Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,652 members • 2,948 posts

All posts for September 2018

TRAMADOL

Weaning off Tramadol

Weaning off Tramadol

•6 years ago

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Were can I find a doctor that does not think fnd is a mental health crisis

Yet again I am going to have to change doctors mynew doctor came to visit me wot a complete prat I'm bed bound had two stokes broke my spine in 4 places...

Yet again I am going to have to change doctors mynew doctor came to visit me wot...

•6 years ago

Can post viral infection cause the onset of FND?

I had a pretty bad stomach virus 3 weeks prior to the onset of my first FND attack. I am curious if this can lead to this disorder?

I had a pretty bad stomach virus 3 weeks prior to the onset of my first FND atta...

•6 years ago

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FND causes and how to advocate? A little heartbroken...

Hi there, I just had two hospitalization stays this month for all the FND symptoms. I had an attack out of no where, it came on suddenly and have never...

Hi there, I just had two hospitalization stays this month for all the FND sympt...

•6 years ago

Details regarding Functional Neurological Disorder

Details required for Functional Neurological Disorder

Details required for Functional Neurological Disorder

•6 years ago

Wheelchair question

So my doctor send I will be in a wheelchair temporarily but we don’t know how many months temporarily or if it will come permanent. Just wondering how many out...

So my doctor send I will be in a wheelchair temporarily but we don’t know how ma...

strongerinthisfight

•6 years ago

NFD awareness shirts

I realized there are really no shirts out there to raise awareness about NFD. So I’m going to make one! Any suggestions on designs??

I realized there are really no shirts out there to raise awareness about NFD. So...

strongerinthisfight

•6 years ago

Feeling useless

It was speech therapy yesterday and although she seemed positive she did say. It would take baby steps and a considerable amount of time. Having to take a taxi...

It was speech therapy yesterday and although she seemed positive she did say. It...

•6 years ago

Severe neck pain

So I have been having really severe shorting neck pain and sometimes a terrible headache too. Anyone else get this?? Any tips for what helps?

So I have been having really severe shorting neck pain and sometimes a terrible ...

strongerinthisfight

•6 years ago

Myoclonic Seizures

Hello there! My 23 year old daughter has been diagnosed after 6 years with Myoclonic Epilepsy. The doctor said her EEG was not typical for this diagnose be...

Hello there! My 23 year old daughter has been diagnosed after 6 years with Myocl...

•6 years ago

Severe Jerks

Today I suffered the most severe jerking of my arms and body and some jerking of my legs which started when I was actually asleep and was so severe it woke me...

Today I suffered the most severe jerking of my arms and body and some jerking of...

•6 years ago

Best piece of advice for a newly diagnosed

Hi everyone, I was diagnosed with FND about a week ago. I would love to hear your best piece of advice for someone who is newly diagnosed as I start to...

Hi everyone, I was diagnosed with FND about a week ago. I would love to hear you...

strongerinthisfight

•6 years ago

Impossible situation

Hi everyone My situation is just ugh, I can’t wrap my head around it really. I first became ill with FND in August last year, paralysis, pain, etc etc etc. In...

Hi everyone My situation is just ugh, I can’t wrap my head around it really. I ...

•6 years ago

How many FND sufferers have had TBI?

I've suffered from FND for 3 years now. I first had intermittent symptoms until a fall and then they were permanent. I had been active all my life and had...

I've suffered from FND for 3 years now. I first had intermittent symptoms until ...

•6 years ago

a num buzzing feeling in arms and legs

Hello all first off i really hope every one is as well as they can be. my qustion is does any one else get a heavy num feeling in your arms and legs well mine...

Hello all first off i really hope every one is as well as they can be. my qustio...

•6 years ago

For the Caregivers

What is the worst thing you deal with/what are you struggling with the most day to day? If one suffers, we all suffer - whether we have FND, or are a...

What is the worst thing you deal with/what are you struggling with the most day ...

•6 years ago

Paralysed arms & legs getting more frequent.

Must admitted I am being paralysed more often and it’s getting longer by the day, makes me nervous every night I go to bed now and Leaves me thinking when I...

Must admitted I am being paralysed more often and it’s getting longer by the day...

•6 years ago

I just got diagnosed with dystonia. Does that mean I don't have FND?

Yeah so my Dr diagnosed dystonia and I'm going to a movement disorder specialist later this month. I think dystonia explains my symptoms of weakness and...

Yeah so my Dr diagnosed dystonia and I'm going to a movement disorder specialist...

•6 years ago

Here's an FND Funny For This Here Fabulous Friday :)

I work at an Insurance office... I was at work a few weeks ago, and had a client talking with me in the reception area. I could feel my face starting to...

I work at an Insurance office... I was at work a few weeks ago, and had a clien...

•6 years ago

How is everyone's weight ?

This maybe seem a strange one to ask, but how is everyone weight, when I was younger I always had a constant battle to stay slim haha to fit into nice clothes...

This maybe seem a strange one to ask, but how is everyone weight, when I was you...

•6 years ago

Strange sensation in head before or during involuntary movements ? Also EEG light test

Hi all, Was wondering if anybody else on here experiences like a warm/ strange sensation in there head or I can get it though my body, it’s only for secs...

Hi all, Was wondering if anybody else on here experiences like a warm/ strange ...

•6 years ago

Waiting to see what happens next

Last year I was dx with Pernicious Anemia, hope I have spelled that right, just a few days ago, my neurologist gave me the dx of FND, coupled with other...

Last year I was dx with Pernicious Anemia, hope I have spelled that right, just ...

•6 years ago

NONE OF US IS MAD

Sorry but ranting approaching at a very fast pace. GPS, doctors at hospitals, Consultants, Neurologists, paramedics- DO YOUR HOMEWORK. We ARE NOT converting...

Sorry but ranting approaching at a very fast pace. GPS, doctors at hospitals, Co...

FND Hope UK•6 years ago

Am i going mad

Are we all losing our mind according to some Drs. How do they know it's not MS all the signs and symptoms are the same as MS. I've even started losing bladder...

Are we all losing our mind according to some Drs. How do they know it's not MS ...

•6 years ago

Confused

I went in to hospital end of April with suspected stroke,all treatment I was given was for a stroke as I couldn't move my left hand side had , physio helped me...

I went in to hospital end of April with suspected stroke,all treatment I was giv...

•6 years ago

Legs decide not to work

Been lying on my settee then got to stand up but for the first time I didn’t have enough power in my legs to push up had to get my nephew to pull me up when he...

Been lying on my settee then got to stand up but for the first time I didn’t hav...

•6 years ago

Starting pip

So I've got the forms and I'm off to cab tomorrow... Feel so ill at the moment fatigue pain sickness headaches eyes throbbibg in pain. But I look OK... Well I...

So I've got the forms and I'm off to cab tomorrow... Feel so ill at the moment f...

•6 years ago

3 week rehab ?

Hi All, I've been reading health unlocked since March this year. Was completely unaware of FND prior to that. A few months back I seem to remember reading...

Hi All, I've been reading health unlocked since March this year. Was completely ...

•6 years ago

Whats in your head?

Is FND a disability? The 'experts' have said its largely a mental condition. It is said to be "all in our head". I love that. I laugh every time someone tells...

Is FND a disability? The 'experts' have said its largely a mental condition. It ...

•6 years ago

Hello wonderful people ❤

Hi everyone Im Dana! Im new to this page/group. However have been living with my diagnosis which is non epileptic seizures, or also known as dissociative...

Hi everyone Im Dana! Im new to this page/group. However have been living with my...

•6 years ago

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