Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,634 members • 2,940 posts

All posts for September 2017

New

Hi, I'm Melinda. I'm diagnosed with Sjogren's Syndrome, functional movement disorder, and functional dysphonia. For me, the worst is the vocal cord disorder,...

Hi, I'm Melinda. I'm diagnosed with Sjogren's Syndrome, functional movement dis...

•7 years ago

Flu Shot

I am wondering if anyone gets the Flu shot? I was originally told not to get it as it was thought that I may have had Guilliane Barre. Since being told I...

I am wondering if anyone gets the Flu shot? I was originally told not to get it...

•7 years ago

FND – a description not a diagnosis

I'm looking at FND as I would at ME/chronic fatigue syndrome as a description of symptoms instead of a diagnosis. The equivalent would be asking a GP how many...

I'm looking at FND as I would at ME/chronic fatigue syndrome as a description of...

•7 years ago

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Conversion disorder "relapse." looking for someone who understands this disorder first hand

hi. my name is Kayla and i'm 16 years old. i had a few consecutive conversion disorder episodes (muscle tensing, seizures, palatalization, breathing trouble,...

hi. my name is Kayla and i'm 16 years old. i had a few consecutive conversion di...

•7 years ago

Dr Jon Stone research

Hi There was mentioned somewhere in the past on here that Dr Jon Stone had done a large scale project into FND and had now published his report. Does anyone...

Hi There was mentioned somewhere in the past on here that Dr Jon Stone had done ...

FND Hope UK•7 years ago

Burning in feet.

Hi everyone! The past few days I've had a burning sensation in both feet. I've had FND since 2012 but this burning sensation is new to me. Anyone else have...

Hi everyone! The past few days I've had a burning sensation in both feet. I've h...

•7 years ago

Mood swings

Hi, I was wondering if anyone experiences mood swings and/or emotional outbursts. I have days where I could cry over nothing and others that I'm on top of the...

Hi, I was wondering if anyone experiences mood swings and/or emotional outbursts...

•7 years ago

FND Fighter

Wish me luck this Sunday, as an FND patient I will be running in my first 5K with a bunch of people to raise money for indigent people. Of course, my cane...

Wish me luck this Sunday, as an FND patient I will be running in my first 5K wit...

•7 years ago

Developing painful joints

Hi My thumb and hip have started to hurt to the extent that I finally went to the GP as they have started to interfere with my daily living. Never experienced...

Hi My thumb and hip have started to hurt to the extent that I finally went to th...

FND Hope UK•7 years ago

Using a tens machine to remind my brain where my legs are.

On 17 August 2017 I woke up and within an hour couldn't walk, sit up or breathe deeply and went into hospital. Over the next five days I improved enough to be...

On 17 August 2017 I woke up and within an hour couldn't walk, sit up or breathe ...

•7 years ago

PIP application and Mental Disorder - why bother?

Hi I was one of the lucky ones to get PIP the first time around. In addition to PIP I also have quite a rare mental disorder - wahoo yet another rare one....

Hi I was one of the lucky ones to get PIP the first time around. In addition to ...

FND Hope UK•7 years ago

FND Didn't Kill Me! We are back

For our subscribers...and those that follow our vlog...guess what...this is like a month old but we have been trying to make our comeback awhile. ;)...

For our subscribers...and those that follow our vlog...guess what...this is like...

•7 years ago

Stay Positive, Keep moving, and don't give up, there is life in being diagnosed with FND.

Hi there. I was recently diagnosed with FND on 2/26/17. The symptoms left me like I had a stroke. It took me 7 weeks to learn to walk, talk and hold a...

Hi there. I was recently diagnosed with FND on 2/26/17. The symptoms left me l...

•7 years ago

A Question For you!!

Hi Everyone I have a question for you all. " If you could ask a Medical Provider who treats Fnd One question, What would it be?"

Hi Everyone I have a question for you all. " If you could ask a Medical Provider...

•7 years ago

WHAT MAKES A GOOD SUPPORT GROUP ON LINE

I mostly respond to others posts but was reading an article from Psych Central a Psychology information site, often with insightful articles. I signed up and...

I mostly respond to others posts but was reading an article from Psych Central a...

•7 years ago

Government Petition to improve availability of NHS Services for FND Sufferes

https://petition.parliament.uk/petitions/200007

https://petition.parliament.uk/petitions/200007

Moderator•7 years ago

Body pains

Hi guys... ok so last 2 weeks been getting pains in my shoulders , hands, knees , legs, elbows, finger joints... anyone else get this altogether ?? Taking...

Hi guys... ok so last 2 weeks been getting pains in my shoulders , hands, knees ...

•7 years ago

speech is too much

fibro and FND is too much for me, after an episode my muscle hurt so bad for hours what is happen to us? Has anyone ever ask you what language you speak? Ava...

fibro and FND is too much for me, after an episode my muscle hurt so bad for hou...

•7 years ago

NEW PERSON

Hi Everyone, im the Newbie Emma I was diagnosed with FND a month or so ago, i have obviously been living with it for a while and just plugging along, i have...

Hi Everyone, im the Newbie Emma I was diagnosed with FND a month or so ago, i ha...

•7 years ago

Coming Soon ☺☺

Keep a Look out for more Information xx

Keep a Look out for more Information xx

Moderator•7 years ago

Be the first to reply

FND or DLB

Hi everyone 7 years ago I was diagnosed with dementia with Lewy bodies, recently this was changed to FND, and I have been told that 6 weeks of residential...

Hi everyone 7 years ago I was diagnosed with dementia with Lewy bodies, recentl...

•7 years ago

Fnd Hope Magazine

We are doing a Magazine and we are wanting all your ideas and What you would like to read and see inside the Magazine. So get your thinking Caps on and give...

We are doing a Magazine and we are wanting all your ideas and What you would lik...

Moderator•7 years ago

Wrist supports

Just got new bigger wrist support for numb hands! Let's hope they work (last ones my kids took🙈). Ps they are very ugly should come in more than 2 color...

Just got new bigger wrist support for numb hands! Let's hope they work (last on...

•7 years ago

3RD INTERNATIONAL CONFERENCE ON FUNCTIONAL (PSYCHOGENIC) NEUROLOGICAL DISORDERS

FND Hope UK, FND Hope US, FND Hope AUS and FND Hope NL are looking forward to representing you at the above FND Conference. We are looking forward to learning...

FND Hope UK, FND Hope US, FND Hope AUS and FND Hope NL are looking forward to re...

Moderator•7 years ago

Chris Graham Academic Clinical Psychologist from Leeds cycling from Bulgaria to Greece in aid of FND Hope UK

https://www.justgiving.com/fundraising/chris-graham27

https://www.justgiving.com/fundraising/chris-graham27

Moderator•7 years ago

Be the first to reply

I have to giggle !

So with all the things that go on with me such as: Dragging my feet like the elephant man Forgetting my kids names and who my mom is, Slurred speech Aches and...

So with all the things that go on with me such as: Dragging my feet like the ele...

•7 years ago

EEG help ...

I had a videotelematry and have received this letter ( cropped my address etc). I'm trying to decipher what this means ... has anyone else had experience in...

I had a videotelematry and have received this letter ( cropped my address etc). ...

•7 years ago

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