Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,624 members • 2,934 posts

All posts for March 2019

Newly diagnosed

Was newly diagnosed with FND ***5 days ago*** and not sure where to begin in dealing with this condition. The neurologist just basically said you don’t have MS...

Was newly diagnosed with FND ***5 days ago*** and not sure where to begin in dea...

laylagirl4

•5 years ago

19 Replies

How Can I Help

My fiance has fnd and has almost every symptom of it. We are at a long distance from each other so it's hard to console her the way I would like to. But I...

My fiance has fnd and has almost every symptom of it. We are at a long distance ...

FndFiance

•5 years ago

4 Replies

newly diagnosed....

My name is Agnes and i have been diagnosed with fnd 2 days ago...My symptoms started 5 months ago which included severe upper back pain, pins and needles,...

My name is Agnes and i have been diagnosed with fnd 2 days ago...My symptoms st...

Agnes78

•5 years ago

16 Replies

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Hereditary FND??

So recently diagnosed with FND. Main issue is chronic fatigue and pain/weakness in limbs. Inability to control eye muscles and other things. Anyhow. My sister...

So recently diagnosed with FND. Main issue is chronic fatigue and pain/weakness ...

Pendulum

•5 years ago

1 Reply

FND could be ME

I was diagnosed with ME at 32 at 47 i have been diagnosed with FND. I have read ME is a progressive illness with very similar symptoms. Dose anybody feel like...

I was diagnosed with ME at 32 at 47 i have been diagnosed with FND. I have read ...

Jessdonna

•5 years ago

9 Replies

But I would walk 500 miles...And I would walk 500 more

A journey of 1000 miles begins with a single step. Isn't that how that saying goes? That is a simple and profound statement for most, but for me, 5 years...

A journey of 1000 miles begins with a single step. Isn't that how that saying g...

Gud4Ewe

•5 years ago

5 Replies

Great News from Northern Ireland

As everyone knows there is little or no servicesw for Functional Neurological Disorder out there for sufferers and their carers. Wel I was at the first ever...

As everyone knows there is little or no servicesw for Functional Neurological Di...

Dave_1

•5 years ago

2 Replies

Beginning to investigate my diagnosis

Hi everyone. A few years ago I started getting odd numbness... got the GP to send me to a neurologist... did scans, gave history (childhood in the 70's and...

Hi everyone. A few years ago I started getting odd numbness... got the GP to sen...

M3rry

•5 years ago

8 Replies

Trying to be Brave

Just a rant I guess. Doing my best to stay positive. I got to university and my tremoring just abruptly started. Having difficulty walking and I sat down in a...

Just a rant I guess. Doing my best to stay positive. I got to university and my ...

shali_queen

•5 years ago

6 Replies

I just got an appointment with professor Mark Edwards

For June 11th. Feeling so grateful right now, but I won’t be depending on him or this appointment - it just feels so good to get a second opinion and possibly...

For June 11th. Feeling so grateful right now, but I won’t be depending on him or...

angelina22

•5 years ago

7 Replies

One very confused woman

I am bamboozled by what is causing so much pain in my tired beaten up pain ridden body a year ago I was diagnosed with FND which I knew nothing about as I...

I am bamboozled by what is causing so much pain in my tired beaten up pain ridd...

Celticat

•5 years ago

5 Replies

My 9 year old has fnd

Hi i am a mum of a 9 year old girl who last week got told she has fnd. We have never heard of this and was wondering if others could give us any advice of what...

Hi i am a mum of a 9 year old girl who last week got told she has fnd. We have n...

Mum06

•5 years ago

22 Replies

Please sign and share petition for Governent to Increase funding for multi-disciplinary treatment centres for FND Patients.

https://petition.parliament.uk/petitions/229614 We need another 5k signatures by 23rd April ! It’s a lot but we have way more signatures than last time saw...

https://petition.parliament.uk/petitions/229614 We need another 5k signatures by...

Lucy-15

•5 years ago

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WORLD FND WEEK 7TH TO 13TH APRIL - AWARENESS CAMPAIGN FOR DND

HEY GUYS!! It’s WORLD FND WEEK 7th to 13th April. Here is the webpage page with links to t-shirts and warriors applications!! There will be lots of webinars...

HEY GUYS!! It’s WORLD FND WEEK 7th to 13th April. Here is the webpage page with ...

DawnFNDHope

Moderator•5 years ago

2 Replies

Joint hypermobility - and anything else we can (or can’t) think of (right now)

I thought others here might be interested in this. I went to what was called a ‘workshop’ on understanding fnd last week, run by Mark Edwards. One of the...

I thought others here might be interested in this. I went to what was called a ‘...

artmom

•5 years ago

3 Replies

Ongoing headaches with FND.

Hi everyone, I'd like to thank you all for answering my questions in my previous blog regarding my wife's Shivering symptoms and burning sensations. She gets...

Hi everyone, I'd like to thank you all for answering my questions in my previou...

LEEJUNFAN

•5 years ago

8 Replies

Shaking and stuttering

Hiya all I’m new I have fibromyalgia and today I started shaking and stuttering for about 3 hours. It’s got better for a bit I’m so scared.

Hiya all I’m new I have fibromyalgia and today I started shaking and stuttering ...

Bethan88

•5 years ago

1 Reply

Advice on dealing with symptoms

Hi there. This is my first time posting and i have only had a formal diagnosis of FND since February 1st of this year,so i am still learning about this...

Hi there. This is my first time posting and i have only had a formal diagnosis o...

wheelshere

•5 years ago

5 Replies

GDNF Parkinson's Disease Trial - potential for FND?

Recently, there's been a documentary on the BBC about a drug trail for Parkinson's Disease. It was rather sad to watch because although some improved on the...

Recently, there's been a documentary on the BBC about a drug trail for Parkinson...

barny1

•5 years ago

2 Replies

Is my mystery neuropathy FND?

Hi everyone In 2013 I developed overnight neuropathic pain. After many crying trips to the GP, they just said I have vulvodynia. The mystery is that I simply...

Hi everyone In 2013 I developed overnight neuropathic pain. After many crying ...

Hidden

•5 years ago

7 Replies

CONNECTING OTHERS FND

HELLO IS THERE ANY ONE ON THE ISLE OF WIGHT WITH FND, LIKE TO CATCH UP SEE HOW YOUR COPYING, WITH THE DIFFICULTIES XXX REGARD JAMIE XXX

HELLO IS THERE ANY ONE ON THE ISLE OF WIGHT WITH FND, LIKE TO CATCH UP SEE HOW Y...

Hidden

•5 years ago

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for March 2019

Newly diagnosed

How Can I Help

newly diagnosed....

Hereditary FND??

FND could be ME

But I would walk 500 miles...And I would walk 500 more

Great News from Northern Ireland

Beginning to investigate my diagnosis

Trying to be Brave

I just got an appointment with professor Mark Edwards

One very confused woman

My 9 year old has fnd

Please sign and share petition for Governent to Increase funding for multi-disciplinary treatment centres for FND Patients.

WORLD FND WEEK 7TH TO 13TH APRIL - AWARENESS CAMPAIGN FOR DND

Joint hypermobility - and anything else we can (or can’t) think of (right now)

Ongoing headaches with FND.

Shaking and stuttering

Advice on dealing with symptoms

GDNF Parkinson's Disease Trial - potential for FND?

Is my mystery neuropathy FND?

CONNECTING OTHERS FND

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive