Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

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Work capability assessment telephone call cancelled .

My work capability assessment telephone call was cancelled at short notice with no reason why , so I called them told me didn't need anymore information had...

My work capability assessment telephone call was cancelled at short notice with ...

•5 hours ago

Goosebumps

Hi, I have experienced this for a few days and have been to Doctors. They said its involuntary nerve misfire. Low in vitamin D can cause it! Hope that helps.

Hi, I have experienced this for a few days and have been to Doctors. They said i...

Veronciavoo1984

•2 days ago

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any one else with FND feel like their bones are crumbling?

I have really bad hip pain both sides getting worse , all I can describe it is it feels like the bones are crumbling if that make sense I have bad pain in back...

I have really bad hip pain both sides getting worse , all I can describe it is i...

•4 days ago

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First telephone appointment all done for pip

Good afternoon My pip telephone appointment is all over now its a waiting game hopefully it won't be too long , Thursday I've got my work capability assessment...

Good afternoon My pip telephone appointment is all over now its a waiting game h...

•4 days ago

Feel like my life as been stolen.

How many of you feel that your life as been stolen from you , its when you can't do the things you could before FND started I've got dizziness from the time I...

How many of you feel that your life as been stolen from you , its when you can't...

•5 days ago

??FND v Ischemic Stroke??

Hi everyone, I’ve had FND now for about 8 years, I’ve been a member for just over 6 years this is my first post. I’m 52 years old and have a long list of...

Hi everyone, I’ve had FND now for about 8 years, I’ve been a member for just o...

•6 days ago

Transcranial Pulse Stimulation( TPS )

I was just wondering if anyone tried Transcranial Pulse Stimulation( TPS ) for FND symptoms? 3 years ago I tried Transcranial Magnetic Stimulation( TMS )....

I was just wondering if anyone tried Transcranial Pulse Stimulation( TPS ) for F...

stillstruggling

•6 days ago

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Incoherent speech

Hi Everyone, I’ve had FND for about 7 years now. I’ve been managing it really well. I recently got a spinal cord stimulator for neuropathy pain. Does anyone...

Hi Everyone, I’ve had FND for about 7 years now. I’ve been managing it really w...

Stanleyleonard12

•6 days ago

Dizziness won again.

Today the suns out so thought I would do some weeding but a big mistake no sooner I started the dizziness come on and it won ,i had to sit down , its beginning...

Today the suns out so thought I would do some weeding but a big mistake no soone...

•8 days ago

When you are out do you get people treating you like a baby

I notice when I’m out especially in shops they see me in the wheelchair with my tremors, my eyes might be twitching but everyone treats me like I’m a kid or...

I notice when I’m out especially in shops they see me in the wheelchair with my ...

•9 days ago

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Why can't you have a good day every day

Yesterday was a good day all round from seeing my manager to staff and residents, but today I feel dizzy and head swimming and just want to sleep ,why can't...

Yesterday was a good day all round from seeing my manager to staff and residents...

•9 days ago

Dose smoking Cannabis help with symptoms

has any one smoked cannabis and had positive outcome , thanks

has any one smoked cannabis and had positive outcome , thanks

•10 days ago

Meeting went well

My meeting with my manager went better than I thought, my uniform is hung back in my wardrobe and keys hanging up she as no plans in getting rid of me yet...

My meeting with my manager went better than I thought, my uniform is hung back ...

•10 days ago

Meeting with hospice nurses this morning

Morning FND Friends I just wanted to say that I have my first appointment with the hospice nurses this morning to see what help can be offered as support, I...

Morning FND Friends I just wanted to say that I have my first appointment with t...

•11 days ago

thankyou

nice to know i am not the only christian struggling with fnd☺️

nice to know i am not the only christian struggling with fnd☺️

•12 days ago

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Good and bad days

Do many of you ever have a good day, ever day seems the same to me always bad, my head feels like its swimming and as for my dizziness I have to hold on to...

Do many of you ever have a good day, ever day seems the same to me always bad,...

•12 days ago

PPPD and vestibular disorders

Did you know that many of the underlying issues in dizziness are related to the autonomic nervous system? Or that sleep, diet and stress can play a role?...

Did you know that many of the underlying issues in dizziness are related to the ...

•17 days ago

Friendship

If anyone would like to add me as a friend maybe we all can help each other with this illness.

If anyone would like to add me as a friend maybe we all can help each other with...

•18 days ago

faith

any christians out there with fnd please?

any christians out there with fnd please?

•18 days ago

Memory problems

Hi all does anyone suffer with memory lose my wife will ask me something and I can't remember even if it was yesterday never mind last year , it seems to get...

Hi all does anyone suffer with memory lose my wife will ask me something and I c...

•20 days ago

45 years old feeling 80 pain and fatigue

hi just discovered this site what can I say I started feeling tired at work and followed by fatigue, chronic pain , tremors and mobility going to been able to...

hi just discovered this site what can I say I started feeling tired at work and ...

•22 days ago

I know Perez thinks that FND is common but the incidence stats quoted by the FND Feminists might suggest it's rare ...

... so here's the latest survey from the lovely Rare Barometer team which might be of interest to people here:...

... so here's the latest survey from the lovely Rare Barometer team which might ...

•22 days ago

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Support group Wolverhampton NFD

Hi Everyone You maybe interested to learn I've just come across a neuro support group in Wolverhampton at Copton hospice that's only recently been set up . If...

Hi Everyone You maybe interested to learn I've just come across a neuro support ...

•22 days ago

This may be of interest to people here who have Long Covid.

Research Review: Long COVID Is Not a Functional Neurologic Disorder - UK co-authors include Sarah Tyson and Nicola Clague Baker "We conclude that considering...

Research Review: Long COVID Is Not a Functional Neurologic Disorder - UK co-auth...

•22 days ago

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17 day atrial fib episode ended today next step 4th ablation or pace and ablate ???

Diagnosed12 years ago 3 ablations now on 150 flexanide bd prior to this episode was in100ng Bd and 1.25 bisoprolol daily not stopping g break through a...

Diagnosed12 years ago 3 ablations now on 150 flexanide bd prior to this episo...

•23 days ago

When you feel you can't take anymore.

No delt we have all asked the same question, what have I done wrong to be like this , everyday I feel like I'm going to hit the ground with my dizziness, up...

No delt we have all asked the same question, what have I done wrong to be like t...

•23 days ago

PEA for FND?

Does anyone have experience of using PEA to reduce the symptoms of FND .. esp the shaking and hypersensitive nervous system?

Does anyone have experience of using PEA to reduce the symptoms of FND .. esp th...

•23 days ago

Research survey on brain fog in FND

Hi, my research team at the Monash Alfred Psychiatry Research Centre in Melbourne is conducting a survey aiming to characterise brain fog in different...

Hi, my research team at the Monash Alfred Psychiatry Research Centre in Melbourn...

•23 days ago

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Covid

Anyone else start having all these issues after the covid vaccine?

Anyone else start having all these issues after the covid vaccine?

FrustratedHuman

•25 days ago

Feeling very whammy today.

I'm not feeling brilliant today I feel very whammy and dizzy trying to do one or two jobs but it's Beaton me I'm just going to sit down and rest .Hope I find...

I'm not feeling brilliant today I feel very whammy and dizzy trying to do one or...

•25 days ago

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