Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,615 members • 2,933 posts

All posts for June 2019

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I managed to source a second hand bed head on a good day. It had been undercoated already, so I just had to buy a tester pot of paint to match material I had...

I managed to source a second hand bed head on a good day. It had been undercoat...

•5 years ago

Having Hope/Happiness In What You Do

If you at this box everything is original. Try searching for this box and you will NOT find it. The logo I created myself and everything done was done by...

If you at this box everything is original. Try searching for this box and you w...

•5 years ago

Does your episodes last long?

Mine can last from 3hrs to 18 hrs

Mine can last from 3hrs to 18 hrs

•5 years ago

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Has anyone benefited from TMS therapy

I have had FND for four years now. As we all know basically Our recovery is up to us. I tried so many modalitiesAnd been making progress very slowly. I've...

I have had FND for four years now. As we all know basically Our recovery is up t...

•5 years ago

Introduction & Query

Hi all, a quick introduction, where do I start, first it is great to have found this forum and know that if I have FND I am not alone...hope thats not selfish...

Hi all, a quick introduction, where do I start, first it is great to have found ...

•5 years ago

FND and 'unexplained symptoms' - same thing?

Hi guys, quick question: are these two the same? I imagine they're probably not. But I went to see a neurologist recently that told me, 'I don't want to tell...

Hi guys, quick question: are these two the same? I imagine they're probably not....

•5 years ago

My legs feel groggy!

Do those with movement disorder get the feeling that your legs are at the end of their endurance, just by getting up and moving around. It's hard to describe....

Do those with movement disorder get the feeling that your legs are at the end of...

•5 years ago

Update as to my absence.

Hi friends. So sorry for my long absence. I have been again in and out of hospital like a yo-yo due to this horrible Neurological functional disorder and its...

Hi friends. So sorry for my long absence. I have been again in and out of hospi...

•5 years ago

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New FND research on neuro chemicals...it’s not in our heads. There is a basis & future treatment hopefully to follow...

Hysterical' Motor Symptoms Explained? Batya Swift Yasgur, MA, LSW June 17, 2019 1 Abnormally high levels of limbic glutamate may be at the root of...

Hysterical' Motor Symptoms Explained? Batya Swift Yasgur, MA, LSW June 17, 2019...

•5 years ago

Has Anyone Decreased Their FND to Almost Nothing?

Hi! So I have had a long journey and I have successfully managed to decrease my FND a lot compared to what I started with (don’t even want to remember my worst...

Hi! So I have had a long journey and I have successfully managed to decrease my ...

•5 years ago

Self-Therapy and The Desire For Improvement

https://quizlet.com/346744766/fnd-flash-cards/ I was doing research online for physical therapy and stumbled across a website and this web page was to be...

https://quizlet.com/346744766/fnd-flash-cards/ I was doing research online for ...

•5 years ago

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dissociative seizures?

hello! I'm learning words and phrases associated with my fnd symptoms. I get what I usually call a blank out, where my muscles usually go some degree of slack,...

hello! I'm learning words and phrases associated with my fnd symptoms. I get wha...

•5 years ago

Post-Mortem Brain Tissue Analysis on those w/FND?

Does anyone know if there have been any studies/analyses of post-mortem tissue on those diagnosed w/FND--and if not, why not? I cannot help but wonder if, just...

Does anyone know if there have been any studies/analyses of post-mortem tissue o...

•5 years ago

ASMR sensation, without stimulation

Hi all, Quick question - have any of you ever experienced a regular ASMR (Autonomous Sensory Meridian Response), that sort of pleasant tingling sensation in...

Hi all, Quick question - have any of you ever experienced a regular ASMR (Auton...

•5 years ago

Anyone Tried Any Hypnotherapy?

Hi all, Haven't posted in a while, as I've been trying to get my head around a new 'diagnosis'. Well, it isn't really a diagnosis, as I paid a lot of...

Hi all, Haven't posted in a while, as I've been trying to get my head around a n...

•5 years ago

Surgery and anesthesia with FND?

Have any of you undergone surgery with FND? I need to have a hysterectomy that would put me under for at least two hours and I’m scared how my brain is gonna...

Have any of you undergone surgery with FND? I need to have a hysterectomy that w...

•5 years ago

Turn it on its head

I have assumed that my body has had physical memories of abuse where I make random movements or muscle groups tense or tremor. I freeze mid walk and have had...

I have assumed that my body has had physical memories of abuse where I make rand...

•5 years ago

What do you do when everyone else around you starts to become numb or worn out by your disorder?

I was diagnosed with conversion disorder (or FND) just over 4 years ago. Although I haven’t had a seizure in almost a year, I still struggle a lot with my...

I was diagnosed with conversion disorder (or FND) just over 4 years ago. Althoug...

•5 years ago

Newbie

Hi all I've just been diagnosed with FND - I know nothing about it apart from how it has invaded my body and I now struggle daily with rotten symptoms. I don't...

Hi all I've just been diagnosed with FND - I know nothing about it apart from ho...

•5 years ago

The Armin-Labs German Lyme tests..who has gone this route?

How many European sufferers in here have gone the route of sending their bloods to Armin-Labs in Germany for the extensive blood work they offer to determine...

How many European sufferers in here have gone the route of sending their bloods ...

•5 years ago

Home investigation in hospital where I was for a week due to blackout and sleep Seizure's.

Hi friends, sorry for delay in replying to comments and messages, I was in hospital due to the Seizure's for a week and I was quite unwell.i had to leave...

Hi friends, sorry for delay in replying to comments and messages, I was in hospi...

•5 years ago

Practical assitance in Australia

Hi, For those of us who live in Australia I wondered where do you go if you need help? I just moved house and I am now an hour from family and friends. Today...

Hi, For those of us who live in Australia I wondered where do you go if you nee...

•5 years ago

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