Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,638 members • 2,941 posts

All posts for July 2021

What changes when Diagnosed?

I’m thankful to live in an area where there is a clinic specifically designed for FND. MGH Boston. I’m curious what happens when you’re diagnosed, that would...

I’m thankful to live in an area where there is a clinic specifically designed fo...

seamuspg

•3 years ago

7 Replies

UK members: Royal Society of Medicine event about FND on Mon 13th Sept.

As far as I can tell this event isn't a #patientsincluded event although I may be wrong. I'm not on twitter but if you are you could ask about this as I think...

As far as I can tell this event isn't a #patientsincluded event although I may b...

210272

•3 years ago

2 Replies

Work/ employment/ hobbies

Would love to hear back what fellow FND' ers do to get by- what work do you do? Or hobbies to get you up in the morning? I am facing a reality where I am...

Would love to hear back what fellow FND' ers do to get by- what work do you do? ...

Robyn83

•3 years ago

7 Replies

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FND / Trauma / MDMA Therapy

Hey everyone- Not diagnosed with FND yet, but my guess is I will be soon. I've had everything else ruled out and my tremors are increasing, right sided limp,...

Hey everyone- Not diagnosed with FND yet, but my guess is I will be soon. I've ...

seamuspg

•3 years ago

4 Replies

New organic symptoms but lack of asses by neuro team due to past history

new symptoms of neuro origin and spinal not FND Referal to neuro but due to past fnd dx they have triaged me as non urgent and won’t be seen fir 12-16 months...

new symptoms of neuro origin and spinal not FND Referal to neuro but due to pas...

mermaid-680

•3 years ago

7 Replies

Update I know it's a bit late

Hi all I said I'd update on how my day out went ok so I said sod the pain and went bowling with the wife and kids all was good after first game but felt the...

Hi all I said I'd update on how my day out went ok so I said sod the pain and we...

terry9griffins

•3 years ago

2 Replies

Disbelief

Anyone else feel this diagnosis is just a failure of medical professionals to investigate? A way to write of patients and gaslight them into believing it’s...

Anyone else feel this diagnosis is just a failure of medical professionals to in...

Gaslitbymedicine

•3 years ago

26 Replies

Ct thorax

Sitting at glan clwyd waiting for a ct thorax scan as shadow and lump showed up on my left lung Terrible to get here as still no driving licence

Sitting at glan clwyd waiting for a ct thorax scan as shadow and lump showed up...

pclark101164

•3 years ago

1 Reply

Interesting FND article by Dr Tomlinson

https://abetternhs.net/2021/07/02/sleeping-beauties-functional-symptoms-ecology-and-trauma/

https://abetternhs.net/2021/07/02/sleeping-beauties-functional-symptoms-ecology-...

Mic67

•3 years ago

1 Reply

Cycling and FND

To everyone that so kindly replied to my question regarding how their symptoms are after cycling, thank you so much, as all your replies give me hope. Kim xx...

To everyone that so kindly replied to my question regarding how their symptoms a...

LEEJUNFAN

•3 years ago

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for July 2021

What changes when Diagnosed?

UK members: Royal Society of Medicine event about FND on Mon 13th Sept.

Work/ employment/ hobbies

FND / Trauma / MDMA Therapy

New organic symptoms but lack of asses by neuro team due to past history

Update I know it's a bit late

Disbelief

Ct thorax

Interesting FND article by Dr Tomlinson

Cycling and FND

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive