Best piece of advice for a newly diagnosed
strongerinthisfight2 days ago
I was diagnosed with FND about a week ago. I would love to hear your best piece of advice for someone who is newly diagnosed as ...
19 Replies1 Like
Margretliljan4 days ago
My situation is just ugh, I can’t wrap my head around it really.
I first became ill with FND in August last year, paralysis, pain...
7 Replies3 Likes
How many FND sufferers have had TBI?
jlbiggs5 days ago
I've suffered from FND for 3 years now. I first had intermittent symptoms until a fall and then they were permanent. I had been active all m...
6 Replies3 Likes
a num buzzing feeling in arms and legs
tabey9 days ago
Hello all first off i really hope every one is as well as they can be. my qustion is does any one else get a heavy num feeling in your arms ...
7 Replies1 Like
Vyvance and FND
the7thchakra10 days ago
On a whim, I took a Vyvance today and a lot of my symptoms of FND seem to have disappeared. I have a stable voice. I have very little join...
3 Replies1 Like
For the Caregivers
Heartofgold10 days ago
What is the worst thing you deal with/what are you struggling with the most day to day? If one suffers, we all suffer - whether we have FND...
Paralysed arms & legs getting more frequent.
Mygeordiebud11 days ago
Must admitted I am being paralysed more often and it’s getting longer by the day, makes me nervous every night I go to bed now and Leaves me...
I just got diagnosed with dystonia. Does that mean I don't have FND?
Jesdue13 days ago
Yeah so my Dr diagnosed dystonia and I'm going to a movement disorder specialist later this month. I think dystonia explains my symptoms of ...
Here's an FND Funny For This Here Fabulous Friday
Heartofgold13 days ago
I work at an Insurance office...
I was at work a few weeks ago, and had a client talking with me in the reception area. I could feel my fac...
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How is everyone's weight ?
kiraminx5313 days ago
This maybe seem a strange one to ask, but how is everyone weight, when I was younger I always had a constant battle to stay slim haha to fit...
Strange sensation in head before or during involuntary movements ? Also EEG light test
Katie-IBS15 days ago
Was wondering if anybody else on here experiences like a warm/ strange sensation in there head or I can get it though my body, it’s ...
Waiting to see what happens next
kiraminx5315 days ago
Last year I was dx with Pernicious Anemia, hope I have spelled that right, just a few days ago, my neurologist gave me the dx of FND, couple...
5 Replies2 Likes
NONE OF US IS MAD
Louyse15 days ago
Sorry but ranting approaching at a very fast pace. GPS, doctors at hospitals, Consultants, Neurologists, paramedics- DO YOUR HOMEWORK. We AR...
7 Replies9 Likes
Am i going mad
bagpuss196316 days ago
Are we all losing our mind according to some Drs. How do they know it's not MS all the signs and symptoms are the same as MS. I've even sta...
7 Replies2 Likes
Valleyman6516 days ago
I went in to hospital end of April with suspected stroke,all treatment I was given was for a stroke as I couldn't move my left hand side had...
Legs decide not to work
Mygeordiebud18 days ago
Been lying on my settee then got to stand up but for the first time I didn’t have enough power in my legs to push up had to get my nephew to...
2 Replies2 Likes
englishmumof218 days ago
So I've got the forms and I'm off to cab tomorrow... Feel so ill at the moment fatigue pain sickness headaches eyes throbbibg in pain. But I...
9 Replies1 Like
3 week rehab ?
Suebez18 days ago
I've been reading health unlocked since March this year. Was completely unaware of FND prior to that. A few months back I seem to rem...
Whats in your head?
Gud4Ewe18 days ago
Is FND a disability?
The 'experts' have said its largely a mental condition. It is said to be "all in our head". I love that. I laugh eve...
1 Reply3 Likes
Hello wonderful people ❤
Arlie_2218 days ago
Hi everyone Im Dana! Im new to this page/group. However have been living with my diagnosis which is non epileptic seizures, or also known as...
5 Replies3 Likes
Question for Carers of FND
LEEJUNFAN19 days ago
Just writing this blog to all you Carers out there.
Have you found that you've become, or can come, overprotective as a Carer....
Is it FND? Do I have rights to request other elimination tests?
Help420 days ago
I have been under a neurologist for 5 years due to deterioration of health after a severe flu episode back in 2013. My health has deteriorat...
Sparticas12320 days ago
Diagnosed with fnd 4 months ago on top of a broken neck and spine 2 strokes I am peg fed through pipe in my stomach bed bound does fnd actua...
4 Replies1 Like
orchid95521 days agoPOPULAR
I got diagnosed yesterday, I am inpatient and extreemly scared, terrified actually. Any suggestions please?
just diagnosed with Tourette's how does that fit in with possible FND?
Jesdue22 days ago
I did an eeg and they told after a few days of testing that I don't have epilepsy but I do have Tourette's. Can you have both Tourette's and...
Sick and tired
Mygeordiebud23 days ago
Must admit over the last few weeks I’ve been feeling more and more fatigued wanting to sleep all the time and in constant pain 24/7.
Advice regarding driving with FND
FNDcrazy24 days ago
Hi, my name is Alison. 2 years ago I was diagnosed with FND and fibromyalgia 20+ years ago. I haven’t driven for 3 years now, and I’ve reach...
Moses425 days agoPOPULAR
My son has FND
and he has to be homebound. He was diagnosed Mary 2017 and it has significantly impacted his quality of life. No friends, doe...
tatiyanaa month ago
i have been ill for over 9 years, just been diagnosed with FND. i recently saw a neurologist in Exeter, he is the one who diagnosed this for...
FND and swallowing
mumof2fndersa month ago
hello can you please advise me please my daughter is not anorexic but has a eating disorder. my daughter has chronic fatigue (ME) and a fun...
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