Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,638 members • 2,941 posts

All posts for September 2023

This may be of interest to people here who have been diagnosed with FND after a viral infection or as a result of vaccine injury.

https://virology.ws/.../trial-by-error-david-putrino-on.../ Good to hear that medical gaslighting got mentioned and that medically induced PTSD is becoming...

https://virology.ws/.../trial-by-error-david-putrino-on.../ Good to hear that...

•7 months ago

Has anyone experienced Depletion/Regression/Deterioration in mobility after MVA without treatments?

I was in a severe MVA in 2018 causing brain injury, FND, highly compromised vision and PTSD. I am just wondering how everyone’s journey has been when it comes...

I was in a severe MVA in 2018 causing brain injury, FND, highly compromised visi...

•7 months ago

Research Explanation for the development of FND: answering why did this happened to me? Why deep breathing helps intermittently?

Hi there, I have put together a research I have completed regarding about the origin of FND. Hope it helps/shed some light for you or those who still struggle...

Hi there, I have put together a research I have completed regarding about the or...

•7 months ago

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Neuropsychiatrists - Fun

Hi It seems to me that all of us who post on here are going through really tough times, and due to our health have been for a very long time. We live in pain,...

Hi It seems to me that all of us who post on here are going through really tough...

•7 months ago

FND diagnosis ... DIY

I am first going to quote Professor Jon Stone off the latest Podcast kindly shared by member: 210272 "If you just give someone a website and say goodbye - that...

I am first going to quote Professor Jon Stone off the latest Podcast kindly shar...

•7 months ago

Final episode of the FND podcasts

In this episode of the Neurology Podcast: Prof. Jon Stone and Drs. Selma Aybek, David Perez, and Sarah Lidstone discuss diagnosis & treatment in the last...

In this episode of the Neurology Podcast: Prof. Jon Stone and Drs. Selma Aybek, ...

•7 months ago

Late to the party, as usual, but Happy Balance Awareness Week, y'all :) Since I know there are people here who have balance issues, this ...

... survey may be of interest to the UK members. The info is via VEDA: Attention UK-based vestibular patients! There is a study being conducted that needs...

... survey may be of interest to the UK members. The info is via VEDA: Attentio...

•7 months ago

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Are there any support groups or networks for kids?

My child was diagnosed with FND in January. She was doing great this summer, and although we knew that it could recur, we got lulled into believing - and she...

My child was diagnosed with FND in January. She was doing great this summer, an...

TheFourAgreements

•7 months ago

Anyone with similar symptoms?

Hi everyone, I was diagnosed with FND in August 2023 after almost 2 years of seeing many doctors, specialists, etc. In early 2022, I started having...

Hi everyone, I was diagnosed with FND in August 2023 after almost 2 years of see...

•7 months ago

I would like to thank everyone who responded to my previous post - Lack of disorder knowledge by GP

Once again thank you for your help and support, I had another GP visit today and it went much better, I was very polite, but told him that sometimes I don't...

Once again thank you for your help and support, I had another GP visit today and...

•8 months ago

This event may be of interest to people here, especially those in the UK.

Launching research findings on a project about gender, health care and energy limiting conditions. Join the launch event on Thursday 14 September. Register...

Launching research findings on a project about gender, health care and energy li...

•8 months ago

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Lack of disorder knowledge by GP

Does anyone experience difficulty to be understood by their GP regarding FND due to a lack of expertise in this field? When I discuss my matter with GP he...

Does anyone experience difficulty to be understood by their GP regarding FND due...

•8 months ago

Fnd first year of diagnosis

I'm within the first year of my diagnosis of FND. I wake up everyday trying to remember who I was before this illness took over me. I feel I'm developing a...

I'm within the first year of my diagnosis of FND. I wake up everyday trying to r...

•8 months ago

living with fnd

Living moment to moment with FND, is very challenging almost a life now of surprises. I do what I can , but sleeping is my rescue. My brain is foggy and it...

Living moment to moment with FND, is very challenging almost a life now of surpr...

•8 months ago

is Acid Reflux a FND symptom

I lost my voice - mid May 2022. I received medical treatment. After taking lots and lots of meds, I experienced stomach and bowel issues. A specialist...

I lost my voice - mid May 2022. I received medical treatment. After taking lots...

•8 months ago

2nd podcast from the FND roundtable panel now available.

https://bit.ly/3YRuKq7 It was prerecorded and came out on 29th August but I haven't had internet access for a while so have only just seen it/heard it.

https://bit.ly/3YRuKq7 It was prerecorded and came out on 29th August but I hav...

•8 months ago

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