Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,971 members•3,226 posts

All posts for October 2019

FND review of diagnosis

I would like to have a contact with Dr Jon Stone to pass on my e mail sent today to the Team responsible for my diagnosis of FND which I disagree with how do I...

I would like to have a contact with Dr Jon Stone to pass on my e mail sent today...

eviedotty

•5 years ago

8 Replies

Blackouts. Does everyone here have them?

I don’t have blackouts or seizures and from reading various posts on this site, I count myself as very blessed. My symptoms are all nerve related in the sense...

I don’t have blackouts or seizures and from reading various posts on this site, ...

JustDomUK

•5 years ago

3 Replies

Claiming Advice for F.N.D.

Hi i am Spanner who has severe FND, i haven't work for 2 years, but because i look alright trying to get U.C. to believe that all my symptoms affect my daily...

Hi i am Spanner who has severe FND, i haven't work for 2 years, but because i lo...

Spanner46

•5 years ago

9 Replies

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My daughter has FND and CFS is there any doctor's out there who really no what doing ?

Hi my name is Kerrie and my 17 year old daughter was diagnosed with FND and CFS her neurologists has put her in meds and basically are saying there is not much...

Hi my name is Kerrie and my 17 year old daughter was diagnosed with FND and CFS ...

Kerriekayci

•5 years ago

13 Replies

New here and fairly new diagnosis of FND

Hey y’all. I just joined today. I was diagnosed with FND over the summer after years of no results and “perfectly normal” testing. I’ve had symptoms...

Hey y’all. I just joined today. I was diagnosed with FND over the summer after...

Mama_Bear_To_4

•5 years ago

7 Replies

Chiropractic question

Just wondering if anyone has tried chiropractic?

Paddoodlz

•5 years ago

3 Replies

How do we report misdiagnosis with 'FND' or when the diagnosis hasn't been made for the acceptable reasons?

When I got re-diagnosed with the rare neuro condition I have, I asked how I could report the misdiagnosis I'd been given between the original diagnosis and the...

When I got re-diagnosed with the rare neuro condition I have, I asked how I coul...

210272

•5 years ago

13 Replies

FND and Hyperacaussis

Hi, does anyone else suffer with these 2. i have recently spent the last 2 weeks constantly at AnE with one fall after another, the sad part is my so called...

Hi, does anyone else suffer with these 2. i have recently spent the last 2 weeks...

tatiyana

•5 years ago

3 Replies

I’m at my wits end

Hi I’m 26 and was diagnosed with FND approximately 2 and a half years ago. Initially I was admitted to hospital for 6 weeks of testing. The one thing they did...

Hi I’m 26 and was diagnosed with FND approximately 2 and a half years ago. Initi...

Stanleyleonard12

•5 years ago

2 Replies

Jon Stone's 'Bare essentials' paper

What's your favourite/least favourite part of this paper?

210272

•5 years ago

49 Replies

I have tried most everything could this be the miracle cure

I have suffered from this horrible thing the doctors call FND now for five years. I have exhausted much time and money in many modalities, Nutrition,...

I have suffered from this horrible thing the doctors call FND now for five years...

jlbiggs

•5 years ago

10 Replies

FND or finally not diagnosed

FND sucks the life out of you. 6 years and praying for a miracle. FND is a cop out diagnosis when doctors don’t know what the real issue is. We need more...

FND sucks the life out of you. 6 years and praying for a miracle. FND is a cop o...

Malbari

•5 years ago

7 Replies

Auras

Does anyone experience auras before they have a seizure? When I’ve had seizures I usually can remember what happened when I come to. I just would like to...

Does anyone experience auras before they have a seizure? When I’ve had seizures...

Louray920

•5 years ago

4 Replies

Hello, Pls as a seizure patient can I start a keto diet?

Hello, as a seizure patient, can I start a keto diet???

Firdau

•5 years ago

2 Replies

Struggling to accept FND diagnosis.

I am a 21 year old male with no prior health issues at all, I have not even really had a proper cold. 2 months ago I got a bad case of dandruff, extremely...

I am a 21 year old male with no prior health issues at all, I have not even real...

Hidden

•5 years ago

32 Replies

Pots Syndrome

Hi I’m Pixie I suffer with Pots Syndrome does anyone else?

PixieCal

•5 years ago

3 Replies

Neurologists U.K.

Hi Please can you advise what consultants you have personally dealt with, that have understood FND and know how to empathise. I’d really like to find a...

Hi Please can you advise what consultants you have personally dealt with, that ...

JustDomUK

•5 years ago

2 Replies

Help finding info

Just been diagnosed with fnd need to places I can go or talk to for help regarding this condition as I drive for a living and looks like I'm going to lose my...

Just been diagnosed with fnd need to places I can go or talk to for help regardi...

paulc1011

•5 years ago

6 Replies

Equinox and Solstice relapses

It’s weird and probably coincidence but I notice my major relapses occur around the times of the Earths equinoxes and solstices (March, June, September,...

It’s weird and probably coincidence but I notice my major relapses occur around ...

AjaStar

•5 years ago

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FND & Fibromyalgia

I am a 74-year-old, reasonably fit man and live near Brighton. I was diagnosed with FND last week by Dr Khan at St Georges Hospital after many years of...

I am a 74-year-old, reasonably fit man and live near Brighton. I was diagnosed w...

Rysat

•5 years ago

2 Replies

FND support

Hi all. I’m really struggling. After a month of crazy weird neurological symptoms, several neurological exams, a million blood tests, an MRI, and a LP, I was...

Hi all. I’m really struggling. After a month of crazy weird neurological sympt...

Devvy

•5 years ago

4 Replies

Losing hope of getting over fnd

Hi All I don’t post very often but always look at how you all are coping with this horrible disorder. I’ve been nearly 9 years with funcational gait disorder...

Hi All I don’t post very often but always look at how you all are coping with th...

lorettapalmer

•5 years ago

15 Replies

Interesting survey reported in the BMJ

https://jnnp.bmj.com/content/83/3/248

210272

•5 years ago

12 Replies

Improvement with herbal life on fnd

Hi I was diagnosed for fnd but now am trying to control it though natural herbs so I feel some change with my life the only problem still with out change is...

Hi I was diagnosed for fnd but now am trying to control it though natural herbs ...

Kasawo

•5 years ago

2 Replies

Please help...

Hi my hubby was diagnosed with FND a few months ago after 2 years of gradually worsening spasms in his right arm and leg. He has brain fog, has developed a...

Hi my hubby was diagnosed with FND a few months ago after 2 years of gradually w...

Gizzy13

•5 years ago

12 Replies

Just Putting This Out There Don't Get Ribbed Off By GPs or Anybody! Believe in the power of Self...

Hello Everyone, Hope today finds you well😊 I have suffered for over 22 plus years. Basically everything begun to destruct my crazy ride with the devil...

Hello Everyone, Hope today finds you well😊 I have suffered for over 22 plus y...

Lullee

•5 years ago

5 Replies

Let your voice be heard- Survey

Let your voice be heard TERMINOLOGY SURVEY FND Hope International is conducting a survey of the terminology used for seizures (also called psychogenic or...

Let your voice be heard TERMINOLOGY SURVEY FND Hope International is conducting ...

FND_

Administrator•5 years ago

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Vertigo

Hi guys, can't believe I am developing something new every week... now its spinning and dizziness, can't move my eyes, makes me nauseous. I am so...

Hi guys, can't believe I am developing something new every week... now its spin...

Agnes78

•5 years ago

22 Replies

Cursed Or Just Wired Differently.

Hi, I'm new to forums. I have been suffering for 22 years with every symptom & some of FND. Feel free to ask questions as I've been riding this crazy...

Hi, I'm new to forums. I have been suffering for 22 years with every symptom & s...

Lullee

•5 years ago

3 Replies

Treatment at the national hospital for neurology and neurosurgery

In May I went into Queen's Square for a month of inpatient treatment. I had waited two years from being referred to Professor Edwards to actually getting into...

In May I went into Queen's Square for a month of inpatient treatment. I had wai...

BuntyP

•5 years ago

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for October 2019

FND review of diagnosis

Blackouts. Does everyone here have them?

Claiming Advice for F.N.D.

My daughter has FND and CFS is there any doctor's out there who really no what doing ?

New here and fairly new diagnosis of FND

Chiropractic question

How do we report misdiagnosis with 'FND' or when the diagnosis hasn't been made for the acceptable reasons?

FND and Hyperacaussis

I’m at my wits end

Jon Stone's 'Bare essentials' paper

I have tried most everything could this be the miracle cure

FND or finally not diagnosed

Auras

Hello, Pls as a seizure patient can I start a keto diet?

Struggling to accept FND diagnosis.

Pots Syndrome

Neurologists U.K.

Help finding info

Equinox and Solstice relapses

FND & Fibromyalgia

FND support

Losing hope of getting over fnd

Interesting survey reported in the BMJ

Improvement with herbal life on fnd

Please help...

Just Putting This Out There Don't Get Ribbed Off By GPs or Anybody! Believe in the power of Self...

Let your voice be heard- Survey

Vertigo

Cursed Or Just Wired Differently.

Treatment at the national hospital for neurology and neurosurgery

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive