Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,622 members • 2,934 posts

All posts for July 2018

Nerve pain in legs

Hi all, I have been having some severe nerve pain from my lower back down to my toes :( I am wondering what or if there is anything I can do to help...

Hi all, I have been having some severe nerve pain from my lower back down to my...

dbar126

•6 years ago

11 Replies

How to help pain in foot.

I have had FND for a year with sezures and muscles twiches and tremors, headaches also problems with gate and pain all on occasions. I was signed off...

I have had FND for a year with sezures and muscles twiches and tremors, headache...

Ksjones

•6 years ago

6 Replies

Episodes of paralysis

Hello, I have been experiencing sporadic episodes of paralysis for the past three years. I start feeling slowed down, and heavy, and then I just freeze like a...

Hello, I have been experiencing sporadic episodes of paralysis for the past thre...

PsychosomaticNerd

•6 years ago

25 Replies

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Epilepsy or non epileptic seizures

I came across this group as I was looking for information/ advice about involuntary movements/ epilepsy/ non epileptic seizures My symptoms initially started...

I came across this group as I was looking for information/ advice about involunt...

Katie-IBS

•6 years ago

7 Replies

FND help?

I was just recently diagnosed with FND in June and I am still waiting to get into a movement clinic (MoRe) in Louisville KY. This started April 4, 2018 and I...

I was just recently diagnosed with FND in June and I am still waiting to get int...

T-KY

•6 years ago

6 Replies

FND sucks

Hi I was diagnosed with FND 7 mths ago, life changing to say the least, dealing with seizures, blackouts, Functional weakness etc etc, lost my job, home and...

Hi I was diagnosed with FND 7 mths ago, life changing to say the least, dealing ...

Andrwhll

•6 years ago

13 Replies

Time to consider CBD?

I have a friend at work whos daughter suffers from FND. I have been doing a lot of research in to CBD oil and its benefits. I was doing research for her and...

I have a friend at work whos daughter suffers from FND. I have been doing a lot...

HealthyAging

•6 years ago

6 Replies

Just been diagnosed with functional neurological disorders got a couple of questions thanks

By everyone I got diagnosed with functional neurological disorder means nothing really as IV already had two strokes I am attached to a machine that gives me...

By everyone I got diagnosed with functional neurological disorder means nothing ...

Sparticas123

•6 years ago

5 Replies

Help i guess?

Hello, its been a while since i talked on here. I have been diagnosed with FND for awhile now,but ive run into some annoying things that have been happening...

Hello, its been a while since i talked on here. I have been diagnosed with FND ...

Matthugh

•6 years ago

9 Replies

I've started having tremors in my legs. Is that bad?

This week I noticed my left leg started shaking, and today the right has joined in. Not all the time though, but I had PT today and they want me to mention it...

This week I noticed my left leg started shaking, and today the right has joined ...

Jesdue

•6 years ago

6 Replies

To all who replied to my blogs.

Hi everyone, Thank you all again for your kind replies. Kim had her rehousing medical last week and unfortunately the letter isn't good that we've received....

Hi everyone, Thank you all again for your kind replies. Kim had her rehousing ...

LEEJUNFAN

•6 years ago

7 Replies

Anti NMDA receptor encephalitis

Hi all I was given the diagnosis of 'conversion disorder/ FND' a few years ago when I had seizures, movement disorder, gait disturbance, balance issues etc. I...

Hi all I was given the diagnosis of 'conversion disorder/ FND' a few years ago w...

lily82

•6 years ago

4 Replies

Newly diagnosed daughter 30 years old.

Hi there, Quick question. Does anybody get better with FND or is it a long term condition? My daughter is newly diagnosed with this and having read into...

Hi there, Quick question. Does anybody get better with FND or is it a long term ...

Helenslea10

•6 years ago

7 Replies

Newly diagnosed and wants a baby

Hi All I’m new to this website - but it looks a great source of support. My sister was diagnosed with FND about 2 weeks ago. She was on meds previously for...

Hi All I’m new to this website - but it looks a great source of support. My sist...

JJH86

•6 years ago

8 Replies

Does anyone else diagnosed with F.N.D suffer from changes to heat and cold temperatures outside?

Hi, I was diagnosed with F.N.D a year ago having hit my head under the stairs cupboard 3 years previously and suffered daily migraines which also affected my...

Hi, I was diagnosed with F.N.D a year ago having hit my head under the stairs cu...

Bumble3

•6 years ago

Be the first to reply

Message of thanks to everyone.

Hi everyone! You may recall me posting a blog several weeks back, regarding advice about me being in two minds about taking my job offer with Greater...

Hi everyone! You may recall me posting a blog several weeks back, regarding adv...

LEEJUNFAN

•6 years ago

3 Replies

FND Research Survey

Give your opinion on the direction of FND Research! Please complete the easy short survey with the following link: https://goo.gl/forms/h33JXgkmVvFdiRAj2

Give your opinion on the direction of FND Research! Please complete the easy sho...

FND_

Administrator•6 years ago

Be the first to reply

Diagnosed FND

Hi as a registered nurse my self I have now been diagnosed with FND. I worked Neuro for 20 years so this is a bit of a shock. Anyway woke up numb face and no...

Hi as a registered nurse my self I have now been diagnosed with FND. I worked Ne...

Joanne78

•6 years ago

9 Replies

Conversion disorder

Conversion disorder question Does anyone out there with conversion disorder able to feel pain Reply back Have anyone out there cured their conversion...

Conversion disorder question Does anyone out there with conversion disorder abl...

Rambo51

•6 years ago

2 Replies

The Motor Reprogramming Program for Functional Movement Disorders in Kentucky

I see there's a clinic for FND in Kentucky that has a week-long inpatient rehab program. Has anyone done this? All the local doctors (northern Virginia) are...

I see there's a clinic for FND in Kentucky that has a week-long inpatient rehab ...

Jesdue

•6 years ago

14 Replies

Speech Loss following a Dissociative Seizure

Hi, Wondering if anyone else has had the experience of losing their speech after an episode. Its happened to me a few times and it seems to be becoming more...

Hi, Wondering if anyone else has had the experience of losing their speech afte...

shoseraw

•6 years ago

6 Replies

Advice on FND

Hi, I was diagnosed 2 weeks ago with FND and my symptoms are primarily weakness in the left side of my body particularly legs also experience tingling...

Hi, I was diagnosed 2 weeks ago with FND and my symptoms are primarily weakness ...

Thorney77

•6 years ago

3 Replies

How to help my son

My son is 28 and was diagnosed with FND 2 years ago he is really struggling and could do with some advice on how to help him he doesn’t get much support from...

My son is 28 and was diagnosed with FND 2 years ago he is really struggling and ...

Katie68

•6 years ago

8 Replies

Big day Wednesday

On Wednesday I am walking through the neurological outpatients depot at the hallamshire hospital sheffield my last appointment there was a while ago I walked...

On Wednesday I am walking through the neurological outpatients depot at the hall...

Mat08

•6 years ago

1 Reply

Don't give up

This is for us all

Mat08

•6 years ago

Be the first to reply

A link to my FND story

Hi I have written my FND story for another site and have attached a link here http://www.functionalmovementdisorder.com/?p=1945 I know we are all different but...

Hi I have written my FND story for another site and have attached a link here ht...

Cookiecc67

•6 years ago

Be the first to reply

New Guy

Feeling angry and very intolerant with everyone as l have been ill now for 4 years now. Been to see so many Drs and Nerologist told last havhe a functional...

Feeling angry and very intolerant with everyone as l have been ill now for 4 yea...

Mikey1960

•6 years ago

1 Reply

Just joined

Hi l am Mike, just new to the group and hope to get some interactive help on my condition and symptoms

Hi l am Mike, just new to the group and hope to get some interactive help on my ...

Mikey1960

•6 years ago

9 Replies

New interview with Glenn Nielsen on YouTube

Hi all, FND hope have just tweeted a link to a 25 minute interview with neurophysio therapist Glenn Nielsen on YouTube. He is talking about the new trial he...

Hi all, FND hope have just tweeted a link to a 25 minute interview with neuroph...

Dot50

•6 years ago

2 Replies

Bensodiazepines

Hi all out there I was wondering how many of you have been prescribed bensodiazepines as I was on them for some time and they were good for strong attacks but...

Hi all out there I was wondering how many of you have been prescribed bensodiaze...

Renwick1

•6 years ago

5 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for July 2018

Nerve pain in legs

How to help pain in foot.

Episodes of paralysis

Epilepsy or non epileptic seizures

FND help?

FND sucks

Time to consider CBD?

Just been diagnosed with functional neurological disorders got a couple of questions thanks

Help i guess?

I've started having tremors in my legs. Is that bad?

To all who replied to my blogs.

Anti NMDA receptor encephalitis

Newly diagnosed daughter 30 years old.

Newly diagnosed and wants a baby

Does anyone else diagnosed with F.N.D suffer from changes to heat and cold temperatures outside?

Message of thanks to everyone.

FND Research Survey

Diagnosed FND

Conversion disorder

The Motor Reprogramming Program for Functional Movement Disorders in Kentucky

Speech Loss following a Dissociative Seizure

Advice on FND

How to help my son

Big day Wednesday

Don't give up

A link to my FND story

New Guy

Just joined

New interview with Glenn Nielsen on YouTube

Bensodiazepines

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive