Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

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I know Perez thinks that FND is common but the incidence stats quoted by the FND Feminists might suggest it's rare ...

... so here's the latest survey from the lovely Rare Barometer team which might be of interest to people here:...

... so here's the latest survey from the lovely Rare Barometer team which might ...

•6 months ago

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This may be of interest to people here who have Long Covid.

Research Review: Long COVID Is Not a Functional Neurologic Disorder - UK co-authors include Sarah Tyson and Nicola Clague Baker "We conclude that considering...

Research Review: Long COVID Is Not a Functional Neurologic Disorder - UK co-auth...

•6 months ago

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Research survey on brain fog in FND

Hi, my research team at the Monash Alfred Psychiatry Research Centre in Melbourne is conducting a survey aiming to characterise brain fog in different...

Hi, my research team at the Monash Alfred Psychiatry Research Centre in Melbourn...

•6 months ago

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Drum roll please (silent to avoid triggering anyone) ... registration for the Migraine World Summit is now OPEN :)

Register at MigraineWorldSummit.com to claim your free ticket for March 6-13, 2024. What is the Migraine World Summit? It’s a free, virtual event where the...

Register at MigraineWorldSummit.com to claim your free ticket for March 6-13, 20...

•1 year ago

This blog from David Tuller may be of interest to people who have been diagnosed with functional limb weakness.

https://virology.ws/.../trial-by-error-depression.../

https://virology.ws/.../trial-by-error-depression.../

•1 year ago

Just saw this on Facebook. Looks like an interesting research project.

Hi everyone! My name is Johanna Lind and I am looking for people from the age of 18+ to participate in my doctoral research project. This is for people who...

Hi everyone! My name is Johanna Lind and I am looking for people from the age of...

•1 year ago

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This may be of interest to people here who have been diagnosed with FND after a viral infection or as a result of vaccine injury.

https://virology.ws/.../trial-by-error-david-putrino-on.../ Good to hear that medical gaslighting got mentioned and that medically induced PTSD is becoming...

https://virology.ws/.../trial-by-error-david-putrino-on.../ Good to hear that...

•1 year ago

Late to the party, as usual, but Happy Balance Awareness Week, y'all :) Since I know there are people here who have balance issues, this ...

... survey may be of interest to the UK members. The info is via VEDA: Attention UK-based vestibular patients! There is a study being conducted that needs...

... survey may be of interest to the UK members. The info is via VEDA: Attentio...

•1 year ago

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This event may be of interest to people here, especially those in the UK.

Launching research findings on a project about gender, health care and energy limiting conditions. Join the launch event on Thursday 14 September. Register...

Launching research findings on a project about gender, health care and energy li...

•1 year ago

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2nd podcast from the FND roundtable panel now available.

https://bit.ly/3YRuKq7 It was prerecorded and came out on 29th August but I haven't had internet access for a while so have only just seen it/heard it.

https://bit.ly/3YRuKq7 It was prerecorded and came out on 29th August but I hav...

•1 year ago

This looks interesting :) I know people with PTSD who have benefited from EMDR ...

... so hope it will be beneficial to p/w FND too :) https://doi.org/10.1136/bmjopen-2023-073727

... so hope it will be beneficial to p/w FND too :) https://doi.org/10.1136/bmj...

•1 year ago

This has been updated recently and may be of interest to people here ...

https://www.sjogrensadvocate.com/post/all-in-your-head?fbclid=IwAR1APaT8e8ijgUovcI4do6irQUbI1uvYzN308RAxhgFVJMC2niA8Bptn6_A_aem_AXwyv0n_eVIb2Gl_TshiR1vqW2qxEoP_

https://www.sjogrensadvocate.com/post/all-in-your-head?fbclid=IwAR1APaT8e8ijgUov...

•1 year ago

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New article about the economic cost of FNDs. I tried clicking on the DOI link but it didn't work for me, so you may need to copy and paste.

Economic Cost of Functional Neurologic Disorders A Systematic Review Brian O'Mahony, Glenn Nielsen, Sallie Baxendale, Mark J. Edwards, Mahinda Yogarajah...

Economic Cost of Functional Neurologic Disorders A Systematic Review Brian O...

•2 years ago

Progress on Tuller et al's questioning of the actual prevalence of FND. As usual, I'd welcome your thoughts ...

https://virology.ws/.../trial-by-error-fnd-experts-agree.../

https://virology.ws/.../trial-by-error-fnd-experts-agree.../

•2 years ago

This may be of interest to people here who have been diagnosed with Fibromyalgia ...

As far as I can tell, a Fibromyalgia dx was/is often a gateway diagnosis to a FND dx which has always felt inappropriate to me since the tests for FND (eg the...

As far as I can tell, a Fibromyalgia dx was/is often a gateway diagnosis to a FN...

•2 years ago

This may be of interest to people here who have dystonia and/or tremors.

10.14802/jmd.22154

10.14802/jmd.22154

•2 years ago

Always fun when the researchers catch up with what patients have been saying for years :) I.E. that FND is a feminist issue.

http://dx.doi.org/10.1136/jnnp-2022-330192

http://dx.doi.org/10.1136/jnnp-2022-330192

•2 years ago

This is interesting and I hope they will look into the risk factors of certain medications that can cause FND symptoms

https://academic.oup.com/.../10.1093/brain/awac442/6843677

https://academic.oup.com/.../10.1093/brain/awac442/6843677

•2 years ago

Let’s talk about sex baby…

Okay, I want to share the physiological responses my body goes through when I orgasm. I can’t explain it BUT I know what’s causing it which is half the...

Okay, I want to share the physiological responses my body goes through when I o...

•3 years ago

FND STIGMA SURVEY

FND STIGMA SURVEY gathers the lived experience of those Dx with FND (& related disorders) & their encounter with stigma. Results will be shared throughout 8th...

FND STIGMA SURVEY gathers the lived experience of those Dx with FND (& related d...

Administrator•5 years ago

MORE RECENT RESEARCH

I previously posted an article on White matter and some felt it was a little old. This article, and I do not pretend to understand it all, was published 30th...

I previously posted an article on White matter and some felt it was a little old...

•5 years ago

WE NEED TO EXPLORE MORE

I found this a few years ago and like everyone else wonder about its' significance or not. It is also interesting that it also relates to Autism. Published in...

I found this a few years ago and like everyone else wonder about its' significan...

•5 years ago

RESEARCH OPPORTUNITY

'Living With Functional Movement Disorders' - research is being conducted by Sylwia Bazydlo, a student on the Clinical Psychology Doctorate programme at...

'Living With Functional Movement Disorders' - research is being conducted by Syl...

•6 years ago

World FND Week -Education Webinars

Join a webinar: https://fndhope.org/fnd-specialists/ Thursday- Q and A with FND specialist "International Work" Tim Nicholson Friday- Q and A "Finding a New...

Join a webinar: https://fndhope.org/fnd-specialists/ Thursday- Q and A with FND...

Administrator•6 years ago

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FND Research finds structural changes in grey matter

New research expands the knowledge of changes found in the structure of the brain in FND patients. Though, not useful for diagnosis yet. further proof that FND...

New research expands the knowledge of changes found in the structure of the brai...

Administrator•6 years ago

The brain in movement disorders

Given the lack of awareness and help for this alleged condition, I am keen to try and understand (as far as is possible), what is happening in my brain! Here,...

Given the lack of awareness and help for this alleged condition, I am keen to tr...

•6 years ago

Time to consider CBD?

I have a friend at work whos daughter suffers from FND. I have been doing a lot of research in to CBD oil and its benefits. I was doing research for her and...

I have a friend at work whos daughter suffers from FND. I have been doing a lot...

•6 years ago

FND Research Survey

Give your opinion on the direction of FND Research! Please complete the easy short survey with the following link: https://goo.gl/forms/h33JXgkmVvFdiRAj2

Give your opinion on the direction of FND Research! Please complete the easy sho...

Administrator•7 years ago

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Does Divalproex Help With Symptoms?

I was diagnosed with FND about 8 months ago. After trying many meds that did nothing for me I was put on Divalproex. It has reduced the discomfort of my...

I was diagnosed with FND about 8 months ago. After trying many meds that did not...

•7 years ago

Causes of FND - Trauma by medicine conflict

Hi everyone. I hope that you are all well and thriving. Please could I ask for some help in with research into causal factors of FND? In Nov 16...

Hi everyone. I hope that you are all well and thriving. Please could I ask for s...

•7 years ago

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