Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,627 members • 2,936 posts

All posts for November 2019

Help With Neurologist Appointment

Hi, I got a diagnosis of FND in May by my GP and after ending up in a&e last week I was rushed for a neurologist appointment which is tomorrow. I’ve never been...

Hi, I got a diagnosis of FND in May by my GP and after ending up in a&e last wee...

Kacijaine

•4 years ago

4 Replies

Struggling with new diagnosis and the debilitating symptoms I have!

Hello all, I have recently been diagnosed with FMD. I have uncontrollable jerking in my legs, I am unable to walk without assistance. On a really bad day it...

Hello all, I have recently been diagnosed with FMD. I have uncontrollable jerk...

Graf67

•4 years ago

5 Replies

Communicate

When your symptoms affect your speech what apps or other resources do you use to help you communicate?

When your symptoms affect your speech what apps or other resources do you use to...

Lolastar

•4 years ago

4 Replies

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On The Daily

I'm back to walking without having to rest for the rest of the day to recover. I can walk about an hour and be ok. It's not perfect, but neither was the...

I'm back to walking without having to rest for the rest of the day to recover. I...

Lolastar

•4 years ago

2 Replies

Cervical dystonia?

Has anyone experienced cervical dystonia symptoms? This is my predominant symptom, unclear still to me if it’s primary or functional. Either way it has...

Has anyone experienced cervical dystonia symptoms? This is my predominant sympt...

jhop

•4 years ago

7 Replies

Hair loss

I’ve just noticed that over the last year I’ve lost a lot of hair and it’s stopped growing. Whilst it’s expected for blokes to have this problem, I don’t think...

I’ve just noticed that over the last year I’ve lost a lot of hair and it’s stopp...

JustDomUK

•4 years ago

7 Replies

Second opinion

I’ve just had a second opinion with a neurologist. I didn’t get my list out and just answered the questions. I’m sure I didn’t mention half the things I had...

I’ve just had a second opinion with a neurologist. I didn’t get my list out and ...

artmom

•4 years ago

13 Replies

I am looking for an FND expert to give opinion for court

Hello all, I am looking for details of an expert on FND to write an opinion on my husband's FND condition to submit to a tribunal. The expert will need to...

Hello all, I am looking for details of an expert on FND to write an opinion on ...

Devotedtolife

•4 years ago

7 Replies

Inflammation with FND this is not psychological

To all you so called specialists, no...FND is not psychological. It is not “conversion disorder”. It is caused by inflammation. Over the past few years I have...

To all you so called specialists, no...FND is not psychological. It is not “conv...

AjaStar

•4 years ago

66 Replies

FND_

Thanks again for your message FND_ Changed my mind about asking you to remove me from this group.

Thanks again for your message FND_ Changed my mind about asking you to remove ...

210272

•4 years ago

Be the first to reply

Ok or not OK

Is it ever OK to refer to conditions like stroke, epilepsy, headache and dementia as 'common and mundane' ?

Is it ever OK to refer to conditions like stroke, epilepsy, headache and dementi...

210272

•4 years ago

4 Replies

FND x Pilates Sessions

Don’t just accept a label. Fight against your weaknesses. Just believe. We all can do it!

Don’t just accept a label. Fight against your weaknesses. Just believe. We all...

Lima-B

•4 years ago

3 Replies

FND diagnosed 14,Nov..

Hi all, after a year or different tests and diagnosis I finally have a name for this mind blowing condition... I have other medical issues that I won’t go into...

Hi all, after a year or different tests and diagnosis I finally have a name for ...

Ian2224

•4 years ago

8 Replies

Rosa Buffon Center Discharge

Hi Just had my follow up appointment with Dr Mallam at the Rosa burden centre Bristol. First of all she puts you at ease straight away and is very easy to...

Hi Just had my follow up appointment with Dr Mallam at the Rosa burden centre Br...

Mygeordiebud

•4 years ago

5 Replies

For all of you who think 'conversion disorder', 'hysteria' etc are a thing of the past ...

... here's what Jon Stone lists as his areas of expertise: Research expertiseFunctional Disorders, Hysteria, Conversion Disorder, Psychogenic Disorders

... here's what Jon Stone lists as his areas of expertise: Research expertiseFun...

210272

•4 years ago

6 Replies

Joint popping/clicking?

In the past few weeks a lot of my symptoms have improved greatly, which made me very happy. However one symptom has gotten worse and that is that my joints...

In the past few weeks a lot of my symptoms have improved greatly, which made me ...

Hidden

•4 years ago

9 Replies

Body temperature

Does anyone have a terrible time with their body temperature? I know my circulation has gotten worse in general but as the weather is cooling down I feel cold,...

Does anyone have a terrible time with their body temperature? I know my circulat...

Mama_Bear_To_4

•4 years ago

13 Replies

MORE RECENT RESEARCH

I previously posted an article on White matter and some felt it was a little old. This article, and I do not pretend to understand it all, was published 30th...

I previously posted an article on White matter and some felt it was a little old...

Dave_1

•4 years ago

8 Replies

Anyone had experience with getting care for FND in prison (UK)?

Hi everyone, My husband was just diagnosed with FND. He is in prison which is hard enough for anyone and is constantly the victim of racist attacks. So he has...

Hi everyone, My husband was just diagnosed with FND. He is in prison which is ha...

Devotedtolife

•4 years ago

11 Replies

Another report I've had from someone who was misdiagnosed with 'FND' ...

This report came via a friend and was from someone who has diabetes which often causes problems with balance. But because they were told it was 'FND' and no...

This report came via a friend and was from someone who has diabetes which often ...

210272

•4 years ago

45 Replies

Has anyone's symptoms suddenly resolved?

Hi everyone. Im new (within a month) to FND. In early October I experienced a horrible migraine followed by left side mouth drooping. Two days later I was...

Hi everyone. Im new (within a month) to FND. In early October I experienced a ho...

Chips26

•4 years ago

10 Replies

Survey about sleep paralysis

Hello! My partner and I are researching sleep paralysis and its causes. We were wondering if you could fill out this short form of around 12 questions about...

Hello! My partner and I are researching sleep paralysis and its causes. We were...

gachibass

•4 years ago

2 Replies

What does 'functional overlay' mean?

And why do any neuros or GPs write this in our notes?

210272

•4 years ago

4 Replies

WE NEED TO EXPLORE MORE

I found this a few years ago and like everyone else wonder about its' significance or not. It is also interesting that it also relates to Autism. Published in...

I found this a few years ago and like everyone else wonder about its' significan...

Dave_1

•4 years ago

9 Replies

Just Diagnosed with FND

Confused. Trying to work it all out. Just diagnosed

Collie44

•4 years ago

8 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for November 2019

Help With Neurologist Appointment

Struggling with new diagnosis and the debilitating symptoms I have!

Communicate

On The Daily

Cervical dystonia?

Hair loss

Second opinion

I am looking for an FND expert to give opinion for court

Inflammation with FND this is not psychological

FND_

Ok or not OK

FND x Pilates Sessions

FND diagnosed 14,Nov..

Rosa Buffon Center Discharge

For all of you who think 'conversion disorder', 'hysteria' etc are a thing of the past ...

Joint popping/clicking?

Body temperature

MORE RECENT RESEARCH

Anyone had experience with getting care for FND in prison (UK)?

Another report I've had from someone who was misdiagnosed with 'FND' ...

Has anyone's symptoms suddenly resolved?

Survey about sleep paralysis

What does 'functional overlay' mean?

WE NEED TO EXPLORE MORE

Just Diagnosed with FND

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive