Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,971 members•3,226 posts

All posts for February 2024

chicken

Hi guysim fed up just had another fall in the morning. only seems to be in the morning does anyone experience these symptoms. I have had this since 2019 and...

Hi guysim fed up just had another fall in the morning. only seems to be in the m...

•11 months ago

Been left on my own what do I do.

Have any of you been through this. Been told by the doctors that there is nothing more they can do to help me and refuse to put my medication up. So spoke to...

Have any of you been through this. Been told by the doctors that there is nothin...

•11 months ago

FND Headache

As so know I am a for a teenage boy dx with CRPS and FND.Every school day I try to get him in (despite what he is going through) as attendance is only 30%....

As so know I am a for a teenage boy dx with CRPS and FND.Every school day I try ...

•11 months ago

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Guidance for your GP

Following the Re-Active Masterclass, I was sent guidance for my GP, which I sent them this morning and they acknowledged and confirmed would be passed onto...

Following the Re-Active Masterclass, I was sent guidance for my GP, which I sent...

•11 months ago

hormones

HI guys ive had fnd since 2019 it was a horrible time. this time im going through peri menaupase each time my hormones fluctuate . Speech acts up...

HI guys ive had fnd since 2019 it was a horrible time. this time im going throug...

•11 months ago

Stress

I asked my shrink to help me with all these different problems. "Keep taking Klonopin.... all your symptons are from stress..." not helpful.

I asked my shrink to help me with all these different problems. "Keep taking K...

•11 months ago

Stress and the Tapping Technique

Has anybody been introduced to this as therapy? It seems to have similar results to CBT in some clinical trials and I was curious. It first appeared as a...

Has anybody been introduced to this as therapy? It seems to have similar results...

•11 months ago

The 8 Senses and Sensory Systems

Following a blog I read by Kate Fox (Autistic Neurodivergent Substack writer), I was googling neurodivergent sensitivities and came across this...

Following a blog I read by Kate Fox (Autistic Neurodivergent Substack writer), I...

•11 months ago

If you have PNES, you may like to watch this. 'Why get emotional ?'

Understanding emotion in FND by Nicole Roberts at https://ucsfpsy.ch/33dNesn

Understanding emotion in FND by Nicole Roberts at https://ucsfpsy.ch/33dNesn

•11 months ago

Child worries of fnd mother

My daughter diagnosed with fnd is so unwell with symptoms that she is no longer able to look after her child. This is heartbreaking. Does anyone know of this...

My daughter diagnosed with fnd is so unwell with symptoms that she is no longer ...

•11 months ago

Nerve pain

HiI had a bad attack three weeks ago but the constant nerve pain/tingling hasn't subsided which is unusual. My anti depressants were changed last summer...

HiI had a bad attack three weeks ago but the constant nerve pain/tingling hasn't...

•11 months ago

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baffled

so I went to see the doctor last week as I was getting no better the person I seen was a old fashioned one who actually listened to me, So basically he said...

so I went to see the doctor last week as I was getting no better the person I se...

•11 months ago

The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series

I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with...

I think I may have FND. I have these jerks and subtle lurches that would not fal...

•11 months ago

FIND THE BEST NEUROREHABILILTATION

FIND THE BEST NEUROREHABILILTATION WITH THESE 9 QUESTIONS Use these 9 Questions to get your journey started on the right foot Have you been to therapy before...

FIND THE BEST NEUROREHABILILTATION WITH THESE 9 QUESTIONS Use these 9 Questions...

•11 months ago

Masterclass in FND by Re-Active

Sign up and save the date (I have 😊): https://reactive.mykajabi.com/FNDMasterclass

Sign up and save the date (I have 😊): https://reactive.mykajabi.com/FNDMastercl...

•11 months ago

First time writing.

Hello, I have an appointment due next week for EMG and Nerve Conduction Studies after my GP referred me to Neurophysiology. She put on my medical record "could...

Hello, I have an appointment due next week for EMG and Nerve Conduction Studies ...

•11 months ago

FND diagnosis

So I have had a long battle with getting to the bottom of my problems and on Tuesday I finally got all confirmed.I have been having symptoms for around 6 years...

So I have had a long battle with getting to the bottom of my problems and on Tue...

•11 months ago

New here, hello!

Hi!I had my second Pfizer jab in 2021 and went to bed as usual to find myself jerking uncontrollably. This continued and began to happen during the day. I was...

Hi!I had my second Pfizer jab in 2021 and went to bed as usual to find myself je...

•11 months ago

FND diagnosis and if you've been given help.

Hi. It was really nice to read Dave Rusell's post : "positive experience with neurologist and awaiting tests for further diagnosis" as nearly...

Hi. It was really nice to read Dave Rusell's post : "positive experience with ...

•11 months ago

Positive experience with Neurologist and awaiting test for further diagnosis

Had a very positive follow up with my Neurologist today. I was awaiting an appointment at the end of March, but I was on the cancellation list ...

Had a very positive follow up with my Neurologist today. I was awaiting an appoi...

•1 year ago

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Back to square 1.

I had a visit with a different psychiatrist yesterday. He didn't know what fnd was or pots. Or why do I think my symptoms are coming from my head? He just...

I had a visit with a different psychiatrist yesterday. He didn't know what fnd w...

•1 year ago

FND & School Attendance

Hi I recently had the disheartening news there was a high chance that my son would not be excepted into 6th form of his current school due to his attendence...

Hi I recently had the disheartening news there was a high chance that my son wou...

•1 year ago

FND & MS

I was diagnosed with FND first however after brain mri showed I had several demyelination lesions and a positive lumbar puncture was told I have multiple...

I was diagnosed with FND first however after brain mri showed I had several demy...

•1 year ago

Brain imaging for FND?

So according to Neurosymptoms.org there is "Brain Imaging and other studies starting to show us how and why the nervous system goes wrong" (see image;...

So according to Neurosymptoms.org there is "Brain Imaging and other studies star...

•1 year ago

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