New to forum - a rare type of FND
nope4513 hours ago
Hi - I've joined this group to try and see if there is anyone else out there with the same symptoms my friend has and what treatment they ar...
Bowel problems with FND
sr2623 days ago
I am new to the group and have never used a forum before so a new and scary thing for me 😊.
A little background is that I have has...
Diegoalminez3 days ago
I have a problem with my left eyes it goes freely and closes involuntary....it feels like I have no control over it and does what ever it li...
New to the forum
Lovelyhols3 days ago
I'm new to the site today, was diagnosed with FND symptoms and NEAD last December, also have fibromyalgia and sciatica, asthma and IB...
Well one of my eye goes freely and it seems to close whenever.....tho when it's closes I have no idea but I still see with it.....and one is...
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Off to see my neuro
Ronwyn4 days ago
Hits everyone just a quick update it has been awhile since I last was on due to be unwell as you all know to well. So I had my gallbladder r...
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Slowing down movements with focus
cgarff5 days ago
One last one today. Keep Smiling
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slowing down movements with focus
These pictures I am sharing are done with color pencil on black paper. I have found that by taking the time to sit and focus, I am able to ...
8 Replies4 Likes
I wanted to share a few of my drawings. This is something that helps me to calm down my movements when I am struggling. I love being able ...
Dr Jon Stone webinar
Dot505 days ago
Hi All, Dr Jon Stone is holding another webinar on Thursday 26th October at 9pm UK time. To register, go to fndhope.org then go to webinars,...
1 Reply3 Likes
FND (Conversion) and Complex - Post Traumatic Stress Disorder - anyone else got both these rare disorders
Louyse5 days ago
As you know I've got FND (Conversion) and Complex-Post Traumatic Stress Disorder (C-PTSD). C-PTSD is distinct from the more commonly...
Newly diagnosed- not coping
Mandy19745 days ago
Hi I was diagnosed last week after episodes of
Blackouts, dizzy spells, falls and loss of movement in my right leg.
I am now multiple times ...
2 Replies1 Like
JulieVictoria6 days ago
does anyone else struggle with swallowing solids? I am waiting for a video xray of my swallowing.
Shortness of breath
Katherinedeane6 days ago
Anyone else struggling with shortness of breath? I think I'm loosing upper body strength, crumpling down on chest and so getting breathless....
Advice re support in nottinghamshire and with full body spasms
Sunshine1117 days ago
I was diagnosed with FND 3 months ago after 2yrs of test. I was advised to have physio and psychological therapy, but my Dr s do not know w...
em13mam8 days ago
I went to see the psychiatrist this week and he has said he reckons i will be cured within a month to 2 months🤔...has anyone else been told...
15 Replies1 Like
Ruth_lderry8 days ago
looking for someone to chat with about functional disorder ive had it the last 2 years and it just seems to be getting worse? my doctor does...
24 with FND
Frankie0549 days ago
Hi, I'm frankie! I'm 24 year old female. I have been expericing neurological symptoms, and today I saw a neurological specialist who today d...
3 Replies1 Like
ESA/PIP Assessment review by Work & Pensions Committee
DawnFNDHope10 days ago
1 Reply2 Likes
Scottish Petition on more NHS Support for FND Sufferers
Louyse12 days ago
I've signed the UK petition calling on better NHS provision for FND sufferers. I've put it on my Facebook and my friends are beginni...
5 Replies2 Likes
FND Conversion Disorder is still FND
I don't want to start a war of words or anything of that kind as I find this site really really important to me and know that others...
5 Replies4 Likes
I'm curious, do any of you also have EDS and FND?
Margretliljan13 days ago
I have both and I'm wondering if there might be a link between them as some websites mention there are many people with the two co occurring...
Recently diagnosed, is it possible to become symptom free?
I'm in hospital and have been for the past month, recieving intense physiotherapy to try and get my body to work again. I struggle most with...
Another go at Jon Stone book link.
Louyse14 days ago
I just copied and pasted this from the email I had from Jon Stone so I hope...
Link to Jon Stone book
Hmm the link didn't seem to work. Need to work out what went wrong.
Promised link to Jon Stone et al book
Here goes (I told you it was long and I hope this works):
Research into FND
I said in an earlier post that I asked my Consultant Jon Stone about research going on in to FND. There is a very long book on the w...
Coming to terms with FND?
LEEJUNFAN14 days ago
I've posted a similar blog related to this before but I'm returning to it because it's a big question for my wife Kim who has FN...
6 Replies2 Likes
Not shore if i did the right thing today
timtam201414 days ago
Im now put on baclofen there times a day but two day i missed my morning does so i took two at lunch time now i feel yuc and have the bigge...
I KNOW I AM GOING TO GET EVERYONE ANGRY
cocoferraro16 days ago
Hi Guys once again,
I know I am going to get everyone angry!-maybe I feel this way because of my FND-I don't know? BUT I want to write as I r...
17 Replies3 Likes
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