Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,971 members•3,226 posts

All posts for March 2020

Join us for World FND Month

APRIL IS WORLD FND MONTH! In its 8th year of spreading awareness, FND Hope continue to support members & understand many are effected by COVID19. We are here...

APRIL IS WORLD FND MONTH! In its 8th year of spreading awareness, FND Hope conti...

DawnFNDHope

•5 years ago

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No access to physio & other service providers due to Covid-19

Our state, and most bordering us, have been shut down. No non essential travel is allowed. I agree with this...we have to get this under control. There are...

Our state, and most bordering us, have been shut down. No non essential travel i...

Daesin

•5 years ago

1 Reply

Change to the UK law regarding being sectioned

Since the outbreak of COVID-19 the UK laws about being sectioned under the Mental Health Act have changed and mean that only one doctor is needed to section...

Since the outbreak of COVID-19 the UK laws about being sectioned under the Ment...

210272

•5 years ago

11 Replies

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Random Appearing Goosebumps

I also have had this issue for two weeks now. It started just after I got a CT scan with contrast. I thought it might be a result of the iodine IV, however it...

I also have had this issue for two weeks now. It started just after I got a CT s...

Michelbel02

•5 years ago

3 Replies

Coping during Stress....

I hate it when when something happens/ someone causes me stress and my brain/ body just reacts so stupidly and there's nothing you can do, so I try to distract...

I hate it when when something happens/ someone causes me stress and my brain/ bo...

Robyn83

•5 years ago

4 Replies

It's so hott!

What's the deal w/ all the drenching sweats?

DeFranacesco

•5 years ago

4 Replies

BBC2 Tonight -Hospital

UK, 9pm tonight, (19th March) programme coming from a neurological hospital? Talking about find and treatments.

UK, 9pm tonight, (19th March) programme coming from a neurological hospital? Ta...

Dot50

•5 years ago

11 Replies

Last hope

Hi all, I’m really struggling with symptoms. I’m unable to open my mouth, chew, talk, walk, transfer on my own, have lost the use of my arms and have major...

Hi all, I’m really struggling with symptoms. I’m unable to open my mouth, chew, ...

Stanleyleonard12

•5 years ago

2 Replies

COVID-19 and FND

COVID-19 and Functional Neurological Disorder - https://mailchi.mp/…/covid-19-and-functional-neurological-d… Register for upcoming March 19th Webinar and...

COVID-19 and Functional Neurological Disorder - https://mailchi.mp/…/covid-19-an...

FND_

Administrator•5 years ago

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I've been reading about the ...

... Largest Genetic Map of Psychiatric Disorders So Far (if you copy and paste that into google, the article will come up). I wonder if FND hasn't been...

... Largest Genetic Map of Psychiatric Disorders So Far (if you copy and paste t...

210272

•5 years ago

Be the first to reply

Happy Brain Awareness Week

Something you might want to be aware of is that neuro-psychiatrists in the UK are at liberty to send different a different 'copy' of notes to patients than...

Something you might want to be aware of is that neuro-psychiatrists in the UK ar...

210272

•5 years ago

Be the first to reply

FND STIGMA SURVEY

FND STIGMA SURVEY gathers the lived experience of those Dx with FND (& related disorders) & their encounter with stigma. Results will be shared throughout 8th...

FND STIGMA SURVEY gathers the lived experience of those Dx with FND (& related d...

FND_

Administrator•5 years ago

17 Replies

World FND Month - APRIL 2020

We have learned in ou the 8 years of Awareness programs that 1. A day of FND highlight= remind patients of their disorder 2. A week FND highlight= strong...

We have learned in ou the 8 years of Awareness programs that 1. A day of FND h...

hope4fnd

Group Admin•5 years ago

13 Replies

Anyone get approved Disability in the U.S.?

I have been in bad shape unable to work since 2014 when I filed for Social Security Disability. Although I was recommended by the Feds own experts to be...

I have been in bad shape unable to work since 2014 when I filed for Social Secur...

Hidden

•5 years ago

3 Replies

I found this interesting and would welcome your thoughts.

Since drs are instructed to ignore the info from the physical records when making the conversion disorder/FND diagnosis I wonder if that will apply to people...

Since drs are instructed to ignore the info from the physical records when makin...

210272

•5 years ago

1 Reply

Short Term Disability Interrupted.

I need help navigating through short/long term disability processes. My treatment has been interrupted several times because of the process of...

I need help navigating through short/long term disability processes. My treatmen...

IndyFND2020

•5 years ago

2 Replies

Muscular and joint pain

PAIN RELEIF have been a FND sufferer for more than 5 years. I am in constant pain all over my body.Iwent to the Doctor who say she couldn’t give me any...

PAIN RELEIF have been a FND sufferer for more than 5 years. I am in constant pa...

Mikey1960

•5 years ago

4 Replies

Feedback following rare conditions meetings in the UK that I think are relevant to everyone here, whether or not you are 'living rare'.

Hi All, I've recently been attending some wonderful events in London and elsewhere, focussing on rare conditions but covering general medicine too since many...

Hi All, I've recently been attending some wonderful events in London and elsewhe...

210272

•5 years ago

4 Replies

FND CMIT

Hi l suffer from FND for 18 months come on with right shoulder movement getting slower then my right side of my body. I'm about to try Constricted Induced...

Hi l suffer from FND for 18 months come on with right shoulder movement getting ...

ClarkStu

•5 years ago

1 Reply

FND does not define me

Hello Everyone! Today I am feeling very hopeful and glad to be alive. It isn't always that way for me. How tragic that any one of us should feel that way,...

Hello Everyone! Today I am feeling very hopeful and glad to be alive. It isn't...

tryingtobehopeful

•5 years ago

12 Replies

FND, POTS and non-epileptic seizures

Hi all, Anyone out there relate to this combination of things? I was gardening today for about 20 minutes and I was getting tired but not too badly. Then I...

Hi all, Anyone out there relate to this combination of things? I was gardening t...

Juli99

•5 years ago

6 Replies

new fnd diagnosis

new here. still coming to terms with fnd diagnosis.

Hidden

•5 years ago

5 Replies

Extreme pain when arm locks up

Hi The past few months have been terrible, I go to sleep and a few hours later I’m awoken by Pain extreme pain and hand has swollen to what I call pudding...

Hi The past few months have been terrible, I go to sleep and a few hours later I...

Mygeordiebud

•5 years ago

4 Replies

The Dr literally shut down ....

Today was a follow up with my neurologist. As I have been hospitalized and had several tests done it was expected that we would review things today. Well, uhm,...

Today was a follow up with my neurologist. As I have been hospitalized and had s...

Daesin

•5 years ago

14 Replies

Love life

What's your sex/relationship like with FND?

Lolastar

•5 years ago

2 Replies

True hope for FND and Chronic Pain

I haven' t posted to this site before, but I've read many people's posts. I have to say that sometimes reading the posts did nothing but take away my hope. My...

I haven' t posted to this site before, but I've read many people's posts. I have...

ClayKitten

•5 years ago

20 Replies

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All things Functional Neurological Disorder Symptoms FND Hope(36)

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for March 2020

Join us for World FND Month

No access to physio & other service providers due to Covid-19

Change to the UK law regarding being sectioned

Random Appearing Goosebumps

Coping during Stress....

It's so hott!

BBC2 Tonight -Hospital

Last hope

COVID-19 and FND

I've been reading about the ...

Happy Brain Awareness Week

FND STIGMA SURVEY

World FND Month - APRIL 2020

Anyone get approved Disability in the U.S.?

I found this interesting and would welcome your thoughts.

Short Term Disability Interrupted.

Muscular and joint pain

Feedback following rare conditions meetings in the UK that I think are relevant to everyone here, whether or not you are 'living rare'.

FND CMIT

FND does not define me

FND, POTS and non-epileptic seizures

new fnd diagnosis

Extreme pain when arm locks up

The Dr literally shut down ....

Love life

True hope for FND and Chronic Pain

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive