Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,638 members • 2,941 posts

All posts for November 2022

advice please

hi, new to this group. Had a walking problem since 2018, wobbly, balance bad, felt uneven, stairs worse- legs go weak! Left foot turns out. Can set off ok ish...

hi, new to this group. Had a walking problem since 2018, wobbly, balance bad, fe...

Judiy

•1 year ago

6 Replies

Advice please

So I got diagnosed 2 weeks ago after 6 years of symptoms which was diagnosed as fibromyalgia/hypermobility/sleep apnea and hypertension over those 6 years but...

So I got diagnosed 2 weeks ago after 6 years of symptoms which was diagnosed as ...

Jaye75

•1 year ago

6 Replies

Abnormal spine MRI

Has anyone had an abnormal MRI after their doctor told them their symptoms were all functional? I had an MRI with and w/o contrast on my spine and it said...

Has anyone had an abnormal MRI after their doctor told them their symptoms were ...

Cas85

•1 year ago

2 Replies

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FND or Neurodegeneration??..the Eternal Question

Does anybody have severe Cognitive Issues such as Derealisation, lack of Concentration and a general Feeling of Cognitive unease? On 4th Neurologist now and...

Does anybody have severe Cognitive Issues such as Derealisation, lack of Concent...

TwoSunspots

•1 year ago

11 Replies

Sudden Low Back Pain. When to seek imaging… OR chalk it up to “it’s just FND”

This disorder makes it impossible to know when to get imaging for something damaged / structural issues… or to just chalk it up to a FND symptom. I’ve had...

This disorder makes it impossible to know when to get imaging for something dama...

seamuspg

•1 year ago

5 Replies

Looking for Advice & Support

Hello! I’m ChronicCrafter, this is my first discussion on here. I’m really hoping that I can find some support here, I don’t really have anyone else to talk...

Hello! I’m ChronicCrafter, this is my first discussion on here. I’m really hopi...

ChronicCrafter

•1 year ago

7 Replies

Good to see Dr Nicholson as a winner of one of these awards:

https://www.rcpsych.ac.uk/.../rcpsych.../rcpsych-awards-2022

210272

•1 year ago

2 Replies

Inflammation

Hi ..Do you get relapses with FND as with MS that get better over time and is there inflammation involved? I'm currently awaiting diagnosis and it's all...

Hi ..Do you get relapses with FND as with MS that get better over time and is th...

Denise1968

•1 year ago

7 Replies

I have had another seizure, after 4 years in the process of possibly changing meds due to photosensitivity.

Now having sezuires I have been on carbamazepine and April it was found I have photosensitive due to the medication. I was ment to go on lamotrigine but when...

Now having sezuires I have been on carbamazepine and April it was found I have p...

Kersjones

•1 year ago

4 Replies

rehab clinics

Hi, can anyone advise on any in house rehab clinics for FND in the uk please. Thanks Paul

Hi, can anyone advise on any in house rehab clinics for FND in the uk please. ...

Celt2uk

•1 year ago

2 Replies

Help please

I was diagnosed with FND since 2017 by Dr Mark Edwards on St George hospital so l would like to ask for help how can I get some information about the medically...

I was diagnosed with FND since 2017 by Dr Mark Edwards on St George hospital so ...

senis2oo4

•1 year ago

4 Replies

FND seizures

Hi, my daughter started to have seizures in September out of the blue, she’s 14 soon to be 15. She went to a&e who said bloods and ecg heart trace was all good...

Hi, my daughter started to have seizures in September out of the blue, she’s 14 ...

Alba-1

•1 year ago

4 Replies

Leg Weakness and coming to terms

I just found out that my leg weakness is functional which I’m coming to terms with. I herniated a disk a year ago, my right foot dropped and I stopped being...

I just found out that my leg weakness is functional which I’m coming to terms wi...

Hidden

•1 year ago

6 Replies

Diagnosis finally!!

I am so relieved to know that "it's all in my head" is not true, symptoms for 6 years : gait/tremor/fatigue/pain/eyesight/hearing/headaches/memory/smell &...

I am so relieved to know that "it's all in my head" is not true, symptoms for 6 ...

Jaye75

•1 year ago

23 Replies

Somatic Experiencing Success?

I'm curious if anyone has had any success utilizing somatic experiencing. In principal it makes sense, but in all honesty, my symptoms seem too "severe" to...

I'm curious if anyone has had any success utilizing somatic experiencing. In pri...

seamuspg

•1 year ago

1 Reply

recovery isn't a straight line

I have FND and people in my life have been treating it like a minor inconvenience when I'am in pain and discomfort constantly. people have been comparing my...

I have FND and people in my life have been treating it like a minor inconvenienc...

kcharris

•1 year ago

6 Replies

Is there help

I have read about the university of york england had a promising research study on functional dystonia and fnd. Called the cando study, has anyone heard or...

I have read about the university of york england had a promising research study ...

What1234

•1 year ago

1 Reply

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for November 2022

advice please

Advice please

Abnormal spine MRI

FND or Neurodegeneration??..the Eternal Question

Sudden Low Back Pain. When to seek imaging… OR chalk it up to “it’s just FND”

Looking for Advice & Support

Good to see Dr Nicholson as a winner of one of these awards:

Inflammation

I have had another seizure, after 4 years in the process of possibly changing meds due to photosensitivity.

rehab clinics

Help please

FND seizures

Leg Weakness and coming to terms

Diagnosis finally!!

Somatic Experiencing Success?

recovery isn't a straight line

Is there help

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive