Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,630 members • 2,938 posts

All posts for April 2017

Non epileptic attack disorder

Hi I am wondering if anyone out there has just seizures. My husband only has seizures and it would be great to link up with someone else in the same position....

Hi I am wondering if anyone out there has just seizures. My husband only has se...

•7 years ago

Functional movement disorder - I GOT BETTER

I started to write my story in summary but my word count was somewhat high to say the least. It is impossible to summarise this disorder, how it started, how...

I started to write my story in summary but my word count was somewhat high to sa...

•7 years ago

Been to unwell but wanted to say a great big hello

Hi all I hope you are all doing well or as well as you can be. I haven't been on if late due to being to unwell one foot forward 10 steps back . My energy...

Hi all I hope you are all doing well or as well as you can be. I haven't been o...

•7 years ago

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Worrying

Hi all, I've just wrote to englishmum, if any of you read it I hope you will help to answer, haven't been great since last week disastrous appointment at St....

Hi all, I've just wrote to englishmum, if any of you read it I hope you will hel...

•7 years ago

"Sign, sign, everywhere a sign...."

My community friends. First, a special blessing to my best friends Tony and Kim. The above lyric is the opening line to the song "Signs" recorded by the Five...

My community friends. First, a special blessing to my best friends Tony and Kim....

•7 years ago

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Feeling Bummed

Sorry all, I just need to vent here.. I was all excited to participate in another study for The NIH under Neurobiology of psychogenic movement disorder and...

Sorry all, I just need to vent here.. I was all excited to participate in anoth...

•7 years ago

Neuropsychologist visit

I've got my 3rd appointment with neuropsychologist in St George's next Wednesday.... do I explain how stressed I am about the house situation? I don't want to...

I've got my 3rd appointment with neuropsychologist in St George's next Wednesday...

•7 years ago

To give you a laugh

So I sell/sold Avon products! One lady who is in her 70's was telling me how much she enjoyed my free samples! Lady "The face cream was superb best I've ever...

So I sell/sold Avon products! One lady who is in her 70's was telling me how mu...

•7 years ago

Just Diagnosed

I have been to London to she a Movement Disorder Professor, I had been taking Parkinson's medication but I was told today I don't have Parkinson's but I have...

I have been to London to she a Movement Disorder Professor, I had been taking Pa...

•7 years ago

Just diagnosed a bit confused

Hello New here after being finally diagnosed today with FND- I have tremors, muscle spasms which limited moment, functional dystonia which can last weeks, and...

Hello New here after being finally diagnosed today with FND- I have tremors, mus...

•7 years ago

Honest opinions please

So council housing not looking likely so.. house 1 no carpet Accepts pets Long term Open plan kitchen living room AstroTurf garden and decking Walk in...

So council housing not looking likely so.. house 1 no carpet Accepts pets Lon...

•7 years ago

I really dont understand what is happening😔😔😔

Just when i thought everything was getting back on track after my speech returned on friday, i started to have ear pain in my left ear and that triggered off...

Just when i thought everything was getting back on track after my speech returne...

•7 years ago

Who can I see privately? Neurologist has referred me to pain management for Cervical Sensory Radiculopathy. CCG is not replying to my gp'

Hello to all, I've been very ill since 2013-2014. I started with seveere weakness in both arms. Gp didn't say anything but probably was ME. Last Oct 2016 I...

Hello to all, I've been very ill since 2013-2014. I started with seveere weakne...

•7 years ago

Partial results from 3 day ambulatory EEG..

Hello all. I am sitting here sleepless at 3 am after a night filled with seizing (15 times) with thoughts of some of the results I received last night. I...

Hello all. I am sitting here sleepless at 3 am after a night filled with seizin...

•7 years ago

Roaming symptoms

I've had FND/Conversion for over 18 years now and always develop new symptoms...The latest is my left foot going numb. I kind of laugh now because I think...

I've had FND/Conversion for over 18 years now and always develop new symptoms......

•7 years ago

My companion wears a bow tie

Sending you all good wishes today and hoping today is a good day , I'm so glad I found you , all of you keep me sane on my crazy days 😍

Sending you all good wishes today and hoping today is a good day , I'm so glad ...

•7 years ago

Bluebells on my walk

My lovely woods where I walk daily with my dog Maple! Hope the view makes you smile

My lovely woods where I walk daily with my dog Maple! Hope the view makes you s...

•7 years ago

Good morning

Thought I'd say hello! How are you all doing today 😍

Thought I'd say hello! How are you all doing today 😍

•7 years ago

Here we go again !

Hi friends im on a funny again had a weeks break at least , but my cat was killed 2 days ago and low and behold this morning it creeps in, im writing this now...

Hi friends im on a funny again had a weeks break at least , but my cat was kille...

•7 years ago

9th March PIP Assessment ?

Hi Sorry but I'm bad with names but remember someone saying they were having their PIP assessment on 9th March or thereabouts. How did you get on? Did you get...

Hi Sorry but I'm bad with names but remember someone saying they were having the...

FND Hope UK•7 years ago

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Help with logging in.

Hi everyone! Does anyone have issues sometimes in reading the posts? As a rule, I can just press the blogs on my e mail messages and I go automatically onto...

Hi everyone! Does anyone have issues sometimes in reading the posts? As a rule, ...

•7 years ago

Introduction

For everyone who responded to me yesterday. Thank you. I am 38 years old, married and have two small boys. I have lived in Arkansas my whole life. Last summer...

For everyone who responded to me yesterday. Thank you. I am 38 years old, marrie...

•7 years ago

Trying to help...

Hi I'm the Patient Support For FNDHOPE UK, I have got our Poster and some leaflets out in to one of our first Hospitalstep, Which is Great. We are aiming to...

Hi I'm the Patient Support For FNDHOPE UK, I have got our Poster and some leafle...

Moderator•7 years ago

Seizure?

Good morning, I have been diagnosed with functional movement disorder. Last Thursday I started having a seizure like episode that my wife saw. She is a nurse...

Good morning, I have been diagnosed with functional movement disorder. Last Thur...

•7 years ago

Really feels like i have gone a step backwards☹☹☹

After such a good week at work, bank holiday monday i experienced something different. I was studying on monday and noticed that i was struggling to find the...

After such a good week at work, bank holiday monday i experienced something diff...

•7 years ago

Swimming fnd

Hi I went swimming yesterday and my back spasms is the normal with fnd

Hi I went swimming yesterday and my back spasms is the normal with fnd

•7 years ago

CBD

hello, i was hoping to find out if anyone has any success in using CBD with helping recover from a recent FND attack and taking long term. I can buy it from my...

hello, i was hoping to find out if anyone has any success in using CBD with help...

•7 years ago

Easter

Hey folks Trust you are all well? It's been a crazy couple of weeks for me & my family. My dad was rushed to hospital with heart issues and stopped breathing...

Hey folks Trust you are all well? It's been a crazy couple of weeks for me & my ...

andyglasgow2016

•7 years ago

Functional movement disorder

HI guys! I'm trying to make sense out of this diagnosis. It is extremely confusing to me because I've thank god never had much stress in my life. I never got...

HI guys! I'm trying to make sense out of this diagnosis. It is extremely confusi...

•7 years ago

Many thanks to you all!

Thank you all so much for your support to Dan and his family. You're all such wonderful people and you never cease to amaze myself and Kim. Loving wishes to...

Thank you all so much for your support to Dan and his family. You're all such wo...

•7 years ago

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