Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,638 members • 2,940 posts

All posts for June 2023

Do medication stop dystonia muscle attacks?

Just wondering if medication like diazepam works for dystonia caused by fnd? Or does it not work for dystonia caused by fnd. Wondering because I know the meds...

Just wondering if medication like diazepam works for dystonia caused by fnd? Or ...

•10 months ago

Found this useful resource on Hope Site for children and young adults with FND

https://fndhope.org/wp-content/uploads/2023/06/FND-Workbook_hope-only.pdf

https://fndhope.org/wp-content/uploads/2023/06/FND-Workbook_hope-only.pdf

•10 months ago

Weird goosebumps

Hi everyone, any updates on them goosebumps? I have them for about 6 months now.

Hi everyone, any updates on them goosebumps? I have them for about 6 months now....

•10 months ago

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New patient tool to explain seizures. Graphic Novel 'Not There' : people go into a trance like state. Views welcome.

https://neurosymptoms.org/en/media/other-media/not-there-a-graphic-novel-about-functional-seizures/

https://neurosymptoms.org/en/media/other-media/not-there-a-graphic-novel-about-f...

•10 months ago

Progress on Tuller et al's questioning of the actual prevalence of FND. As usual, I'd welcome your thoughts ...

https://virology.ws/.../trial-by-error-fnd-experts-agree.../

https://virology.ws/.../trial-by-error-fnd-experts-agree.../

•10 months ago

Fnd Movement symptoms and Autism diagnosis

Hey, for those who are autistic and have motor symptoms as part of their FND, this paper talks about the link between parkinsonism and autism. It's a...

Hey, for those who are autistic and have motor symptoms as part of their FND, th...

•10 months ago

FND and disassociate seizures

Hi Although my loved one isn't experiencing the above, currently chronic headaches, I came across a useful publication by Sheffield University, so I am sharing...

Hi Although my loved one isn't experiencing the above, currently chronic headach...

•10 months ago

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FND and chronic pain

my 15 yo son was diagnosed a year ago with FND. Initially it would present as pseudo-seizures and he’d feel pain throughout his body and be unable to move. The...

my 15 yo son was diagnosed a year ago with FND. Initially it would present as ps...

•10 months ago

Twitching Fasticulations in legs anyone?

I have pretty severe twitching fasticulations that are always visible in my legs they can be painful and accompany what I think is rls or small fiber...

I have pretty severe twitching fasticulations that are always visible in my legs...

•10 months ago

This may be of interest to people here who have been diagnosed with Fibromyalgia ...

As far as I can tell, a Fibromyalgia dx was/is often a gateway diagnosis to a FND dx which has always felt inappropriate to me since the tests for FND (eg the...

As far as I can tell, a Fibromyalgia dx was/is often a gateway diagnosis to a FN...

•11 months ago

Please help! FND - what has helped you?

We are at our wits ends trying to find answers/help for my mum's various FND symptoms. Some very odd - see below. Her condition is so severe she can barely...

We are at our wits ends trying to find answers/help for my mum's various FND sym...

•11 months ago

FND Courage Course

Hi Does anyone know if teenagers are accepted in this course, tried to email but error message and would not seen. I noticed they were doing a retreat fir...

Hi Does anyone know if teenagers are accepted in this course, tried to email but...

•11 months ago

Keep driving?

I'm 68 years old female, Australia, recently I was put down for a driving test by my new gp, only saw her twice before, other gp left. It's the full test they...

I'm 68 years old female, Australia, recently I was put down for a driving test b...

•11 months ago

Son graduation is Friday I'm scared ill miss another one 😢

This would be the second graduation I miss if I can't sine home make it out of bed 😩. My faimly will be extremely disappointed as will he I'm sure 😔 do far...

This would be the second graduation I miss if I can't sine home make it out of b...

•11 months ago

Revive

Hi , just sharing my experience after using a revive machine on my feet , knees n arms , only used it 3 days , for half hour on each part of body n am already...

Hi , just sharing my experience after using a revive machine on my feet , knees ...

•11 months ago

Severe pressure in head when move?

Hi all My mum has been diagnosed with FND - and is really, really struggling as I know many of you also are. One of the main things affecting her is a...

Hi all My mum has been diagnosed with FND - and is really, really struggling a...

•11 months ago

This may be of interest to people here who have dystonia and/or tremors.

10.14802/jmd.22154

10.14802/jmd.22154

•11 months ago

Facial numbness and blurred vision

Hi everyone :I've suffered, or been diagnosed with FND (eventually) for 10 years, that is after the fibromyalgia, migraine, and multiple chronic syndrome.....

Hi everyone :I've suffered, or been diagnosed with FND (eventually) for 10 years...

•11 months ago

This may be of interest to people here, particularly those in the UK.

Dave & Amanda #BackThe1in6, calling on the government to create a UK-wide Neuro Taskforce. Prompt and accurate diagnosis of neurological conditions is needed...

Dave & Amanda #BackThe1in6, calling on the government to create a UK-wide Neuro ...

•11 months ago

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FND diagnosis and not coping well with it

Saw neurologist today for my brain MRI results. Confirmed results as normal , no abnormalities seen. Wasn’t shown MRI which I thought I would . Diagnosed me...

Saw neurologist today for my brain MRI results. Confirmed results as normal , no...

•11 months ago

Has anyone else watched/listened to ...

... Jon Stone's fairly recent YouTube video called 'Organic vs Functional - Perspectives from Neurology'? I found it baffling because he seems to have decided...

... Jon Stone's fairly recent YouTube video called 'Organic vs Functional - Pers...

•11 months ago

Should Conventional Medicine start blending with Functional Medicine to improve Western healthcare systems?

This is my question of the day... We are all suffering horribly. From ignorance, mainly. Sorry to point it out... Management of B12, of gut health, of...

This is my question of the day... We are all suffering horribly. From ignoranc...

•11 months ago

FND and Self Harm

Anybody come across any links between FND and Self Harm.

Anybody come across any links between FND and Self Harm.

•11 months ago

FND taking over life

Help. FND seems to be progressing at a very fast rate, symptoms are making very depressed. Hospital are mucking me around and I am out of area for treatment...

Help. FND seems to be progressing at a very fast rate, symptoms are making very ...

•11 months ago

My FND Recovery

I used to be completely debilitated by my FND. I felt isolated and alone. I couldn't drive. Couldn't work. Now I'm FND symptom free. I highly recommend...

I used to be completely debilitated by my FND. I felt isolated and alone. I co...

•11 months ago

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