Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,634 members • 2,940 posts

All posts for March 2021

Frustrated about "anxiety"

I saw a new neurophysio yesterday and she kept trying to put everything down to me feeling upset or anxious (which I wasn't). I tried explaining to her that...

I saw a new neurophysio yesterday and she kept trying to put everything down to ...

Van604

•3 years ago

11 Replies

Puffy eyelid and face

A symptom of my condition is that my left check becomes puffy and my left eyelid. This used to happen if I was hungry, tired, stressed, when its really cold or...

A symptom of my condition is that my left check becomes puffy and my left eyelid...

AngieB68

•3 years ago

7 Replies

Fed up with no answers

Annoyed now with not being diagnosed in what i'm going thru & cant keeping going thru this as its killing me!.20 wks b4 i can see a neurologist & been...

Annoyed now with not being diagnosed in what i'm going thru & cant keeping going...

Di01

•3 years ago

7 Replies

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Work Capability Assessment

A quick update after waiting since last jan/Feb as you know I had my assessment been notified that I have a limited capability for work and work related...

A quick update after waiting since last jan/Feb as you know I had my assessment ...

paulc1011

•3 years ago

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FND and Mental Health Diagnosis

Hey ya'll 😆 I'm diagnosed FND (with seizures) and DID and there are times when I don't know where FND ends and DID begins. Sometimes, I'm dealing with both...

Hey ya'll 😆 I'm diagnosed FND (with seizures) and DID and there are times when...

BBSK

•3 years ago

2 Replies

End of My Rope

Feeling invalidated, alone, sad, and so drained. Emotionally, mentally, physically- I just feel so fed up. I have an autoimmune disorder and mental illness....

Feeling invalidated, alone, sad, and so drained. Emotionally, mentally, physical...

alaslizards

•3 years ago

3 Replies

Treatment for Dystonia (Baclofen)

BACLOFEN Baclofen made my body get larger and larger. It's gone down a bit but I am left with a spare tyre at the bottom of my abdomen. The rest of it looks...

BACLOFEN Baclofen made my body get larger and larger. It's gone down a bit but ...

Emily007

•3 years ago

7 Replies

Never give up hope

Our 27 year old daughter was diagnosed with FND over a year ago, and it’s been a roller coaster emotional time for all. Most days she would have up to 60...

Our 27 year old daughter was diagnosed with FND over a year ago, and it’s been a...

Sugartime

•3 years ago

4 Replies

fND and vaccinations

I got my vaccination at 3:10 yesterday was rudely awoken by some pretty crazy tremors shaking,migrane and vomiting.I’ve woke up this morning and have a sore...

I got my vaccination at 3:10 yesterday was rudely awoken by some pretty crazy tr...

CharlieG87

•3 years ago

7 Replies

Covid vaccination

Had my 1st vaccination at 6pm now got bad Headache off for a nap

paulc1011

•3 years ago

1 Reply

Hard choices to be made

Very hard times at the moment The one person whom I thought was being very supportive is now giving me a very hard time and I honestly feel like I want to end...

Very hard times at the moment The one person whom I thought was being very supp...

paulc1011

•3 years ago

4 Replies

Pulse in ear

Hi to all Hope you're all doing well Just a quick question. Has anyone with FND had a pulse on and off in their one ear? It's sort of like a pulsing feeling...

Hi to all Hope you're all doing well Just a quick question. Has anyone with FN...

whirlygirl16

•3 years ago

19 Replies

Meeting Others Like Me Functional Neurological Disorders

This morning at 8:am .I participated with my Neurologist and 9 lovely participants with various Neurological Diagnosis ,via Zoom Meeting ,it was inspiring...

This morning at 8:am .I participated with my Neurologist and 9 lovely participan...

faithhope421

•3 years ago

2 Replies

What was it like leading up to your diagnosis? Did you feel that you were taken seriously?

Hello, I am interested in hearing about others journey receiving FND diagnosis. Did you get much testing to rule out other possibilities? What resources and...

Hello, I am interested in hearing about others journey receiving FND diagnosis. ...

alaslizards

•3 years ago

14 Replies

Permanent jerky vision, akinatopsia

Who else has this problem on a permanent basis, 24/7? I know it can happen for a short time with migraines and seizures but I have it all the time apparently...

Who else has this problem on a permanent basis, 24/7? I know it can happen for a...

Iopyo

•3 years ago

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Work capability assessment

Finally after 18 months had my work capability assessment done by phone very nice doctor to be honest

Finally after 18 months had my work capability assessment done by phone very nic...

paulc1011

•3 years ago

2 Replies

Why on TV do I see pixelated outlines when others don’t?

Why can I see a pixelated outline of objects on my TV when other family members cannot? Im presuming they are “real” pixels because they are made up of...

Why can I see a pixelated outline of objects on my TV when other family members ...

Iopyo

•3 years ago

12 Replies

Friends

I want to see if there are any teens or parents of teens who have fnd because I feel alone.

I want to see if there are any teens or parents of teens who have fnd because I ...

Vick22

•3 years ago

4 Replies

Gastric Symptoms

Hi, I'm joining Health Unlocked because my health is deteriorating. I had a head injury 9 years ago and this led to my being diagnosed with FND. One of the...

Hi, I'm joining Health Unlocked because my health is deteriorating. I had a hea...

Yasmin-C

•3 years ago

3 Replies

Its been a long time since this all started!

Hi all, I hope you are all doing well. I need some help i have been suffering with "FND" for 6 years now. I thought I had learnt to deal with the seizures a...

Hi all, I hope you are all doing well. I need some help i have been suffering w...

Thereisstillhopejay

•3 years ago

12 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for March 2021

Frustrated about "anxiety"

Puffy eyelid and face

Fed up with no answers

Work Capability Assessment

FND and Mental Health Diagnosis

End of My Rope

Treatment for Dystonia (Baclofen)

Never give up hope

fND and vaccinations

Covid vaccination

Hard choices to be made

Pulse in ear

Meeting Others Like Me Functional Neurological Disorders

What was it like leading up to your diagnosis? Did you feel that you were taken seriously?

Permanent jerky vision, akinatopsia

Work capability assessment

Why on TV do I see pixelated outlines when others don’t?

Friends

Gastric Symptoms

Its been a long time since this all started!

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive