up with FND? Below I wrote out what I'm experiencing. Just unsure if it's...

Hey all, Has anyone had experiences with their temperature regulation getting me...

alaslizards

•3 years ago

5 Replies

Stimulated by Sensory Overload

Hi, does anyone else have their FND stimulated by sensory overload?? The strong triggers for my FND (non-epileptic seizures, tics/twitches) are when my visual...

Hi, does anyone else have their FND stimulated by sensory overload?? The strong ...

Obrien8175

•3 years ago

7 Replies

Struggling with Loss of Appetite

I'm new to this site. I live in Nova Scotia, Canada - and I was diagnosed with FND in July 2020. My symptoms are right side weakness (arm and leg), speech...

I'm new to this site. I live in Nova Scotia, Canada - and I was diagnosed with F...

noreaster

•4 years ago

19 Replies

Love life

What's your sex/relationship like with FND?

Lolastar

•5 years ago

2 Replies

Is it FND?

Hello everyone, my name is Sean. I am 22 years old from Canada, and I am currently living in Japan! Since I was 16 years old I started to get really bad...

Hello everyone, my name is Sean. I am 22 years old from Canada, and I am current...

CallmeRouge

•5 years ago

3 Replies

Has anyone's symptoms suddenly resolved?

Hi everyone. Im new (within a month) to FND. In early October I experienced a horrible migraine followed by left side mouth drooping. Two days later I was...

Hi everyone. Im new (within a month) to FND. In early October I experienced a ho...

Chips26

•5 years ago

10 Replies

Hormones and FND

Hi Everyone, Bit of a personal question..... I am wondering if anyone’s symptoms flare up the week before period? I am in peri menapause so my hormones are...

Hi Everyone, Bit of a personal question..... I am wondering if anyone’s symptoms...

Yellowfinch

•5 years ago

27 Replies

How are you feeling?

Just wanted to check in to see how people are doing. I've taken more sick leave this week than I've ever taken before (a whole week) and have just started the...

Just wanted to check in to see how people are doing. I've taken more sick leave...

Nicoleblack123

•6 years ago

8 Replies

Acceptance?

Has anyone found that while reading about their symptoms/FND, they become worse? I have purchased a few books which have been recommended for understanding my...

Has anyone found that while reading about their symptoms/FND, they become worse?...

Nicoleblack123

•6 years ago

6 Replies

Patches/clusters goosebumps

I’ve had various neurological symptoms for a number of years, no neurologist or doctor has seen or been able to tell me what could be causing these goosebumps....

I’ve had various neurological symptoms for a number of years, no neurologist or ...

leradford

•6 years ago

200 Replies

Speech Loss following a Dissociative Seizure

Hi, Wondering if anyone else has had the experience of losing their speech after an episode. Its happened to me a few times and it seems to be becoming more...

Hi, Wondering if anyone else has had the experience of losing their speech afte...

shoseraw

•7 years ago

6 Replies

Stimulated is this right? (New & Hey)

Hey, Think I am getting closer to diagnoses, after 4 odd years, the two suggested possibilities on the cards are Dysautomomia or FND. Tests will try...

Hey, Think I am getting closer to diagnoses, after 4 odd years, the two suggest...

WickedGame

•7 years ago

10 Replies

anyone else lost speech altogether

hi i was wodering if anyone could help me , as i feel so alone my new fnd symptom on top of everything else total loss of speech before it was always slurred...

hi i was wodering if anyone could help me , as i feel so alone my new fnd sympto...

mariethewitch

•7 years ago

5 Replies

symptoms

when I get excited happy or get startled by a loud noise I make a loud squeaking /squealing noise sounds abit like a mouse on helium does anyone else get this...

when I get excited happy or get startled by a loud noise I make a loud squeaking...

Chelle2017

•8 years ago

4 Replies

Left sided sensory symptoms - hoping to feel less alone! Very depressed!

Hi everyone - so I'll try to keep this short. Basically after a very bad migraine with aura back in August 2012, I have experienced bouts of weird feelings on...

Hi everyone - so I'll try to keep this short. Basically after a very bad migrain...

Pinkmoon26

•8 years ago

17 Replies

New symptoms

Hiya,nice to meet everyone...anyone have tics? Eg clapping constantly eg -pulling chin out and making a odd noise,making a noise in your throat...I find it...

Hiya,nice to meet everyone...anyone have tics? Eg clapping constantly eg -pullin...

TracySmedley

•9 years ago

8 Replies

Just diagnosed with EOE

Hi everyone! I have FND and a few months ago I wrote on here about my throat symptoms such as difficulty swallowing. After having a Gastroscopy done last...

Hi everyone! I have FND and a few months ago I wrote on here about my throat sym...

LEEJUNFAN

•9 years ago

7 Replies

Mouth and throat?

Hey folks With my FND I have issues with mobility etc and chronic pain However few months ago noticed thrush like issues on my tongue ... I had tests by doctor...

Hey folks With my FND I have issues with mobility etc and chronic pain However f...

andyglasgow2016

•9 years ago

7 Replies

I am inventing a new word.. "Bed" ercise

I know it sounds funny, but I am inventing a new word that goes along with fnd sufferers.. Its called. "Bed"ercise.. Or exercise in bed. After the night I...

I know it sounds funny, but I am inventing a new word that goes along with fnd s...

cgarff

•9 years ago

4 Replies

Footwear with FMD

Hi everyone! I find with my FMD that I can't wear any shoes anymore even if they have a small heel on them. My right leg goes weak and buckles even after...

Hi everyone! I find with my FMD that I can't wear any shoes anymore even if they...

LEEJUNFAN

•9 years ago

1 Reply

Joint pain

Does anyone else suffer joint pain? I have had a blood test for rheumatoid arthritis but as will all the tests I have had since being diagnosed with FND it...

Does anyone else suffer joint pain? I have had a blood test for rheumatoid arthr...

PennyC

•9 years ago

5 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

Symptoms posts

Hello all.

Weird Stabbing Pain on Skin?

Throat constricting/breathing issues

FND Help! Please

FND/pelvic pain

Anyone with similar symptoms?

Just saw this via Neurology Journal ...

extreme muscle pain and stiffness/ spasms

Looking for Advice & Support

Temperature related Symptom Inquiry

Stimulated by Sensory Overload

Struggling with Loss of Appetite

Love life

Is it FND?

Has anyone's symptoms suddenly resolved?

Hormones and FND

How are you feeling?

Acceptance?

Patches/clusters goosebumps

Speech Loss following a Dissociative Seizure

Stimulated is this right? (New & Hey)

anyone else lost speech altogether

symptoms

Left sided sensory symptoms - hoping to feel less alone! Very depressed!

New symptoms

Just diagnosed with EOE

Mouth and throat?

I am inventing a new word.. "Bed" ercise

Footwear with FMD

Joint pain

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive