Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,638 members • 2,940 posts

All posts for August 2023

FND Treatment

Hey everyone, I'm a caregiver of a family member who was diagnosed with FND back in July. Our journey has had its fair share of challenges, as I'm sure many...

Hey everyone, I'm a caregiver of a family member who was diagnosed with FND bac...

MichelleL_BlueFaery

•8 months ago

14 Replies

FND, Diet and Gut

Well, I am discovering a lot now about my condition. Just diagnosed earlier this year. I was having almost daily seizures for about 6 months. For me the...

Well, I am discovering a lot now about my condition. Just diagnosed earlier th...

Goodliving

•8 months ago

6 Replies

visual disturbances and eye problems

Hi everyone, If have moth FND & FM and have had some strange things going on , does anyone have strange vision. I see eye floaters all day when my eyes are...

Hi everyone, If have moth FND & FM and have had some strange things going on ,...

Loobyloo1966

•8 months ago

12 Replies

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I found this very moving and would welcome your thoughts. It was posted on World Brain Day last year (I think).

https://www.brainandspine.org.uk/gordons-story/

210272

•8 months ago

2 Replies

I don’t know what to do-I have an FND diagnosis but nothing after that

Let me explain-I was diagnosed less than 2 years ago (don’t know exactly when). I have severe symptoms (especially spinal pain) but am receiving no treatment....

Let me explain-I was diagnosed less than 2 years ago (don’t know exactly when). ...

NotASadist

•8 months ago

4 Replies

Neurosym

Morning, Did anyone else see this article (advert!?) in the guardian today about the vagus nerve and this device? Wondering if anyone here has tried it with...

Morning, Did anyone else see this article (advert!?) in the guardian today abou...

tinygianthuman

•8 months ago

5 Replies

newly diagnosed

I was diagnosed with FND a month ago. My story is a bit of a tough one. I got tinnitus from covid infection Nov 22 then woke up with crazy internal tremors and...

I was diagnosed with FND a month ago. My story is a bit of a tough one. I got ti...

Zomo101

•8 months ago

9 Replies

Update re FND podcasts via Neurology Journal and request for info re the dx of Functional Cognitive Disorder ...

... apparently the next two episodes of the FND Roundtable discussions have already been recorded and will be available sometime during the next 4 - 5 weeks....

... apparently the next two episodes of the FND Roundtable discussions have alre...

210272

•8 months ago

7 Replies

Weird pain on top of the foot

Hello everyone! I have been suffering from neck /upper back pain for a few days now. Last night, I felt a sharp like (shock pulsating pain that resembles Dr...

Hello everyone! I have been suffering from neck /upper back pain for a few days...

Minaaa

•8 months ago

2 Replies

37 M, Functional Tremor, with hyperreflexia, dysphagia, SBD, and urinary incontinence. All diagnosed.

How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the...

How can I have so many positive neurological findings and tests and be told that...

Hidden

•8 months ago

10 Replies

I’m done but in a good way

MESSAGE FROM HU SUPPORT: This post contains information that could be upsetting. If you are feeling vulnerable, do take care if you choose to read this post....

MESSAGE FROM HU SUPPORT: This post contains information that could be upsetting....

DogPurple

•8 months ago

14 Replies

back again wrapped in depression

I come now feeling depressed and defeated. I feel mostly sad than mad. I am angry about life. I had enough of people breaking my heart, by leaving me to start...

I come now feeling depressed and defeated. I feel mostly sad than mad. I am angr...

KingkittyS

•8 months ago

2 Replies

Perimenopause has worsened FND symptoms

Hi I’m 50 years old and was diagnosed with FND in 2019 after being misdiagnosed since 2008. My symptoms were well under control until I went into...

Hi I’m 50 years old and was diagnosed with FND in 2019 after being misdiagnosed ...

Broganfluffer

•9 months ago

16 Replies

fellow fnd sufferers!

Hi I’m 44 years old, and was diagnosed with fnd in February 2023, after 5 long years of suffering. I had different scans, X-rays, all of which said I was ok. I...

Hi I’m 44 years old, and was diagnosed with fnd in February 2023, after 5 long y...

Lionelritchie

•9 months ago

1 Reply

FND Diagnosis

Hi I was recently diagnosed with FND after 20 years of on and off symptoms. My main symptoms are tremors and weakness in my legs. My question is I have...

Hi I was recently diagnosed with FND after 20 years of on and off symptoms. My m...

CrystalBeach1

•9 months ago

6 Replies

Jaw Pain - Anyone suffering with TMJD

I haven’t seen an FND specialist yet, but have suffered with TMJD pain for over 8 years, caused by my jaw muscles being in constant spasm. My current...

I haven’t seen an FND specialist yet, but have suffered with TMJD pain for over ...

fifields

•9 months ago

6 Replies

FND related headaches

Is anyone experiencing migraine like headaches with FND? I have some very bad days, brain MRI was normal

Is anyone experiencing migraine like headaches with FND? I have some very bad da...

Simona35

•9 months ago

16 Replies

Fatigue - definition

Hi everyone, I have been thinking lately that when I am telling my Drs, physio etc that I have fatigue that they are interpreting this as “Sleepiness” and...

Hi everyone, I have been thinking lately that when I am telling my Drs, physio...

Zozo87

•9 months ago

8 Replies

How to Respond

As my FND symptoms have progressed.... weakness, tremor and dizziness, and now constant knee buckling, I've had to resort to using a walking stick. I've tried...

As my FND symptoms have progressed.... weakness, tremor and dizziness, and now c...

Poseypink

•9 months ago

9 Replies

Migrane World Summit

Thanks to my fellow member for signposting me this way.Its free for 2 days and you can watch 8 videos from experts from the first 2 days, then you have to...

Thanks to my fellow member for signposting me this way.Its free for 2 days and y...

Lady4

•9 months ago

2 Replies

New diagnosis

Hi, I've recently been diagnosed with FND which is believed to be triggered by PTSD (diagnosed by neuropsychiatrist). My symptoms are mainly dissociative...

Hi, I've recently been diagnosed with FND which is believed to be triggered by...

ChelseaBlue01

•9 months ago

5 Replies

FND Symptoms

Hi! I’ve recently been diagnosed with FND by a neurologist and I would be really interested to know if anyone on this forum can relate to my symptoms. I...

Hi! I’ve recently been diagnosed with FND by a neurologist and I would be really...

MiniChimp

•9 months ago

9 Replies

Gibt es hier auch Menschen aus dem deutschsprachigen Raum

Hallo zusammen Ich habe vor 7 Monaten die Diagnose fnd erhalten. Ich fühle mich allein gelassen und suche den Austausch. Von euren Beiträgen habe ich vuel...

Hallo zusammen Ich habe vor 7 Monaten die Diagnose fnd erhalten. Ich fühle mich ...

Lisandros

•9 months ago

1 Reply

Just saw this via Neurology Journal ...

In this episode of the Neurology Podcast: Prof. Jon Stone and Drs. Selma Aybek, David Perez, and Sarah Lidstone discuss FND diagnosis and exploring new...

In this episode of the Neurology Podcast: Prof. Jon Stone and Drs. Selma Aybek, ...

210272

•9 months ago

5 Replies

New to Group

I have FND and have been struggling with it for a year and a half. It causes severe seizure activity, tremors and other symptoms. I feel like I am on an...

I have FND and have been struggling with it for a year and a half. It causes s...

Irietrekker

•9 months ago

8 Replies

Follow up anestistic flare up.

Hi everyone. I live in Sydney Australia. It's too bad when things are so behind That you have to Reach out to the other side of the world to get support. In...

Hi everyone. I live in Sydney Australia. It's too bad when things are so behind ...

dawson63

•9 months ago

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for August 2023

FND Treatment

FND, Diet and Gut

visual disturbances and eye problems

I found this very moving and would welcome your thoughts. It was posted on World Brain Day last year (I think).

I don’t know what to do-I have an FND diagnosis but nothing after that

Neurosym

newly diagnosed

Update re FND podcasts via Neurology Journal and request for info re the dx of Functional Cognitive Disorder ...

Weird pain on top of the foot

37 M, Functional Tremor, with hyperreflexia, dysphagia, SBD, and urinary incontinence. All diagnosed.

I’m done but in a good way

back again wrapped in depression

Perimenopause has worsened FND symptoms

fellow fnd sufferers!

FND Diagnosis

Jaw Pain - Anyone suffering with TMJD

FND related headaches

Fatigue - definition

How to Respond

Migrane World Summit

New diagnosis

FND Symptoms

Gibt es hier auch Menschen aus dem deutschsprachigen Raum

Just saw this via Neurology Journal ...

New to Group

Follow up anestistic flare up.

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive