Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,635 members • 2,940 posts

All posts for January 2019

To all my fellow fighters

When things go wrong as they sometimes will, When the road you're trudging seems all uphill, When the funds are low and the debts are high And you want to...

When things go wrong as they sometimes will, When the road you're trudging seems...

Gud4Ewe

•5 years ago

1 Reply

Relief at last!

Well to make a long story short my symptoms started April 2018 with right hand tremors and went downhill from there. My symptoms progressed to right side head...

Well to make a long story short my symptoms started April 2018 with right hand t...

T-KY

•5 years ago

1 Reply

Cocentration

Hi, I would like to know if there are serious issues relating to concentration from fnd. I have found myself questioning my driving ability, and it is since...

Hi, I would like to know if there are serious issues relating to concentration f...

Jazymay

•5 years ago

12 Replies

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Does anyone else have these symptoms???

My friend has very unusual symptoms, diagnosed with Functional Neurological Symptoms 18 months ago but we are not convinced. The symptoms continue to change....

My friend has very unusual symptoms, diagnosed with Functional Neurological Symp...

nope45

•5 years ago

4 Replies

Other symptoms and tests besides neurological?

I keeep reading about the neurological disorders and pain but have many of you had out of range blood test, tumors, flares on MRI, other symptoms like hormones...

I keeep reading about the neurological disorders and pain but have many of you h...

Momofson

•5 years ago

34 Replies

Pain?

Do most of you diagnosed with FND have pain? My son just got diagnosed with it and I don’t believe it at all. I think he has paraneoplastic or AE or maybe...

Do most of you diagnosed with FND have pain? My son just got diagnosed with it a...

Momofson

•5 years ago

10 Replies

Shaking and Shivering symptoms?

Hi everyone, Does anybody with FND get a cold like feeling that can suddenly come on and Shivering, shaking also. My wife had them last night and phoned me...

Hi everyone, Does anybody with FND get a cold like feeling that can suddenly co...

LEEJUNFAN

•5 years ago

7 Replies

Odd Way To Deal With Symptoms

It was weird today. Today I worked as usual and had small things like usual. But the odd thing ive done to do to help get me through was try something new. I...

It was weird today. Today I worked as usual and had small things like usual. Bu...

Hidden

•5 years ago

10 Replies

No help

FND is a diagnosis with no out come no help no real support it is ruining us good luck to everyone else

FND is a diagnosis with no out come no help no real support it is ruining us goo...

DonandLisa

•5 years ago

9 Replies

Jon Stone webinar

Hi all, just to say, Jon Stone giving webinar tonight, 9pm UK time. Go to fndhope.org to register and get logon details. Dot

Hi all, just to say, Jon Stone giving webinar tonight, 9pm UK time. Go to fndhop...

Dot50

•5 years ago

Be the first to reply

Why...

My first experience with fnd was in may of 2017. I was driving home from my brother college graduation. I had my 2 year old son in the car. I started to feel...

My first experience with fnd was in may of 2017. I was driving home from my brot...

Halobean

•5 years ago

12 Replies

Overexhersion

Hi, I was just wondering how many people seem to be triggered by over activity? I had a stressful week. So it is possible it was that. But to deal with it I...

Hi, I was just wondering how many people seem to be triggered by over activity? ...

Jazymay

•5 years ago

10 Replies

My 34 fiance' has FND, or does he?

Hi there, I am writing this post in hope that I can get some advice/support. My 34 yr old fiance' was diagnosed with FND approximately 2 years ago (and 6...

Hi there, I am writing this post in hope that I can get some advice/support. My...

ash12041990

•5 years ago

11 Replies

16 year old daughter has been diagnosed with FND

Hello My 16 year old daughter has been diagnosed with FND. We know very little about this and would love any help and advice anyone can give. She is very down...

Hello My 16 year old daughter has been diagnosed with FND. We know very little a...

carrickgirl1

•5 years ago

14 Replies

Neck pain

Hi all, has anyone experienced really bad neck pain? I have an issue with the back of my neck/head feeling like it has been pulled so tight it will snap. This...

Hi all, has anyone experienced really bad neck pain? I have an issue with the ba...

Regaining-control

•5 years ago

5 Replies

FND diagnosed but I’m uncertain??

Hi, I been having symptoms for nearly 3 years now. It al started when I had my little boy by c section, when they did my spinal I had a pain shoot down my...

Hi, I been having symptoms for nearly 3 years now. It al started when I had my l...

Sj2103

•5 years ago

15 Replies

Internal brusing- should I be concerned?

Following on from my previous post. I got out of hospital on the Friday just gone. I had all sorts of tests done, with an MRI with contrast being done on the...

Following on from my previous post. I got out of hospital on the Friday just gon...

RhiannonT

•5 years ago

3 Replies

Not really sure what to write???

Well??? Here goes. I've been suffering for 6+ yrs. My own Dr basically ignoring me. I had all symptoms of MS. Not coping, stressed thinking I had MS....

Well??? Here goes. I've been suffering for 6+ yrs. My own Dr basically ignoring ...

Cindy391

•5 years ago

5 Replies

Who Are You?

'Who are you?' Asked the Caterpillar 'I hardly know at present, at least I know who I was when I got up this morning, but I think I must have been changed...

'Who are you?' Asked the Caterpillar 'I hardly know at present, at least I know...

Gud4Ewe

•5 years ago

6 Replies

Heavy metals?

Has anyone ever been tested for heavy metals?

Hidden

•5 years ago

1 Reply

THANKYOU so much

Finally thankyou people who know where I'm coming from .the worst thing that is so difficult is having toilet issues every day with no warning bowel and...

Finally thankyou people who know where I'm coming from .the worst thing that is ...

Derrian

•5 years ago

4 Replies

Any advice

Hi all. Long story short, I've had essential tremor (or what I thought was ET) since 2012, over the past 6 months it has got progressively worse, along with...

Hi all. Long story short, I've had essential tremor (or what I thought was ET) s...

RhiannonT

•5 years ago

2 Replies

Please do not accept your FND diagnosis without a fight

I am in abject shock that an fnd group exists and hope it is simply a way for all of those so terribly misdiagnosed to share experiences and suggestions to...

I am in abject shock that an fnd group exists and hope it is simply a way for al...

Joanna36

•5 years ago

63 Replies

Fuzzy

I’m really struggling today! I can’t seem to focus my mind on anything. And it’s so loud in my head. Not a hum like tinnitus. But loud pressure. I feel like...

I’m really struggling today! I can’t seem to focus my mind on anything. And it’s...

Chihuahua_crazy

•5 years ago

8 Replies

Help

I feel so alone and isolated . Where who can help . For over 20 yrs I have been in and out of hospital with strokes and TIAS my face droops and feels numb all...

I feel so alone and isolated . Where who can help . For over 20 yrs I have been ...

Derrian

•5 years ago

2 Replies

Misdiagnosed with FND

Hello all, I joined 6 months ago when suddenly my life changed. I got the whole FND diagnosis and KNEW full heartedly this diagnosis was not what I was going...

Hello all, I joined 6 months ago when suddenly my life changed. I got the whole...

acalandra995

•5 years ago

10 Replies

Phantom smell

Morning guys. Ok so every now and then I have this smell that only I can smell. No amount of showers or perfume I use it’s still there. This morning this...

Morning guys. Ok so every now and then I have this smell that only I can smell. ...

Chihuahua_crazy

•5 years ago

5 Replies

Sertraline 25mg

Hi, I’m hoping to go back to work week after next however quite anxious this will trigger my symptoms off again.My GP has prescribed sertraline to help with...

Hi, I’m hoping to go back to work week after next however quite anxious this wil...

CharlieG87

•5 years ago

4 Replies

My Aunty/carer has just upset me!

I’m sat here in tears. She told me she googled fnd. And told me all I have to do is retrain my brain! My sleep is very broken. I’m early in bed. And early up!...

I’m sat here in tears. She told me she googled fnd. And told me all I have to do...

Chihuahua_crazy

•5 years ago

31 Replies

Sleep Aids

Getting a deeper sleep really helps.Try https://youtu.be/8TDcGYmEgyM Even if you sleep well I find it helps you feel a bit less fatigued. Xxx

Getting a deeper sleep really helps.Try https://youtu.be/8TDcGYmEgyM Even if you...

CharlieG87

•5 years ago

1 Reply

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for January 2019

To all my fellow fighters

Relief at last!

Cocentration

Does anyone else have these symptoms???

Other symptoms and tests besides neurological?

Pain?

Shaking and Shivering symptoms?

Odd Way To Deal With Symptoms

No help

Jon Stone webinar

Why...

Overexhersion

My 34 fiance' has FND, or does he?

16 year old daughter has been diagnosed with FND

Neck pain

FND diagnosed but I’m uncertain??

Internal brusing- should I be concerned?

Not really sure what to write???

Who Are You?

Heavy metals?

THANKYOU so much

Any advice

Please do not accept your FND diagnosis without a fight

Fuzzy

Help

Misdiagnosed with FND

Phantom smell

Sertraline 25mg

My Aunty/carer has just upset me!

Sleep Aids

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive