Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

6,109 members•3,371 posts

All posts for April 2019

FND and Dreams

Greetings... I had a question and I’m curious if anyone else has experienced the same dream problems that I do. For example, sometimes in my dreams the...

Greetings... I had a question and I’m curious if anyone else has experienced the...

•6 years ago

Do i have fnd

I have had several health issues that the doctors cant seem to figure out and just last week i started shaking in my left hand but at its worst it has been my...

I have had several health issues that the doctors cant seem to figure out and ju...

•6 years ago

In need of information and advice.

I recently had surgery. After which i have started experiencining several different things and some things have gotten worse. I have for a long time now had a...

I recently had surgery. After which i have started experiencining several differ...

•6 years ago

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Functional Misery Disorder

Hey folks, I have recently been diagnosed with the Functional Misery Disorder often called Functional Neurological Disorder. A condition that ruins your life...

Hey folks, I have recently been diagnosed with the Functional Misery Disorder of...

•6 years ago

Hello everyone my apologies for my absence who wants to watch a movie?

Myself and a fantastic production crew have been making a documentry regarding my fight and our fight against nfds and brain injuries I have decided to donate...

Myself and a fantastic production crew have been making a documentry regarding m...

•6 years ago

I can't take another dignoses and I know nothing about this new one of FND I was dignosed with last week.

Hi Everyone . I'm Ce. I'm sorry my heading sounds so negative. But this new dignoses I got last week from a neurologist makes 13 physical health and 1...

Hi Everyone . I'm Ce. I'm sorry my heading sounds so negative. But this new dign...

•6 years ago

Sharp needle pains am twitching muscles.

Hi everyone, I hope your enjoying your weekend. Can anyone please tell me if they have these systems an what they do for it? As I mentioned in my introduction,...

Hi everyone, I hope your enjoying your weekend. Can anyone please tell me if the...

•6 years ago

Functional overlay specialists

Has anyone seen Dr Paul Holmes at Guys Hospital in London, if so how did you find him, was he easy to relate to ?

Has anyone seen Dr Paul Holmes at Guys Hospital in London, if so how did you fin...

•6 years ago

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Working and FND???

How do you work with FND? I would prefer to work but with FND it's hard to explain to an employer what you barely understand. Also about a diagnosis that is...

How do you work with FND? I would prefer to work but with FND it's hard to expla...

•6 years ago

I'm only newly diagnosed.

Hi , thank you for this wonderful site. I have fibromyalgia and also M.E/ CFS for the last 20 year's and I have been dignosed with this FND inky last Friday. I...

Hi , thank you for this wonderful site. I have fibromyalgia and also M.E/ CFS fo...

•6 years ago

Swelling with FND?

I sometimes have facial swelling. My legs and feet also swells. Right now my tongue is a little swollen feels a little bit bigger in my mouth. I’ve been to...

I sometimes have facial swelling. My legs and feet also swells. Right now my ton...

•6 years ago

Looking for specialist

Has anyone been to see Dr. Richard Kanaan? What was the wait time? Has anyone used Klint neuro therapy or seen Katie Davies (Neuro physios agencies)?

Has anyone been to see Dr. Richard Kanaan? What was the wait time? Has anyone u...

•6 years ago

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FND in children

Does anyone have experience of FND in children? A young family member who is almost 12 has been diagnosed with this. He is having a really awful time as are...

Does anyone have experience of FND in children? A young family member who is alm...

•6 years ago

Lasting Symptoms and How They Start

Hey I have a question. The past couple of things with my body have stuck. 1ST my left leg didn't feel normal it felt foreign. I would walk with a drag and I...

Hey I have a question. The past couple of things with my body have stuck. 1ST m...

•6 years ago

FND-related Breathing Problems

Hi guys, Just a quick question - do any/many of you suffer with FND related breathing issues? If you'd read my first post, you'll know that I haven't been...

Hi guys, Just a quick question - do any/many of you suffer with FND related bre...

•6 years ago

How I’m Healing from FND

Hi friends! I really hope that you’re all managing okay & being gentle with yourselves. It’s been a little while since I’ve been on here, but I wanted to...

Hi friends! I really hope that you’re all managing okay & being gentle with your...

•6 years ago

How I’m Healing from FND

Hi friends! I really hope that you’re all managing okay & being gentle with yourselves. It’s been a little while since I’ve been on here, but I wanted to...

Hi friends! I really hope that you’re all managing okay & being gentle with your...

•6 years ago

World FND Week -Education Webinars

Join a webinar: https://fndhope.org/fnd-specialists/ Thursday- Q and A with FND specialist "International Work" Tim Nicholson Friday- Q and A "Finding a New...

Join a webinar: https://fndhope.org/fnd-specialists/ Thursday- Q and A with FND...

Administrator•6 years ago

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FND and your hormones role? Docs?

I have been feeling extra weak with slurring speech and feeling so run down. I thought I was doing better. Then I remembered the last time I felt this way I...

I have been feeling extra weak with slurring speech and feeling so run down. I t...

•6 years ago

CBT - How low can you go?

I am 43. If I wrote a book and managed to cover every trauma I have experienced, without missing anything it would be several volumes long and even I wouldn't...

I am 43. If I wrote a book and managed to cover every trauma I have experienced...

•6 years ago

Coping with certain symptoms

I sometimes have paralysis but I get through it by knowing it's temporary. I get out of it by focusing on one movement. Like my arm won't move, so i'll focus...

I sometimes have paralysis but I get through it by knowing it's temporary. I ge...

•6 years ago

FND has to be GENETIC

I think FND is a genetic defect of the brain that these doctors still haven’t identified because all they think we have is stress. My mother has irritable...

I think FND is a genetic defect of the brain that these doctors still haven’t id...

•6 years ago

What sort of symptoms do you have?

Hi everyone, I'm at a juncture now where I'm totally out on a limb. I've spent the best part of the last 22 months trying to find out what the hell is...

Hi everyone, I'm at a juncture now where I'm totally out on a limb. I've spent ...

•6 years ago

Live Webinar with Dr Kathryn Lafaver

Sign up now for Dr Kathrin Lafaver live Webinar Specialty: Neurology Location: Director of the Movement Disorders Clinic and Assistant Professor of Neurology...

Sign up now for Dr Kathrin Lafaver live Webinar Specialty: Neurology Location:...

Group Admin•6 years ago

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FND will CBD oil help?

Has anyone here taken CBD oil to help with their symptoms and if so which symptoms do they help? I want something to help my functional weakness and slurred...

Has anyone here taken CBD oil to help with their symptoms and if so which sympto...

•6 years ago

FND AWARENESS, will only truly happen if a celebrity or politician gets it. If only someone “important” would “come out”

It sucks for me to say this but I think this is true. FND is mostly known as conversion disorder in the U.S. and with the mental illness label that’s attached...

It sucks for me to say this but I think this is true. FND is mostly known as co...

•6 years ago

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#FNDaware

He looked me in the face, and with the utmost compassion said, "At least it isn't something serious like MS.". 14 months, and that's the best he can say? I...

He looked me in the face, and with the utmost compassion said, "At least it isn'...

•6 years ago

Chronic pain

Hi everyone... I’m finding adjusting my life to manage my FND is increasingly difficult. My worst symptom is SEVERE pain. My pain wakes me all hours of the...

Hi everyone... I’m finding adjusting my life to manage my FND is increasingly di...

•6 years ago

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