Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

6,091 members•3,342 posts

All things Functional Neurological Disorder Symptoms FND Hope posts

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Memories and GI Problem

(TMI, but I think it's a good thing to talk about) Hello!! Everyone in my last post was so sweet and helpful!! currently, I'm on vacation at the beach, and...

(TMI, but I think it's a good thing to talk about) Hello!! Everyone in my last...

•9 days ago

FND & Lock Jaw?

Greetings, FND Hope Friends: I am finally heading off to visit with an otolaryngologist this week to address the random issues related to lock jaw that I have...

Greetings, FND Hope Friends: I am finally heading off to visit with an otolaryng...

•18 days ago

fnd & pppd symptoms. How do you cope with?

I have fnd and pppd. I struggle with dizziness, balance issues, and feeling off-balance. Some days are really tough. How do you manage these symptoms? Any tips...

I have fnd and pppd. I struggle with dizziness, balance issues, and feeling off-...

•27 days ago

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persistence symptoms clinic .Am I Wrong?

hi has anyone been signposted to persistent symptoms clinic , it mental health based and physio , the appointment was 10 mins in taxi and there for about half...

hi has anyone been signposted to persistent symptoms clinic , it mental health b...

•2 months ago

Migraine

Hi i have Fnd and fibromyalgia Have chronic migraines cannot take medications. Have been offered botox but am scared how i will react. Have had migraine for 4...

Hi i have Fnd and fibromyalgia Have chronic migraines cannot take medications. H...

•5 months ago

FND Advice

Hi, I got diagnosed last December. But still don't know much about FND, and all the things, like how to explain it, first aid, who should be on my support...

Hi, I got diagnosed last December. But still don't know much about FND, and all ...

•6 months ago

Symptoms ruining my life

whether it’s the tremors in my neck potentially flaring up or constantly licking my lips it never ends, I am always worried and never truly at peace. It’s...

whether it’s the tremors in my neck potentially flaring up or constantly lickin...

•6 months ago

Moving forward

Before my diagnosis, I had various symptoms that I could not control, and afterward would lose parts of my memories, it was people's names and events later I...

Before my diagnosis, I had various symptoms that I could not control, and afterw...

•10 months ago

Hello

Hi there, this is my first post and I am not sure of where I should start. I feel very alone these days, I am always unedge when it comes to stress management...

Hi there, this is my first post and I am not sure of where I should start. I fee...

•1 year ago

newly diagnosed

my wife was diagnosed with FND a month ago after havens been ill for a few days before with bad abdominal pains (time of month) and feeling spaced out , long...

my wife was diagnosed with FND a month ago after havens been ill for a few days ...

•1 year ago

Tri-geminal neurology.

One side of my face affected and it has gone cold? Any info welcome.

One side of my face affected and it has gone cold? Any info welcome.

•1 year ago

Support

Hi, I have recently been diagnosed with FND and I'm finding this diagnosis very overwhelming. My GP is very good, specialists etc are good but I just need...

Hi, I have recently been diagnosed with FND and I'm finding this diagnosis very ...

•2 years ago

12months post onset and improving

I will be at the 1 year mark on the 24th Jan and only these past 4 weeks have I seen a great improvement in my energy and capacity for walking. I have felt...

I will be at the 1 year mark on the 24th Jan and only these past 4 weeks have I ...

•2 years ago

SSA Disability- United States - any success stories out there??

Good morning FND family, I am reaching out to see if anyone has had any success acquiring Disability approval with Social Security Administration. I also...

Good morning FND family, I am reaching out to see if anyone has had any success...

•3 years ago

FND Hope patient advocacy speech at the closing of the FND training meeting in Birmingham UK to almost 200 medical professionals.

The following is a recap of Chrissie (our Vice President and UK representative) and I's UK week. It is also pieces of the talk I gave at the closing of the FND...

The following is a recap of Chrissie (our Vice President and UK representative) ...

Administrator•11 years ago

Physical Rehabilitation for FND Patients at the Mayo Clinic

I would like to mention the program developed at the Mayo Clinic in Rochester, MN for motor and speech reprogramming in FND patients. I was offered this...

I would like to mention the program developed at the Mayo Clinic in Rochester, M...

•12 years ago

FNDhope.org Needs Your Help

We are trying to improve our website. Go to the website www.fndhope.org read some pages, click some links, watch some videos and then go to 'Contact Us'...

We are trying to improve our website. Go to the website www.fndhope.org read...

•12 years ago

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FNDhope.org on Facebook

Just wanted to let everyone know that in addition to an open facebook page and a private facebook page we now have a new private facebook page called FNDhope...

Just wanted to let everyone know that in addition to an open facebook page and a...

•12 years ago

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WELCOME

We would like to welcome all our members. Aside from our private facebook page this is the most consistent and active FND forum. We appreciate everyone...

We would like to welcome all our members. Aside from our private facebook page...

Administrator•12 years ago

HealthUnlocked-exciting changes coming soon. Watch this space!!

The HealthUnlocked website will be out of action from around 9am to 1pm London time Tuesday. Once the site becomes available there will be on going changes...

The HealthUnlocked website will be out of action from around 9am to 1pm London t...

Administrator•12 years ago

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Research needs YOU! All UK patients with cervical dystonia who have had botox please consider.

Dear Sir/Madam, Opinion Health is a healthcare research agency based in London, UK. We are currently conducting a research study on cervical...

Dear Sir/Madam, Opinion Health is a healthcare research agency based in Lon...

Administrator•12 years ago

Are patients safe in their care?

Karina has ME but is under the care of two doctors who have ordered this treatment that are psychiatrists Nils Balle Christensen and Per Fink from The Research...

Karina has ME but is under the care of two doctors who have ordered this treatme...

Administrator•12 years ago

The Fall of the DSM-5

The Fall of the DSM keep up with what is happening follow us on twitter @FNDHope https://twitter.com/FNDHope...

The Fall of the DSM keep up with what is happening follow us on twitter @FNDHo...

Administrator•12 years ago

APRIL 7-13 AWARENESS WEEK. ARE YOU FND AWARE?

Go to www.fndhope.org to Unite and build awareness all over the world.

Go to www.fndhope.org to Unite and build awareness all over the world.

Administrator•12 years ago

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UNITE CAMPAIGN AND FND/CD AWARENESS DAY

We are trying to UNITE all those with a Functional Neurological Disorder / Conversion Disorder diagnosis past or present. Little is known or understood and it...

We are trying to UNITE all those with a Functional Neurological Disorder / Conve...

Administrator•12 years ago

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BE INFORMED. SHARE.

Come May, everyone with chronic medical illness or long-term pain – from cancer to coronary disease, MS to myalgia, becomes a potential candidate for a new...

Come May, everyone with chronic medical illness or long-term pain – from cancer ...

Administrator•12 years ago

There is Hope and answers for functional dystonia.

email I received yesterday. Dear FND, Some of your members of site visitors may find our article on dystonia interesting....

email I received yesterday. Dear FND, Some of your members of site visitor...

Administrator•12 years ago

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NEURO FILM FESTIVAL 2013-FND A CRISIS FOR NEUROLOGY

PLEASE WATCH http://www.fndhope.org/neuro-film-festival-2013-fnd/

PLEASE WATCH http://www.fndhope.org/neuro-film-festival-2013-fnd/

Administrator•12 years ago

There's so much more to this condition than stress. I hope they understand more in my life time.

I am feel really let down by the medical system. I have been to my course and its just poppy cock. The focus is on your mental health and its just not an...

I am feel really let down by the medical system. I have been to my course and it...

•12 years ago

Making a Change for FND

Please take the time to sign this petition if you have not done so already. Please also ask friends and family to sign as well. This petition is meant to get...

Please take the time to sign this petition if you have not done so already. Ple...

Administrator•12 years ago

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