Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

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CBT appointment.

I was wondering how many of you have had to have cbt and if you also suffer with anxiety.Every day seems to get harder specially with appointments, I can't...

I was wondering how many of you have had to have cbt and if you also suffer with...

•1 day ago

MCAS Management

Although I have let to watch the class, this was shared following the class: https://www.mastcellaction.org/management

Although I have let to watch the class, this was shared following the class: htt...

•1 day ago

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Dysautonomia and POTS

I watched an interview with Lisa B and Julie H and made some notes and recommendations. Therapies included : PT: Purpose of PT was to get the heart used to...

I watched an interview with Lisa B and Julie H and made some notes and recommend...

•2 days ago

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Meditation to increase low Interoception

This article that was shared with me recently, not as an official recommendation for my son, but to bring it to my attention. It caught my attention when he...

This article that was shared with me recently, not as an official recommendation...

•3 days ago

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Hey all. I'm new here......looking for people to relate with and share advice xx

So my symptoms started end of Nov 24/ start Dec 24 after an extremely stressful time in my life. It started with a feeling of being very drunk/ disoriented/...

So my symptoms started end of Nov 24/ start Dec 24 after an extremely stressful ...

•3 days ago

Not feeling well tonight

Not feeling to well tonight, left hand feels weak some pain in arm ,and I'm very dizzy 😫 I'm so fed up 😭

Not feeling to well tonight, left hand feels weak some pain in arm ,and I'm very...

•4 days ago

Losing the use of my left hand .

Over the last couple of days I have noticed that I'm losing the use of my left hand and getting breathless dose anyone else suffer the same ?

Over the last couple of days I have noticed that I'm losing the use of my left h...

•4 days ago

I'm struggling today 😪

The start of the day I felt pretty good , but as the day as gone on I have started to feel useless, whilst my wife was working I decided to change the bedding...

The start of the day I felt pretty good , but as the day as gone on I have start...

•5 days ago

Getting your hands to work.

Good morning My friends. Hope I find you all well on this cold and wet morning in the UK. I was wondering if anyone has problems in getting hands to work...

Good morning My friends. Hope I find you all well on this cold and wet morning i...

•5 days ago

Keep hope

I am fairly new to this journey and my path already does look different. I feel lucky that I got a diagnosis shortly after things started to get strange. My...

I am fairly new to this journey and my path already does look different. I feel ...

•6 days ago

My story

Hi everyone.. Firstly I want to apologise for this long post. I guess it all started roughly 16 years ago and to this day, for me 2009 only had 363 days I...

Hi everyone.. Firstly I want to apologise for this long post. I guess it all ...

FreesignerRichie

•7 days ago

Dysautonomia?

Hi all, I hope I'm in the right place here... If not please bare with me, I'm still relatively new to the site. However, I've encountered some wonderful and...

Hi all, I hope I'm in the right place here... If not please bare with me, I'm s...

•7 days ago

Iatrogenic harm in FND

https://doi.org/10.1093/brain/awae283

https://doi.org/10.1093/brain/awae283

•8 days ago

persistence symptoms clinic .Am I Wrong?

hi has anyone been signposted to persistent symptoms clinic , it mental health based and physio , the appointment was 10 mins in taxi and there for about half...

hi has anyone been signposted to persistent symptoms clinic , it mental health b...

•8 days ago

Myasthenia Gravis or other symptoms

I may be affected by Myasthenia Gravis (MG) due to difficulties with swallowing, and recently I can only swallow liquids. I also experience muscle weakness,...

I may be affected by Myasthenia Gravis (MG) due to difficulties with swallowing,...

•8 days ago

Medical cannabis

can anyone help or know if cannabis medical can help with fnd

can anyone help or know if cannabis medical can help with fnd

•9 days ago

Fnd recovery

I was at this fnd meet up it was the 1st night of this group they have me panicking they told me you don't get better from fnd but other people have told me...

I was at this fnd meet up it was the 1st night of this group they have me panick...

•9 days ago

Does anyone else get a cough with FND

I have read that you can get a cough with fnd I was wondering if anyone else have found this or heard about it , I will talk to my doctor tomorrow.

I have read that you can get a cough with fnd I was wondering if anyone else hav...

•9 days ago

Parliamentary petition for FND.. expires June '25

Only just spotted this .. https://petition.parliament.uk/petitions/701517

Only just spotted this .. https://petition.parliament.uk/petitions/701517

•9 days ago

Fnd - eyes

Has anybody got blurred vision like its cloudy ? I have had my eyes checked and all ok. Fnd does such awful things. Coping is very hard day by day. Thank you

Has anybody got blurred vision like its cloudy ? I have had my eyes checked and ...

•10 days ago

Positivity

Since being told I have FND which was a shock. I am learning to appreciate any good days I get. I have had negative responses from some friends and work will...

Since being told I have FND which was a shock. I am learning to appreciate any g...

•10 days ago

Doctors appointment

I've got my doctors appointment on Wednesday , I need to try and tell her how I feel and what's going on in my head ,I get days when I just want to walk out of...

I've got my doctors appointment on Wednesday , I need to try and tell her how I ...

•11 days ago

A ray of NHS light ..Cambridge progressive medicine

https://cambridgeprogressivemedicine.com/services/ A team are designing a treatment programme for GP's to use with patients with functional symptoms .. no...

https://cambridgeprogressivemedicine.com/services/ A team are designing a treat...

•14 days ago

Feeling I have a wet foot.

I have had possible flare up. I have pain in both legs. My left foot feels like it is in cold water or wet and num, although it is dry. My right leg I have a...

I have had possible flare up. I have pain in both legs. My left foot feels like ...

•15 days ago

Canadian website for FND in video format

https://www.vjneurology.com/subject/functional-neurological-disorder/ You can sign up for a newsletter too.

https://www.vjneurology.com/subject/functional-neurological-disorder/ You can s...

•16 days ago

The Barberry Centre Birmingham

I was referred to the Barberry Centre in Birmingham some time end of last year and still heard nothing I've been calling them and getting no response, I've...

I was referred to the Barberry Centre in Birmingham some time end of last year a...

•16 days ago

Explanation of trauma

When I ask people's opinion on if they think that they can get FND because of trauma in thier life i'm meaning childhood sexual abuse as this is what happened...

When I ask people's opinion on if they think that they can get FND because of tr...

•17 days ago

TED Talk by Dr Sarah Lidstone on FND

This was recently shared: https://youtu.be/XtSNBqC1z18?si=xmlRd-rxg1CpwSMh Ted X talk by Dr Sarah Lidstone on FND - it’s All In your Head: Challenging Dualism...

This was recently shared: https://youtu.be/XtSNBqC1z18?si=xmlRd-rxg1CpwSMh Ted X...

•17 days ago

Response to my last two posts

Thanks to everyone that has replied to my last 2 posts it's very interesting to read everybody different views and experience of FND.Having this forum does...

Thanks to everyone that has replied to my last 2 posts it's very interesting to ...

•17 days ago

Leaving taps running

I was wondering how many of you forgot you have turned a tap on and left it running , this is happening far to much one day it maybe the bathroom tap ,that's...

I was wondering how many of you forgot you have turned a tap on and left it runn...

•18 days ago

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