Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,981 members•3,236 posts

All posts for May 2019

Chuck something else on my plate why don't ya!

So I shouldn't complain really...at least this can't be blamed on FND. I've had what I thought was a cyst, on my nose, for about 10 years, but over the past...

So I shouldn't complain really...at least this can't be blamed on FND. I've ha...

•6 years ago

FND and St. John’s Wort

My doctor prescribed Cymbalta but my health insurance denied it. I looked for a natural antidepressant online and saw St. John’s Wort. Has this helped anyone...

My doctor prescribed Cymbalta but my health insurance denied it. I looked for a ...

•6 years ago

Chronic Fatigue and NEAD

Has anyone any advice. I've read that it helps persons with fnd to have a vit B12 supplement and that a higher level should be maintained. Weekly or...

Has anyone any advice. I've read that it helps persons with fnd to have a vit B...

•6 years ago

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Once upon a midnight dreary, while I pondered, weak and weary, Over many a quaint and curious volume of forgotten lore— While I nodded, nearly napping,...

Once upon a midnight dreary, while I pondered, weak and weary, Over many a quai...

•6 years ago

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Further tests.. I'm trying something private?

Hey, Like all of you & probably those close to you, I'm struggling to accept my change. Having had what was thought to be a stroke & right side weakness, it...

Hey, Like all of you & probably those close to you, I'm struggling to accept my...

•6 years ago

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FND in the UK

Just a brief thought I’ve always had... why are there so many people in the UK for this disorder? There seems to be many people in this forum from the UK and...

Just a brief thought I’ve always had... why are there so many people in the UK f...

crystallinecanine

•6 years ago

Going Private, once again

Hi all, Was everybody else's attempts to get some sort of diagnosis equally as frustrating? I mean, I'm not even 100% that I'm an FND sufferer just yet, but I...

Hi all, Was everybody else's attempts to get some sort of diagnosis equally as ...

•6 years ago

Cruel cruel diagnosis / NHS money saver.

I've just come out of Nottingham City hospital following admission due to loss of speech and right sided weakness. I suffer with terrible migraines, have done...

I've just come out of Nottingham City hospital following admission due to loss ...

•6 years ago

Twitches and the like...

So from what I’ve seen among these posts, quite a few people in this community experience dystonia, Myoclonus, jerks, drop attacks and seizures. Everyone has...

So from what I’ve seen among these posts, quite a few people in this community e...

crystallinecanine

•6 years ago

This might sound a bit odd....

Does a rectal prolapse have anything to do with fnd. One of the causes was damaged nerves.

Does a rectal prolapse have anything to do with fnd. One of the causes was dama...

•6 years ago

The NHS don't make this easy..

So I had finally managed to get an elusive appointment with the Walton Centre here in Liverpool, which specialises in neurology. Having been investigated for...

So I had finally managed to get an elusive appointment with the Walton Centre he...

•6 years ago

Neurological problems caused by minocycline.

Has anyone developed this after taking minocycline? I've had neurological problems ever since taking this drug 20 years ago for acne. It is known for its high...

Has anyone developed this after taking minocycline? I've had neurological probl...

•6 years ago

FND Men - FND Hope

The FND Men - FND Hope group is for Men with FND only, to discuss issues, symptoms, etc which they may not be comfortable to talk about on general FND pages,...

The FND Men - FND Hope group is for Men with FND only, to discuss issues, sympto...

Group Admin•6 years ago

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Disability?

Anyone file for disability and actually got it?

Anyone file for disability and actually got it?

•6 years ago

So limited information any suggestions?

Hey all, I'm recently thought to have FND to go with my Fibromyalgia ( 2yrs) & arthritis ( many yrs) & now awaiting the referral that will put me on a long...

Hey all, I'm recently thought to have FND to go with my Fibromyalgia ( 2yrs) & ...

•6 years ago

Anyone ever have days/moments where you just don't 'feel right'?

Hi all, Not yet had a full diagnosis of FND, but my GP has suggested it, along with a general medicine Dr and after literally ruling everything from...

Hi all, Not yet had a full diagnosis of FND, but my GP has suggested it, along ...

•6 years ago

Sympthoms

Anyone with hyperreflexia, clonus and twitching?

Anyone with hyperreflexia, clonus and twitching?

•6 years ago

Moving House

Hi, Haven't been on for a while. I had to stop work in the end. I was unable to handle the stress. Did the fnd make it harder to handle, probable I will...

Hi, Haven't been on for a while. I had to stop work in the end. I was unable t...

•6 years ago

Hello, new to this site and working out profile. I'll upload better pic when I know how. I'm a FND & Fibromyalgia sufferer

Hi I was indicated by a neurologist that I have FND, having had Fibromyalgia for a couple of years. I have identified with so many of the symptoms on this...

Hi I was indicated by a neurologist that I have FND, having had Fibromyalgia for...

•6 years ago

Stem cell therapy for FND??

Has anyone here had stem cell therapy for FND? Did it help? I know most insurances don't cover the cost. A clinic in Omaha, NE called me back today and they...

Has anyone here had stem cell therapy for FND? Did it help? I know most insuranc...

•6 years ago

Hello from a gal with FND, autoimmune considerations, and more..

Just a quick introduction. I'm Katherine, and my friends call me Kayteezee (sounds like KTZ) or Katie. I'm considering this space a space of Friends.. so hi...

Just a quick introduction. I'm Katherine, and my friends call me Kayteezee (so...

•6 years ago

Body can move but brain saying no...

Yesterday was the first time I had this happen and after hints or tips from anyone who has been through this. I had a busy day with a meeting and other things...

Yesterday was the first time I had this happen and after hints or tips from anyo...

Regaining-control

•6 years ago

Just saying 'hi'

I have EDS, fibro, OA, cfs and all the complications that go along with that little lot... and then there were those things that just couldn't be explained......

I have EDS, fibro, OA, cfs and all the complications that go along with that lit...

•6 years ago

FND and CBT- does it actually work?

It seems as though neurologists feel as though it works wonders when it comes to treatment, however, they aren't the ones with FND. I got officially diagnosed...

It seems as though neurologists feel as though it works wonders when it comes to...

crystallinecanine

•6 years ago

Hi from a guy with FND

I joined about a month ago after neurologist diagnosed me with FND. Thought I'd best say hi, instead of lurking in the shadows in a dressing gown surrounded by...

I joined about a month ago after neurologist diagnosed me with FND. Thought I'd ...

•6 years ago

Anyone in Brooklyn, NY with FND?

Hi, I live in Brooklyn, NY. Where doctors here think of FND as conversion disorder caused by stress. Does anyone live here too! Where are you guys from?

Hi, I live in Brooklyn, NY. Where doctors here think of FND as conversion disord...

•6 years ago

BLUE SAFETY GLASSES

Hello, i've been having tourette like tics and verbal tics for a few months now they were small and brief then progressed. Along with walking real bad. After...

Hello, i've been having tourette like tics and verbal tics for a few months now ...

•6 years ago

Answer ASAP please : Re Seizure's

Hi everyone. I have only started having the Seizure part of this condition and I'm getting quite worried. My first seizure that only lasted five seconds...

Hi everyone. I have only started having the Seizure part of this condition and I...

•6 years ago

Duloxetine (Cymbalta) and FND

My doc prescribed Cymbalta to help manage my symptoms. My health insurance will not cover it. Has anyone here used this medication? Please share your...

My doc prescribed Cymbalta to help manage my symptoms. My health insurance will ...

•6 years ago

FND and cortisol

I was curious if anyone has checked their cortisol levels since they have been diagnosed with FND. They say FND is stress related and since cortisol is the...

I was curious if anyone has checked their cortisol levels since they have been d...

•6 years ago

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