Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,635 members • 2,940 posts

All posts for April 2018

Depression & FND

My partner was diagnosed with FND around a month ago. He’s has quite severe depression and FND was diagnosed as an onset of this. He’s having quite severe...

My partner was diagnosed with FND around a month ago. He’s has quite severe depr...

ClIffyuk

•6 years ago

22 Replies

FND Support North Herts

Hi, I was wondering if there were any support groups in this area or Hertfordshire. My partner has been recently diagnosed with FND and I think it would really...

Hi, I was wondering if there were any support groups in this area or Hertfordshi...

ClIffyuk

•6 years ago

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NEWLY DIAGNOSED FND

My partner was diagnosed around a month ago. He’s has quite severe depression and FBD was diagnosed as an onset of this. We’re looking for help & support that...

My partner was diagnosed around a month ago. He’s has quite severe depression an...

ClIffyuk

•6 years ago

1 Reply

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Help! I’ve been called in for a half way through assessment for my pip

Hi all, I’ve had pip now for a year and a half and had disability living allowance before that. Both pay for my hand controlled car that gives me the...

Hi all, I’ve had pip now for a year and a half and had disability living allowan...

lorettapalmer

•6 years ago

3 Replies

Hearing issues

Hi folks Recently got back into work 8 months ago and I noticed a huge difference in my hearing especially when other noise is going on... I can’t hear...

Hi folks Recently got back into work 8 months ago and I noticed a huge differenc...

andyglasgow2016

•6 years ago

2 Replies

VITAMIN B12

Hi everyone, I was diagnosed with FND in Jan but have been dealing with symptoms since last August, mostly sensory- dizziness tingling, numbness, headaches,...

Hi everyone, I was diagnosed with FND in Jan but have been dealing with symptoms...

feebee0609

•6 years ago

8 Replies

Noise triggers and FND

Hi everyone! My wife has become so sensitive to simple noise that it's like living on edge constantly and loud noises can put her body into spasm. Being...

Hi everyone! My wife has become so sensitive to simple noise that it's like liv...

LEEJUNFAN

•6 years ago

2 Replies

Involuntary body shaking

Hello! I am trying to get some answers. My daughter has involuntary body shaking, like body jerking and jolting. It happens mostly when she is sitting down...

Hello! I am trying to get some answers. My daughter has involuntary body shakin...

Kellygreen

•6 years ago

9 Replies

fnd and tourettes

hi tina here im having a whale of a time with this fnd business...im blurting choo..choo..cunt...fuck..bastard ..sorry to swear...i simply cant help it!!!...

hi tina here im having a whale of a time with this fnd business...im blurting ch...

pudsey11

•6 years ago

6 Replies

F.n.d sufferer

Hi all I'm Andy I was diagnosed in 2014 with CFS & CPS this is now upgraded to F.N.D with severe motor disorder. I struggle day to day and hide so much about...

Hi all I'm Andy I was diagnosed in 2014 with CFS & CPS this is now upgraded to F...

andy23269

•6 years ago

9 Replies

How do others cope? #Fnd #Nead #referrals 2018

last year i was diagnosed with fnd, I lost mobility in both legs & my left side weakness has caused endless obstacles but one of my biggest Was being diagnosed...

last year i was diagnosed with fnd, I lost mobility in both legs & my left side ...

Follow-YellowBrickRd

•6 years ago

8 Replies

Good points to having FND?

Hi Peeps Well as my day began as usual around 3am with nausea and I haven’t had a good night’s sleep like now it feels forever I thought could I think of...

Hi Peeps Well as my day began as usual around 3am with nausea and I haven’t ha...

DNE92

FND Hope UK•6 years ago

6 Replies

New to this

Hi all, It all started 2 years ago, I found myself unable to talk, walk, or even draw a square!!!. I couldn't communicate with anybody, I was hospitalised for...

Hi all, It all started 2 years ago, I found myself unable to talk, walk, or eve...

Hidden

•6 years ago

2 Replies

How many Carers for loved ones with FND have had to finish work completely?

Hi everyone! I would like some replies please, from Carers of loved ones with FND. What was it that finally made you give up work to become a Carer? Do any...

Hi everyone! I would like some replies please, from Carers of loved ones with F...

LEEJUNFAN

•6 years ago

3 Replies

Waiting list for Prof Edwards and recent info on Dr Mellors at Lishman unit please.

My friend has lost mobility in both legs, has left arm weakness, is bladder retentiveand has regular blackouts and non-epileptic seizures. She asked for a...

My friend has lost mobility in both legs, has left arm weakness, is bladder rete...

jamallen

•6 years ago

8 Replies

Excited!!!

Hi Guys Go to our Website Fndhope.org and Register for our very New Fnd Magazine. We are really excited about the 1st Edition being Finally Here. Have a good...

Hi Guys Go to our Website Fndhope.org and Register for our very New Fnd Magazine...

shurdygirl09

Moderator•6 years ago

1 Reply

Newly diagnosed need advice

Hi was just wondering if anyone has a story like my partners who went to see a neurologist and was just given a website at the end of the appointment. His...

Hi was just wondering if anyone has a story like my partners who went to see a n...

Anastasiasnook

•6 years ago

22 Replies

How do you get referred to the best FND specialist in the country If you are out of the area? I am willing to travel!

I was diagnosed with FND March this year but my neurologist has retired and not really set a proper plan in action I trust in. I feel abadoned and believe that...

I was diagnosed with FND March this year but my neurologist has retired and not ...

Fia1

•6 years ago

13 Replies

Told I have FND

Hello. After 2 days of mri’s due to loss of leg function (right side) I have been told I have FND. I also suffer from eye droop and severe eye twitch from any...

Hello. After 2 days of mri’s due to loss of leg function (right side) I have bee...

Vickyt123

•6 years ago

5 Replies

FND AWARENESS DAY!!

Our new FND Magazine first edition is now live! https://fndhope.org/fnd-magazine-volume-1-issue-1/ Register to receive Our Magazine, We are really excited...

Our new FND Magazine first edition is now live! https://fndhope.org/fnd-magazin...

salfnd

•6 years ago

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Lymphoma and FND

Hello all. I mentioned in a previous post over a year ago now that my journey with Lymphoma took me to various weird places. I was ill for a number of months...

Hello all. I mentioned in a previous post over a year ago now that my journey wi...

shandyhaggis

•6 years ago

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Hi to all who get

Iv had FND for many years now. It’s been hard as have lost many facilities, socialites etc. But there are great doctors out there who are helping with this...

Iv had FND for many years now. It’s been hard as have lost many facilities, soci...

Choolosa

•6 years ago

6 Replies

Understanding FND

Hi, i am new here. I have had problems with shaky legs, tremor, balance and sensory problems for 4 yrs now. Neurologist has just diagnosed me with FND. Been...

Hi, i am new here. I have had problems with shaky legs, tremor, balance and sens...

bap942

•6 years ago

3 Replies

Seizures in sleep

I have just woken up with a bitten tongue and feel so tired. Cant remember them however they were short and screamed with one of them and moved my legs and...

I have just woken up with a bitten tongue and feel so tired. Cant remember them ...

emmadans1996

•6 years ago

1 Reply

My friend has nead

My friend has nead. She is on healthunlocked. She's just had a bad seizure. She's tired etc.

My friend has nead. She is on healthunlocked. She's just had a bad seizure. She'...

samanthaash1993

•6 years ago

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FND and being on the change.

Hi everyone! My wife Kim has FND and she's 40 this November and I wish to know how being on the change for you ladies has affected your FND symptoms. Kim...

Hi everyone! My wife Kim has FND and she's 40 this November and I wish to know ...

LEEJUNFAN

•6 years ago

2 Replies

Wolfson Centre

Hi all, has anyone been to the Wolfson Centre for inpatient intensive physio? I've been referred there by Prof Edwards. I was told that because Glenn Nielsen's...

Hi all, has anyone been to the Wolfson Centre for inpatient intensive physio? I'...

Dot50

•6 years ago

9 Replies

Fnd or just crazy

Hi ive been mucked about for the past 5 years with medical issues and now struggling to function half the time the doctors ive seen insist its in my head and...

Hi ive been mucked about for the past 5 years with medical issues and now strugg...

Jayfranks2018

•6 years ago

10 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for April 2018

Depression & FND

FND Support North Herts

NEWLY DIAGNOSED FND

Help! I’ve been called in for a half way through assessment for my pip

Hearing issues

VITAMIN B12

Noise triggers and FND

Involuntary body shaking

fnd and tourettes

F.n.d sufferer

How do others cope? #Fnd #Nead #referrals 2018

Good points to having FND?

New to this

How many Carers for loved ones with FND have had to finish work completely?

Waiting list for Prof Edwards and recent info on Dr Mellors at Lishman unit please.

Excited!!!

Newly diagnosed need advice

How do you get referred to the best FND specialist in the country If you are out of the area? I am willing to travel!

Told I have FND

FND AWARENESS DAY!!

Lymphoma and FND

Hi to all who get

Understanding FND

Seizures in sleep

My friend has nead

FND and being on the change.

Wolfson Centre

Fnd or just crazy

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive