Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,982 members•3,236 posts

All posts for April 2022

My travels through FND

My body and mind have seemed to be on a constant search for absolute disassociation over my lifetime and especially the last few years. I would say that my...

My body and mind have seemed to be on a constant search for absolute disassociat...

ShaMallyO777

•3 years ago

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Intention Tremor

Hi everyone I was just wondering if anyone else if getting a intention tremor? Sometimes i get them if i go to reach for something or if press my remote down...

Hi everyone I was just wondering if anyone else if getting a intention tremor? S...

whirlygirl16

•3 years ago

2 Replies

This may be of interest to people here with Dystonia/tremor

Rare Diseases Clinical Research Network (RDCRN) Review Examines Tremor in Dystonia New research from the Dystonia Coalition:...

Rare Diseases Clinical Research Network (RDCRN) Review Examines Tremor in Dyston...

210272

•3 years ago

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Don't give up hope everybody

Hello everyone, I know my last post consisted of a rant about FND. Today, I share positive news in another direction. I recently had an MRI of my cervical...

Hello everyone, I know my last post consisted of a rant about FND. Today, I sha...

Hidden

•3 years ago

14 Replies

Temperature related Symptom Inquiry

Hey all, Has anyone had experiences with their temperature regulation getting messed up with FND? Below I wrote out what I'm experiencing. Just unsure if it's...

Hey all, Has anyone had experiences with their temperature regulation getting me...

alaslizards

•3 years ago

5 Replies

FND Seizures

SEIZURES Hi, how does anyone cope with FND seizures? My friend was dx with FND and has multiple seizures a day. Hospital and doctors say they can do nothing...

SEIZURES Hi, how does anyone cope with FND seizures? My friend was dx with FND ...

Sonja8690

•3 years ago

9 Replies

just a rant

to go from working to doing nothing it feels degrading and useless. I've had fnd now for 8 years and I'm still trying to come to terms with I'll never work...

to go from working to doing nothing it feels degrading and useless. I've had ...

terry9griffins

•3 years ago

13 Replies

US and CAN Light Up for FND awareness month 2022

April 13th: We are spreading awareness by lighting the world for FND. Is your city listed below? Time for a field trip! Snap a photo and tag us! #fnd2022...

April 13th: We are spreading awareness by lighting the world for FND. Is your ci...

FND_

Administrator•3 years ago

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Light the world with FND

It is April World FND Month and we are lighting up the world for FND -Starting in Australia April 13th! Check out these locations! Take and selfie and share...

It is April World FND Month and we are lighting up the world for FND -Starting i...

FND_

Administrator•3 years ago

2 Replies

Dr. Mark Edwards (U.K.)

Has anyone been treated for FMD in the U.K. by Dr. Mark Edwards? If yes, was it inpatient or outpatient? Did you find the treatment effective? How long were...

Has anyone been treated for FMD in the U.K. by Dr. Mark Edwards? If yes, was it...

sgaetna2013

•3 years ago

5 Replies

I know there are people who have reported getting symptoms of FND after taking/stopping meds ...

... and people with a FND dx who have found it hard to tolerate the meds they are given. So this brings a sense of hope to me: Matching drugs to DNA is 'new...

... and people with a FND dx who have found it hard to tolerate the meds they ar...

210272

•3 years ago

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Fnd what medications are people on plz

I got put on sertaline but after 3 half months felt down and out tired and so sad i havent took them for two nights now im not sure what i should be doing on...

I got put on sertaline but after 3 half months felt down and out tired and so sa...

Di01

•3 years ago

4 Replies

FND symptoms and illness or injury

How does things like colds, flu, stomach bugs, viruses, UTI urinary tract infection, respiratory tract infection etc effect FND symptoms? Do they increase...

How does things like colds, flu, stomach bugs, viruses, UTI urinary tract infect...

Pault1

•3 years ago

3 Replies

University application rejection

Does anyone have any advice about how to appeal a decision to reject my daughters application to study BSc Veterinary Nursing, She has recently had a spate of...

Does anyone have any advice about how to appeal a decision to reject my daughter...

zoebrad

•3 years ago

10 Replies

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Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

All posts for April 2022

My travels through FND

Intention Tremor

This may be of interest to people here with Dystonia/tremor

Don't give up hope everybody

Temperature related Symptom Inquiry

FND Seizures

just a rant

US and CAN Light Up for FND awareness month 2022

Light the world with FND

Dr. Mark Edwards (U.K.)

I know there are people who have reported getting symptoms of FND after taking/stopping meds ...

Fnd what medications are people on plz

FND symptoms and illness or injury

University application rejection

Search posts

Pinned Posts

Latest poll

Are you FND aware? Do you wish others were? How are you most likely to engage in advocacy for FND:

Topics

Archive