Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,652 members • 2,948 posts

All posts for June 2017

Just always feel the love here

"Sometimes you just wanna go where everybody knows your PAiN".... From the TV program Cheers.. Always you all rock. Always the first support!

"Sometimes you just wanna go where everybody knows your PAiN".... From the TV pr...

Volunteer•7 years ago

Don't miss this opportunity!Dr Stone will be at Stanford!

Dr Stone will be at Stanford on Friday after noon to speak with and answer FND patient questions. For more information go to FNDHope website. Admission is free...

Dr Stone will be at Stanford on Friday after noon to speak with and answer FND p...

Volunteer•7 years ago

How many FND suffers are there in the uk

Hello everyone, I was diagnosed with FND last week. Mine was a quick diagnoses because I catalogued my symptoms day by day and shared them with the neologist....

Hello everyone, I was diagnosed with FND last week. Mine was a quick diagnoses ...

•7 years ago

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Vision

Morning, so had eye test again Monday as I can feel my vision is not right... so actual vision a slight change but there's a problem with my right eye not...

Morning, so had eye test again Monday as I can feel my vision is not right... s...

•7 years ago

Progress of my PIP application

Hi Well I had my assessment last week (having made my application back in Feb). The Doc started off quite matter of fact but soon warmed. Near the end my...

Hi Well I had my assessment last week (having made my application back in Feb). ...

FND Hope UK•7 years ago

Virus and FND

Hi I was reading the trail about the person thinking she will simply soon be diagnosed with FND. Somewhere in the responses someone mentioned viruses in the...

Hi I was reading the trail about the person thinking she will simply soon be dia...

FND Hope UK•7 years ago

Scared and misunderstood

Hi. I am new here. I was diagnosed with FDN last week . The only thing that I was told was to go see a neuropsychologist and that the hospital that the doctor...

Hi. I am new here. I was diagnosed with FDN last week . The only thing that I wa...

Bubblelicious23

•7 years ago

First Wheelchair

Good Afternoon, Well, I do not post very much since I am content reading post daily. I just turned 29 and started the process of using a wheelchair. I have a...

Good Afternoon, Well, I do not post very much since I am content reading post da...

•7 years ago

Sorry I haven't posted!

Hey I got locked out and too much brain power to reset...wow thanks FND HAHA. If you aren't subscribed, you may have missed a few...but here's the latest!...

Hey I got locked out and too much brain power to reset...wow thanks FND HAHA. I...

•7 years ago

Good news at last!

Well i must say that it has been 2 weeks since my speech has been good and i returned to work today. Its part-time 4 hours a day for now but i am pleased to be...

Well i must say that it has been 2 weeks since my speech has been good and i ret...

•7 years ago

I seem not to understand IBS and constipation! I am sorry to all about this too. Thanks

l take a fiber supplement every morning. It did seem to help things move along in the morning. At least l thought it did. I am beginning to wonder about the...

l take a fiber supplement every morning. It did seem to help things move along i...

•7 years ago

To Members

It is with great sadness that I write this post. Over the past 5 years this has become a strong flourishing community of support for many. It is a...

It is with great sadness that I write this post. Over the past 5 years this has ...

Partner•7 years ago

Avoiding A&E

Hi I think everyone here has experienced medical staff and been humiliated in A&E. I finally gave up hope when I had a seizure, hit my head a right bang on the...

Hi I think everyone here has experienced medical staff and been humiliated in A&...

FND Hope UK•7 years ago

Travel insurance

Hello everyone my 22 year old son was diagnosed with FND a couple of months ago. I'm taking him to Gran Canaria for a much needed holiday but I'm having...

Hello everyone my 22 year old son was diagnosed with FND a couple of months ago....

•7 years ago

Another Way Around This...

To all my community friends. There have been exhausting discussions about the concept of brain signalling malfunction in FND without demonstrated evidence of...

To all my community friends. There have been exhausting discussions about the co...

•7 years ago

It's Hard to Pick....

Community Friends. I remain perplexed by the misinformation flowing out of the esteemed medical system. To explain a simple point to use in conversation with...

Community Friends. I remain perplexed by the misinformation flowing out of the e...

•7 years ago

Still Learning

Hi Everyone, I'm new here and I started having spells in December of last year, loss of balance, dizziness. I saw many doctors, spent days in the ER, days...

Hi Everyone, I'm new here and I started having spells in December of last year, ...

•7 years ago

I need to calm down

well what can I say annoyed doesn't come close .I know I'm not supposed to get my blood pressure boiling and to stay positive but I can belive whats going on...

well what can I say annoyed doesn't come close .I know I'm not supposed to get m...

•7 years ago

Amallia... Please come to the principal's office!

So I read the other day where there is such a thing as an abdominal reflex test. Never heard of it. What followed in the description was that this simple test...

So I read the other day where there is such a thing as an abdominal reflex test....

•7 years ago

Scotland meet up date

Hey guys... so I'm looking at proposing a meet up in Edinburgh on Monday 19th June. 1:30pm... at the waverley shopping centre bit downstairs by mcdonalds......

Hey guys... so I'm looking at proposing a meet up in Edinburgh on Monday 19th Ju...

andyglasgow2016

•7 years ago

New haircut

Well yesterday I dragged my but out to the hairdresser. Not being able to manage my long hair anymore I decided I needed to get it cut off and I can say it...

Well yesterday I dragged my but out to the hairdresser. Not being able to manage...

•7 years ago

Anyone find "natural" options that help?

My husband is a terrible eater, meat and potatoes and that's it and I have been wondering if anyone has found a difference in their symptoms when they eat...

My husband is a terrible eater, meat and potatoes and that's it and I have been ...

•7 years ago

A heartfelt thank you to you all for your kind replies.

On behalf of myself and Kim, may I take this opportunity to thank everyone of you lovely people who responded to my question about giving up work. It is, as...

On behalf of myself and Kim, may I take this opportunity to thank everyone of yo...

•7 years ago

Prayer for you all

Another prayer for you all God bless Ronwyn 😇🙏😇🙏😇

Another prayer for you all God bless Ronwyn 😇🙏😇🙏😇

•7 years ago

Struggling as a Caregiver in Canada

Hi there. My husband was diagnosed with FND just over a year ago and until recently I think I've been handling it well. His symptoms came on very suddenly...

Hi there. My husband was diagnosed with FND just over a year ago and until rece...

•7 years ago

Seeking a support group in Washington DC/Virginia area

Hi, I'm new here. I've heard that there is a support group for people with functional movement disorders in Northern Virginia/Washington DC area. Can you...

Hi, I'm new here. I've heard that there is a support group for people with func...

•7 years ago

Finally here

Here's a view of my new back garden...

Here's a view of my new back garden...

•7 years ago

Confused

Hi, It all started with pins and needles down my neck, spine and right side and over time my bones hurt, muscles were weak and felt generally unwell. Doctors...

Hi, It all started with pins and needles down my neck, spine and right side and ...

•7 years ago

Questions about FND from someone who might have it

Hello all, I was in a minor car accident six months ago, and since then have been suffering from dizziness, loss of balance, difficulty with concentration...

Hello all, I was in a minor car accident six months ago, and since then have bee...

•7 years ago

Hand tremors

Hey guys hope your all having a day where you can enjoy a nice cup of coffee or tea... So hand tremors are getting worse... lol had to write some stuff for...

Hey guys hope your all having a day where you can enjoy a nice cup of coffee or ...

•7 years ago

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