Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,982 members•3,236 posts

All posts for November 2016

Probable FND, I disagree with diagnosis

I just can't get my head round any of it i'm a runner and still running pretty fit just have muscle issues . in my mid 40 Also run my own company . Basically...

I just can't get my head round any of it i'm a runner and still running pretty f...

•8 years ago

FND and Breast Cancer Screening

Two years ago I gave myself breast cancer. Now that I've recently been diagnosed with Functional Neurological Disorder I can be absolutely positive that I...

Two years ago I gave myself breast cancer. Now that I've recently been diagnosed...

•8 years ago

Hello! Newbie here :)

My name is Tam and today I've been diagnosed with FND. I am almost 35. I live in Australia with my husband and two little girls. I have had, over the last...

My name is Tam and today I've been diagnosed with FND. I am almost 35. I live in...

•8 years ago

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Continued fight for rehousing.

Hi everyone! I've no doubt a lot of you will be aware of my posts on trying to get my wife rehoused into a Bungalow from our 2nd floor flat due to her...

Hi everyone! I've no doubt a lot of you will be aware of my posts on trying to g...

•8 years ago

Sensory disturbance

Hi, I have been getting progressive sensory problems over the last four months - burning, freezing cold, tightness, numbness, prickles and grit sensation in...

Hi, I have been getting progressive sensory problems over the last four months -...

•8 years ago

Leg pain

Hi there,I have f.n.d and ever since last Friday I've been in horrible pain from the waist down,my legs have been achony on times...I have been in and out of...

Hi there,I have f.n.d and ever since last Friday I've been in horrible pain from...

•8 years ago

Giving up

Just got home from seeing my GP after waiting for paper work from Neuro to come as it has been 2 weeks since diagnosis to find that the recondition for...

Just got home from seeing my GP after waiting for paper work from Neuro to come ...

•8 years ago

Non epilepsy attacks

I found out today after being referred to a neurologist by my GPs that I have been having non epilepsy attacks recently due to stress. Does this go or have I...

I found out today after being referred to a neurologist by my GPs that I have be...

•8 years ago

Incontenence Issues?

Hi Crew, Ive had FND for a while now or should I say 3 years and although my symptoms are frustrating and annoying, theres one thing which Ive had 2 episodes...

Hi Crew, Ive had FND for a while now or should I say 3 years and although my sym...

•8 years ago

Chest pains, what's with that?

Hi. I'm curious about the chest pains we get. I've had all the tests in regard to my heart (which is healthy) but still do get palpitations and a cramping...

Hi. I'm curious about the chest pains we get. I've had all the tests in regard t...

•8 years ago

RE: What or who inspires you when you have FND?

Hi everyone! Many of you may have read my previous posts as my wife Kim has FND. We've just watched a film starring Malcolm McDowell called ' The Raging Moon'...

Hi everyone! Many of you may have read my previous posts as my wife Kim has FND....

•8 years ago

FND prognosis

I would be interested to hear from other FND sufferers suffering primarily from sensory symptoms (numbness, prickling, crawling, heaviness etc) including...

I would be interested to hear from other FND sufferers suffering primarily from ...

•8 years ago

Is FND progressive?

I have noticed some people seem to have times without problems like months or years between a flare etc? I seem to attain new, stronger or more frequent...

I have noticed some people seem to have times without problems like months or ye...

•8 years ago

FND and roaming pain

Hi...for many years I suffered from a movement disorder down my left side...I was finally diagnosed as having conversion disorder and underwent 60 biofeedback...

Hi...for many years I suffered from a movement disorder down my left side...I wa...

•8 years ago

New to the group...

Hi, I'm 43. Confirmed FND. Would love to connect. Feel free to contact me. Wondering what symptoms everyone has and how you cope. I've been being getting...

Hi, I'm 43. Confirmed FND. Would love to connect. Feel free to contact me. Wonde...

•8 years ago

FMD, What really is going on??

Good Morning All, Many of you know me, some are new and may not. Anyone can read previous posts of mine so that I don't have to be to redundant in this post....

Good Morning All, Many of you know me, some are new and may not. Anyone can rea...

•8 years ago

Had enough.. need to know I'm not the only one.

Hello, I'm 26 and suffer from FND.. It was mentioned a few years ago in hospital and then forgotten about. 2 months ago I had my worst turn that lasted 4 weeks...

Hello, I'm 26 and suffer from FND.. It was mentioned a few years ago in hospital...

•8 years ago

Mindfulness

Hi there after reading lots of posts that bring up the benefits of mindfulness, i wondered if anyone had negative experiences? My speech therapist worked on...

Hi there after reading lots of posts that bring up the benefits of mindfulness,...

•8 years ago

Aloe vera

Hi all, I was wondering if anyone has tried aloe Vera gel and /or bee pollen tablets for Fnd? My friend has recommended them as can relieve me/Fibromalgia ...

Hi all, I was wondering if anyone has tried aloe Vera gel and /or bee pollen tab...

•8 years ago

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Achohol and FND

Hi I would really like to know if alcohol makes symptons worse. My husband sometimes has non-epileptic seizures after drinking several beers. He is a regular...

Hi I would really like to know if alcohol makes symptons worse. My husband some...

•8 years ago

Functional Problem vs Psychological Problem

Question: I am seeing my family doctor on Monday and he is willing to do anything to help me with my FND condition. Is there any specialist that he could send...

Question: I am seeing my family doctor on Monday and he is willing to do anythin...

•8 years ago

Functional sensory disorder

I would very much like to hear from anyone suffering from diffuse sensory problems. Is there anything that helps? Some people have mentioned a gluten free...

I would very much like to hear from anyone suffering from diffuse sensory proble...

•8 years ago

PIP on FND

I wonder if any of you with FND got PIP and enhanced mobility. My main problem is my mobility as I get paralysed on my left side, however of course, it is not...

I wonder if any of you with FND got PIP and enhanced mobility. My main problem i...

•8 years ago

Dealing with emotions with FND

Hi everyone! Any advice in how you deal with the emotional ups and downs of FND? My wife deals with it in an incredibly strong way just as you all do but when...

Hi everyone! Any advice in how you deal with the emotional ups and downs of FND?...

•8 years ago

I call BS on FND

Hi my name is Ronwyn after 5 years of being sick and having every test possible my neurologist told me on Monday I have FND what the stunned and shocked alone...

Hi my name is Ronwyn after 5 years of being sick and having every test possible ...

•8 years ago

Fed up

Feeling so worn out ive had a migraine in my eye and head all day & been in bed nearly all day sleeping. I also have chronic nausea so I really feel pants atm....

Feeling so worn out ive had a migraine in my eye and head all day & been in bed ...

•8 years ago

Hope

Hi everyone It has been a while since I last posted on here but I wanted to give some hope and positivity to everyone. 2 and a half years ago I was diagnosed...

Hi everyone It has been a while since I last posted on here but I wanted to giv...

•8 years ago

Bonfire night with FND

Hi everyone! Will anyone be attending any events or lighting fireworks off? We usually love Bonfire night but the last few months my wife has become more...

Hi everyone! Will anyone be attending any events or lighting fireworks off? We u...

•8 years ago

Another new symptom , Non epileptic seizures 😩😖😔

After experiencing stroke like symptoms on and off I'm now experiencing seizures too and to top it I also have fibromyalgia so I'm absolutely exhausted and my...

After experiencing stroke like symptoms on and off I'm now experiencing seizures...

•8 years ago

Local support

Having given up work 2 years ago in a rather stress full way I now have no life outside the house and have become rather isolated and my self confidence has...

Having given up work 2 years ago in a rather stress full way I now have no life ...

•8 years ago

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