Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,634 members • 2,940 posts

All posts for August 2018

Is it FND? Do I have rights to request other elimination tests?

I have been under a neurologist for 5 years due to deterioration of health after a severe flu episode back in 2013. My health has deteriorated to the extent...

I have been under a neurologist for 5 years due to deterioration of health after...

Help4

•6 years ago

13 Replies

No idea

Diagnosed with fnd 4 months ago on top of a broken neck and spine 2 strokes I am peg fed through pipe in my stomach bed bound does fnd actually exist or is it...

Diagnosed with fnd 4 months ago on top of a broken neck and spine 2 strokes I am...

Sparticas123

•6 years ago

4 Replies

Orchid

I got diagnosed yesterday, I am inpatient and extreemly scared, terrified actually. Any suggestions please?

I got diagnosed yesterday, I am inpatient and extreemly scared, terrified actual...

orchid955

•6 years ago

27 Replies

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just diagnosed with Tourette's how does that fit in with possible FND?

I did an eeg and they told after a few days of testing that I don't have epilepsy but I do have Tourette's. Can you have both Tourette's and FND? How do these...

I did an eeg and they told after a few days of testing that I don't have epileps...

Jesdue

•6 years ago

2 Replies

Sick and tired

Must admit over the last few weeks I’ve been feeling more and more fatigued wanting to sleep all the time and in constant pain 24/7. This disorder is just...

Must admit over the last few weeks I’ve been feeling more and more fatigued want...

Mygeordiebud

•6 years ago

7 Replies

Advice regarding driving with FND

Hi, my name is Alison. 2 years ago I was diagnosed with FND and fibromyalgia 20+ years ago. I haven’t driven for 3 years now, and I’ve reached the time to get...

Hi, my name is Alison. 2 years ago I was diagnosed with FND and fibromyalgia 20+...

FNDcrazy

•6 years ago

7 Replies

Get moving

My son has FND and he has to be homebound. He was diagnosed Mary 2017 and it has significantly impacted his quality of life. No friends, does not go out...

My son has FND and he has to be homebound. He was diagnosed Mary 2017 and it h...

Moses4

•6 years ago

21 Replies

torbay

i have been ill for over 9 years, just been diagnosed with FND. i recently saw a neurologist in Exeter, he is the one who diagnosed this for me as Torbay was...

i have been ill for over 9 years, just been diagnosed with FND. i recently saw a...

tatiyana

•6 years ago

7 Replies

FND and swallowing

hello can you please advise me please my daughter is not anorexic but has a eating disorder. my daughter has chronic fatigue (ME) and a functional...

hello can you please advise me please my daughter is not anorexic but has a eati...

mumof2fnders

•6 years ago

9 Replies

Patches/clusters goosebumps

I’ve had various neurological symptoms for a number of years, no neurologist or doctor has seen or been able to tell me what could be causing these goosebumps....

I’ve had various neurological symptoms for a number of years, no neurologist or ...

leradford

•6 years ago

190 Replies

Background, Foreground and A Splash of Positivity!

Hi there everyone! I'm new to this circle. For the last two years, I have experienced psychotic and physical/muscular symptoms. I have had MRI's, an EMG,...

Hi there everyone! I'm new to this circle. For the last two years, I have expe...

Heartofgold

•6 years ago

8 Replies

Good Afternoon Warriors!!

How are we all Doing? Do you all know that we have Support groups for FND? If not go to www.fndhope.org and Join, We are here to help and support you, Our...

How are we all Doing? Do you all know that we have Support groups for FND? If no...

salfnd

•6 years ago

Be the first to reply

Do you feel overwhelmed by your carer

Hi I know that lots of us have no support from families etc. Sorry this post isn’t meant to offend you. I’m lucky to have a husband who does a lot for me. But...

Hi I know that lots of us have no support from families etc. Sorry this post is...

DNE92

FND Hope UK•6 years ago

5 Replies

Ive been told i may have functional neurological disorder but im not entirely convinced quite frustrated if im honest need some advice TY

Hi everyone Ok so im going to just give you all the background what has happened so far and what's to happen next and hope someone can relate to my situation...

Hi everyone Ok so im going to just give you all the background what has happene...

Rachelb91x

•6 years ago

8 Replies

5-HTP experiences at night for sleep w/ FND?

Hi, I know everyone is an individual, but it has been brought up to try 5-htp for sleep by my counselor since i’m going through a stressful time. What are...

Hi, I know everyone is an individual, but it has been brought up to try 5-htp f...

Junebeatle

•6 years ago

4 Replies

Lux sleep light & amber glasses at night

Hi, I was wondering if anyone had success managing sleep issues from FND with light therapy? My sleep is the worst it’s ever been and I’m too sensitive to...

Hi, I was wondering if anyone had success managing sleep issues from FND with l...

Junebeatle

•6 years ago

8 Replies

FND SCIENTIFIC REGISTRY

Preliminary FND study analyzing the FND Scientific Registry Data by 22nd August, 2018. We would like to encourage participation by signing up and completing...

Preliminary FND study analyzing the FND Scientific Registry Data by 22nd August,...

salfnd

•6 years ago

2 Replies

LDN Low dose naltrexone

Hi everyone I was wondering if anybody has tried LDN low dose naltrexone which seems to have good results for a lot of things,I welcome your reply and wish...

Hi everyone I was wondering if anybody has tried LDN low dose naltrexone which s...

Renwick1

•6 years ago

12 Replies

I had a paralytic episode last night

I couldn't move or feel my left arm at all. It only lasted a few minutes. Is this something to be concerned about?

I couldn't move or feel my left arm at all. It only lasted a few minutes. Is thi...

Jesdue

•6 years ago

4 Replies

Cranial osteopathy super helpful

Hi Like so many who subscribe to this forum, I have a long history of having a “funny head”. It seems very clear to me that the term FND covers a large range...

Hi Like so many who subscribe to this forum, I have a long history of having a “...

CDOX

•6 years ago

6 Replies

Never seem to get better..FND is ruining my life

7 months into treatment and still no signs of improvement, in fact I’m getting worse. When I read some posts I realise I’ve gotten off lightly in that only my...

7 months into treatment and still no signs of improvement, in fact I’m getting w...

Neo117

•6 years ago

12 Replies

Anyone get pain before a flair up ?

Hi guys and gals ! I get a severe earach minutes before a flare up! Does anyone else get some kind of warning ?

Hi guys and gals ! I get a severe earach minutes before a flare up! Does anyone ...

123lisa

•6 years ago

4 Replies

Acupuncture successful for FND?

Hi, Has anyone had good success with acupuncture for FND? I’ve used it in the past, but this recent flare has been my worst with daily tics, tongue spasms,...

Hi, Has anyone had good success with acupuncture for FND? I’ve used it in the p...

Junebeatle

•6 years ago

3 Replies

Not I, said the fly...

We must take special care to listen to those we trust. When this condition confuses everyone, we quickly learn that may be nobody. We trust nobody, really....

We must take special care to listen to those we trust. When this condition conf...

Gud4Ewe

•6 years ago

Be the first to reply

Speech loss and FND

I have lost my speech for over 2 months now. This has been associated with a continuous left sided headache. As I have been diagnosed with possibly FND...

I have lost my speech for over 2 months now. This has been associated with a con...

Collie39

•6 years ago

4 Replies

Anyone do an epilepsy test?

I'm being admitted to the hospital August 20th to be tested for epilepsy because I've started jerking a lot the past two weeks. But they think it's not...

I'm being admitted to the hospital August 20th to be tested for epilepsy because...

Jesdue

•6 years ago

10 Replies

Medical I.D. for FND

So, recently, I've become worried about going out alone, as I'm having more paralytic episodes again (they had really calmed down for a while). I recently...

So, recently, I've become worried about going out alone, as I'm having more para...

PsychosomaticNerd

•6 years ago

Be the first to reply

FND symptoms/Overwhelming moments

Hi all... I have been dealing with alot of different issues pertaining to some FND symptoms. I was diagnosed with FND last year October, however as I had...

Hi all... I have been dealing with alot of different issues pertaining to some ...

Blessings48

•6 years ago

7 Replies

Emergency Room Disaster

So physical therapy sent me to the emergency room yesterday. Normally I know better than to go because they never help but she convinced me that I had to have...

So physical therapy sent me to the emergency room yesterday. Normally I know bet...

Jesdue

•6 years ago

20 Replies

Coping with F N D

Hello to you all. My name is Jan and my lovely husband who is 58 has FND he's been very poorly for a while now. He had to give up work Dec 2016. He suffers...

Hello to you all. My name is Jan and my lovely husband who is 58 has FND he's be...

Janandmike

•6 years ago

5 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for August 2018

Is it FND? Do I have rights to request other elimination tests?

No idea

Orchid

just diagnosed with Tourette's how does that fit in with possible FND?

Sick and tired

Advice regarding driving with FND

Get moving

torbay

FND and swallowing

Patches/clusters goosebumps

Background, Foreground and A Splash of Positivity!

Good Afternoon Warriors!!

Do you feel overwhelmed by your carer

Ive been told i may have functional neurological disorder but im not entirely convinced quite frustrated if im honest need some advice TY

5-HTP experiences at night for sleep w/ FND?

Lux sleep light & amber glasses at night

FND SCIENTIFIC REGISTRY

LDN Low dose naltrexone

I had a paralytic episode last night

Cranial osteopathy super helpful

Never seem to get better..FND is ruining my life

Anyone get pain before a flair up ?

Acupuncture successful for FND?

Not I, said the fly...

Speech loss and FND

Anyone do an epilepsy test?

Medical I.D. for FND

FND symptoms/Overwhelming moments

Emergency Room Disaster

Coping with F N D

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive